Diet Help and Advice

Crohn's Disease Forum

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Sep 30, 2019
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So my GI has now put me on a low fodmap (so canned peaches and applesauce are out), low carb (due to bloating and gas), low fibre diet and I am like, what am I supposed to eat?????? Any advice would be helpful. I'm thinking a little bit of orange juice, eggs, banana chocolate peanut butter smoothies with protein powder (is a little bit of spinach ok? what about peeled seedless cucumber?) plain fish, chicken, well cooked carrots and green beans??? peeled zucchini noodles and low fodmap tomato sauce. Would mashed turnips or parsnips also be ok? What about well cooked broccoli heads only? I can't do dairy or gluten (have been gluten sensitive since a kid) though I am eating lactose free greek yogurt. @my little penguin I picked up some miralax and took my first dose today. Hoping it helps with my ongoing hard stools. I will need surgery on my stricture but have to get this inflammation fully under control first.
 
Fodmaps is for ibs pain not crohns /UC ???
Miralax takes three days to see an improvement and then Ds must take it daily after that

the crohns exclusive diet I believe has a list of approved foods that might meet your do not eat list .....


Here is the full article

academic.oup.com


Dietary Therapy With the Crohn’s Disease Exclusion Diet is a Successful Strategy for Induction of Remission in Children and Adults Failing Biological Therapy
AbstractBackground. Loss of response [LoR] to biologics in Crohn’s disease [CD] is a significant clinical problem. Dietary therapy as a treatment strategy in t
academic.oup.com

academic.oup.com


Here is the thread woth all the diet details when Ds was on it
New diet Ibd
http://www.researchgate.net/profile/Tsili_Zangen3/publication/263548102_Partial_Enteral_Nutrition_with_a_Crohn's_Disease_Exclusion_Diet_Is_Effective_for_Induction_of_remission_in_Children_and_Young_Adults_with_Crohn's_Disease/links/54b19a200cf28ebe92e18ee6.pdf Anyone hear about this diet yet?
crohnsforum.com


List of dos and donts

They are listed in the appendix
Allowed daily meals : foods may be grilled fried baked boiled or broiled
Unlimited chicken/fish
Fresh unprocessed beef steak ( lean meat such as sirloin ) once a week
White rice
Rice noodles
2 fresh potatoes peeled not frozen and not consumed at same meal
2 eggs
2 tomatoes
2 cucumbers peeled
1 carrot ( shavings )
Fresh spinach ( side portion)
1 apple ( peeled )
2 bananas
1 avacado
Few strawberries
Slice Melon
Allowed condiments for cooking
Olive oil
Canola oil
Salt pepper paprika cinnamon stick
Fresh herbs ( mint leaves oregano coriander Rosemary sage basil thyme)
Fresh onion or garlic or ginger
Fresh carrot shaving for salad rice or soup
True honey
Table sugar (2-3 teaspoons a day for cooking or tea)
Beverages -soda water , water herbal teas
One glass of freshly squeezed Orange juice daily ( not from cartons or bottles)


Not allowed
Dairy products of any kind margarine
Wheat breakfast cereal breads and baked goods of any kind yeast for baking
Gluten free products not listed above soya products potato or corn flour
Processed or smoked meats and fish (sausages luncheon meats salamis fish sticks)
Sauces salad dressing syrups or jams of any kind
Canned products or dried fruits
Packaged snacks (potato chips pretzels popcorn nuts etc)
All soft drinks fruit juices and sweetened beverages alcoholic beverages coffee
Candies chocolates cakes cookies and gum
 
I did a lot of unconventional stuff to see if something might help. Things like homeopathic remedies (which I now realize is just expensive water), dream analysis, a Aervedic diet, acupuncture, Probiotics, prebiotics, gum mastic, licorice, special fiber, glucosamine, L-Glutamine, flax oil, S. Boulardii (another special probiotic).
I likely spent about six months doing this before I gave up. The results weren’t there and I had no money left for the expensive supplements.
All these years, I tried to stay on a more natural approach to healing, but that didn’t help. Changing what I ate, taking supplements, doing meditation, none of it was making a dent in this disease that had hijacked my life.
Foolishly, I ignored recommendations to go on Remicade, one of the “Big Guns” in treating IBD and I continued to suffer.
I had blood tests done by my family doctor; the results were terrible. I was anemic from the bleeding and my inflammatory markers were through the roof. I was referred to another GI specialist, which would be the start of my recovery.
I was put on the steroid Prednisone.
Within DAYS, I was feeling well. I was able to eat, and thanks to the monster appetite it causes, I was putting on weight fast.
 
I don't think low carb diets are generally a good idea for crohn's disease patients.

If you use a low carb diet you need to get your calories from fats, which is quite difficult for ''normal'' people, let alone crohn's disease patients.

Fats absorb very poorly in the intestine, fats requie bile salts to be digested, and people with crohn's disease generally have impaired fat absorption due to ileal involvement.

We have a partical solution to this, namely MCTS, or ''Medium chain triglycerides", extracted from oils. Unlike long-chain, they are easily absorbed. But they are manmade, you do not find natural food sources with a high percentage of MCTs, they are always in combination with long chain triglycerides. But you can find them in elemental nutrition specifically for crohn's disease. Of course EN is 60%-70% carbs, made from maltodextrin, glucose and MCTs.

''normal'' people on low car diets who try to compensate for caloric deficits with fats quickly realise that is not easy. Humans are very good at absorbing and breaking down carbs, and terrible at breaking down fats. So many of those low carb diets now recommend people consume foods with MCTs, but MCTs don't exist in isolation in natural food sources, the few foods that do contain high MCTs, are not foods you want to consume on a daily basis.
 
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There is no single diet that fits every crohns patient. The perplexing thing about CD is that no two patients have the same trigger foods.

There are foods on the JCC "not allowed" diet that do not bother me at all.
 
None of the foods on the JCC "not allowed" diet bother me. I have never been able to identify any particular food that either improves or worsens my Crohn's. For me eating a supposedly "good" Crohn's diet doesn't help and eating a bad diet doesn't hurt.

I recognize that for others diet is sometimes crucial to keeping their symptoms in check, but for me it's always been one big shrug.
 

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