Diagnosed with IBS, turned down colonoscopy, not sure if my symptoms mean anything...

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Hi there!

Brand new here. Mainly here because I have a lengthy story but I'm sure everyone does :) Basically I don't know if I should put myself in line for a colonoscopy or not...

So when I was 17, I moved to university and started having major problems with digesting foods. We always figured it was my lactose intolerance, but after a while it didn't seem to coincide with milk. It was high-fat foods, large meals, complicated meals (lots of carbs/proteins/fat all in one), etc. It was honestly just really hard to pinpoint what was wrong. I lost 15lbs in a year I think, which I didn't really gain any back until 2yrs later (and only now, 5yrs later, I've gained only about 13lbs of that back). I wasn't having really frequent diarrhea but anytime I ate, I pretty much got sick immediately.

3 yrs later I started getting a little better (things in my life also became dramatically positive). I was diagnosed with an overactive bladder due to frequent UTIs without positive culture results - so basically an inflammatory attack that hits me all the time. I'm pretty used to it now.

Then I got into medical school and here's where it gets complicated - being a med student actually makes you *afraid* to go to the doctor because they don't take you seriously at all. All med students are "hypochondriacs" and making **** up as they go. But in 1st year med, I started noticing aching in my finger joints (in weird ones too) and my wrists. I broke out in a strange rash, chalked up to pityriasis rosea. And my bowels were so annoying... it got to the point where I couldn't go out for dinner with my friends, go to formal events, etc. without getting sick. The only place safe was home - and I don't know if my diarrhea was any better at home but atleast I was alone.

Last week, I went to the doctor because we're in GI block, and my symptoms seemed alarming enough to me to wonder if something was legitimately wrong. The doctor said I was classic IBS, prescribed me some Buscopan and said I could do a colonoscopy but nothing will probably come of it.

Tested me for hyperthyroidism, celiac, anemia - normal. No physical exam done though, just went on symptoms.

I am positive for anti-nuclear antibodies and I have a very strong history of autoimmune disease on my mother's side. Psoriasis, rheumatoid arthritis, vitiligo, Grave's, Sjorsen's. On my dad's side, diabetes, colon polyps/problems in general, heart disease.


So..... after that ridiculous story... What do you guys think? Should I be worried about IBD? Or does IBS sound about right? I wanted to ask people who actually knows what it feels like to be sick all the time, and not just go on a busy Campus doctor's opinion.
 
Hi tdot and :welcome:

Good to see you here. Well with the family history and symptoms you have I would probably err to caution and have testing done. I personally don't think you can rule IBD out and with the extraintestinal type symptoms......well who knows. Bear in mind that IBD can be difficult to diagnose so don't be put off by normal results if you believe that IBD is a possibility.

There's loads of info and support here for you so any questions you have just fire away. I wish you all the luck in the world with your studies and please keep us posted on how you are going and what you decide. Good luck and welcome aboard!

Take care, :)
Dusty
 
I would go for the colonoscopy just to be sure, with your symptoms I would say (having been through a mis diagnosis myself) that you can't rule out IBD at this stage.
 
the scope isn't a bad idea, if your name is an indication of location then you're in Canada and it's free. But it's better to be sure and get the scope and know so that you can get the proper treatment. Nip it in the bud as opposed to waiting for things to go south.
 
hi there tdot - I'm sorry you're feeling so aweful! I'm also trying to get a dx, and I know how horrible the process can be when you don't know what's wrong. I just wanted to say that when I tested pos. for ANA and went to see a rhematologist, she just kept asking if I've ever had a rash...my answer was no, but that seemed to be a major indication that something autoimmune is wrong - the presence of a rash. Particularly with your family history, I would see a rheum just to make sure it's not autoimmune. Evidently too, some of the autoimmunes can cause IBS symptoms in addition to everything else. Good luck in med school! I'm trying to get myself :)
 
:welcome: TDot.. I have had Crohns probably longer than you have been alive. It takes many test for some it took me 1 year of tests because all them kept coming back negative... biopsies galore with CT scans, small bowel follow thru, and it wasnt til I had an Endoscopy with with a barium follow through (wasnt nice I was awake for it ) but a teaching doctor figured it out. I lost 40 lbs in two months. This disease is like playing hide and seek, there are many here who are still waiting but nothing comes up. Yes, doctors can have a lousy bedside manner and because you are in the Medical field they are thinking "oh great a know it all and hasnt got the PHD yet". Well my daughter is heading for the medical field and in second year of University in Kenesiology and she has been to my appts or asks me what the doctor says and they only tell you what need to know. She was furious and says I will not be that kind of doctor.

I would try the Buscopan (didnt work for me, I use Benytol now) I have Crohns and IBS, and not much you can do for a spastic colon. Immunosuppressed diseases are very hereditary in some families mine is loaded with them. I would think if you want to catch it, having a scope with alot of biopsies taken should help you out. Good luck,and good luck in your studies!!:thumleft:
 
Hi TDot, I have IBS. Exercise, daily benefiber, and the occassional bentyl keeps mine under control for the most part.
Get the scope, if anything it will ease your mind.
 

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