Kel, I don't know if there are any GIs in the area who specialize in microscopic colitis. I know a bit about microscopic colitis, and what I know about it "fits" me very well. Obviously with MC the inflammation is microscopic, so on visualization (scopes and scans), the bowel appears totally normal and healthy. It doesn't cause bleeding like UC does (I have been bleeding off and on, but my GI found internal hemorrhoids which he says is likely the cause of my bleeding.) Microscopic colitis can only be found on biopsy, and because it has a skip pattern like Crohn's does, basically they have to luck into biopsying the right areas on colonoscopy in order to find it. The more biopsies they take, the better the odds that they'll find it. I think my GI took a dozen or so biopsies during my first colonoscopy (in April 2010) but he found nothing. He took some biopsies during my scope last year too (in August 2013) but also didn't find anything - I'm not sure how many biopsies he took that time but I know he took at least one random colon biopsy and one from the TI. I saw the photos from that colonoscopy - everything looked pristine and beautiful, my colon visually is the picture of health. So again, microscopic colitis would make sense, because the colon would look normal and healthy visually with MC.
Also, I've heard multiple people on the forum say that Entocort works really well for microscopic colitis - some people think it works even better for MC than it does for Crohn's. Anecdotally then I may be more likely to have MC than Crohn's because I do respond really well to Entocort. So there's a lot of, I guess you could call it circumstantial evidence pointing towards microscopic colitis. It's just hiding really well I guess, whatever it is!
Kel, if you'd like to do some reading up on microscopic colitis, there are 2 main types of it - lymphocytic colitis and collagenous colitis. You might have more luck googling those terms rather than just googling microscopic colitis.
Cindy, glad to see you back on the forum. That sucks though that you're not exercising at all right now.
How is your back doing, any better or worse since you've avoided the elliptical? Less than 2 weeks now till you go to Mayo Clinic - I really hope they can figure some things out and get you feeling better!
Oh, Cindy, you mentioned weight loss. I should give a little weight loss update on me. I'm actually for once trying to lose just a few lbs in an effort to rid myself of this little bit of belly flab that I've got. I am taking baby steps right now and just making a few changes here and there. For one thing, I had noticed a little while ago that if I eat just a very small dinner, I feel much better later on in the evening and the next morning as well. If I eat a normal/large evening meal then I sometimes spend quite a bit of time on the toilet just before bed and also when I first get up in the morning, and I don't feel very well. Eating just a small evening meal helps me avoid that and I just generally feel better, too. So I'm trying to only eat a very small bit at dinnertime and so far that's going well. (It might not be going well for hubby though - last night I ate about 1/3rd of the large plate of food he had prepared for me, and he said in a pouty way, "Do you even like anything that I cook for you?" I was like, chill, dude, it's not all about you, I'm trying to be nice to my guts here.)
Also, I've made a few food switches. I try to eat oatmeal as often as I can, because it's soluble fiber that I tolerate pretty well, and also because I have kind of high cholesterol. I had been eating oatmeal that I added some sugar to, or even those instant packets of oatmeal that surely are full of sugar too plus who knows what else. I know all that sugar can't be good for my guts nor my waistline. So now I'm just eating plain, no sugar 100% organic oats oatmeal. It was really bland at first, I won't lie, I kind of hated it. But it's been about a week now and I'm getting used to it. If I have something like fruit with it then that's all the sweetness I need, and it's even becoming tolerable on its own without fruit.
The other food switch I made was, for making my morning breakfast smoothies, I switched from regular/sweetened almond milk to the light/unsweetened variety. I can't tell a taste difference in my smoothies, so that's been a painless switch. So those are my first couple of food swaps so far, not too bad. I weighed myself yesterday and it said I have lost 2 lbs this week - not sure if I trust that scale though. I'm just going to keep up with it and look for other ways to make little swaps to be a bit healthier and take in a few less calories.