Do you have a job and have Crohns?

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

S

Shryock86

Joined
Aug 7, 2011
Messages
45
Hi. I was just wondering if any of you have chrohns and are able to maintain having a job ? I did it for about a year without a diagnosis and medicine, and I have been out of work for the last 4 years because of it. I am hoping now that I know what my problem is, and am on medicine I can get back to work soon.

To be honest, I don't know how I did it that first year without any kind of treatment. But I am very scared that even if I can get into remission, would I be able to get back to work full time, and what would I do.
 
I haven't worked since I was diagnosed. ): But there are other people on here that have jobs and work fine. Personally, right now I'm trying to get disability b/c I can barely keep my house in order let alone work. I had a full time bakery job when I got diagnosed and had to call in b/c of ER trips, extreme pain, and back pain from the crohns and soon had to just quit b/c I couldn't make the 40+ hours for sure. Hope somone else responds for ya.
 
akanderson said:
I haven't worked since I was diagnosed. ): But there are other people on here that have jobs and work fine. Personally, right now I'm trying to get disability b/c I can barely keep my house in order let alone work. I had a full time bakery job when I got diagnosed and had to call in b/c of ER trips, extreme pain, and back pain from the crohns and soon had to just quit b/c I couldn't make the 40+ hours for sure. Hope somone else responds for ya.
Click to expand...

Thank you for your response. I was a courier (Delivery) and it was tough, when everything started for me I learned where every restroom was in any direction. For me, it was more of getting started in the morning. By the time the afternoon came around I was doing better but still had problems. I do feel that if I was able to somewhat manage with no treatment for 1 year and work, I could do it with treatment. But the thought still scares me.

I don't blame you for the disability thing. It really can be that bad, and it really PISSES me off when people do not think it is.
 
I used to work while in a flare. Was a food service job where I worked the register. There was only one bathroom and that was hard at times (lunch rush sucked) but I never had any accidents. I told my manager that I may have to leave the register suddenly to use the bathroom and she said that was fine and to just call her over every time I had to go. Since then though I've been on disability so I could have the free health coverage that came with it plus I didn't want to work while going to school. I've been in remission for 12 years now and know that I could hold down a job, just about any job I'm physically and mentally capable of. I plan on teaching once a college gives me a chance to gain experience since I've got my masters and am ready to teach (most require 2-6 years of teaching experience). Basically what I'm saying is that once you do reach remission, you wont have any issues holding you back other than the rare doctor visit or dealing with whatever meds you're on (my meds don't cause me any issues though ie Entocort and 6MP). As far as flares go, well, then you basically play it by ear and be honest with your boss about it so they know what's going on. There are A LOT of people on the forum who work (I think most actually) but everyone is different. Just focus on getting well at the moment. :)
 
I am currently taking a year off but have been able to work while having crohns disease. I was lucky enough to have flexible hours so if I had a bad night of pain I could go to work a little later.

I worked in an office. I made sure I sat near the bathroom and let my colleagues know of my condition so they understood the frequent bathroom visits and the faces and body movements I pull to push through the pain!
 
Despite (still) being in an only-just-under-control-flare-up, I'm still managing to hold down my full-time job, running a research lab (cancer research) here in the UK. Saying that, I have spent several days on the ward being pumped full of steroids on more than one occasion! Hey - but it's not a competition, and some people's symptoms are obviously more extreme / problematic than others. I'm very lucky - my Crohn's is mainly about chronic pain - and not the bathroom, which certainly helps with working. Tx.
 
Hi,

I maintain a full time job as a mental health parctitioner (specializing in anxiety and depression) My doc warned me about working a stressful job, but I manage. My clients are sometimes challenging, and I find that I take in alot of their problems and assist in helping them cope and manage. I don't take work home with me, but, I do feel overwhelmed at the end of the day sometimes.
I also have a great support team here at Mental Health! I can debrief when I need to let it out!

I missed quite a bit of work in July when I was sick, but I hope to maintain my job as long as possible!!
 
I've been diagnosed for 18 years. In that time I've finished school with good grades, got a degree, held a full time job before my degree and now I have a really good full time graduate job. Of course I've had set backs when I had to quit my degree and was too ill to work for a few years but I got there in the end. Anything is possible :)
 
I work full time. I even worked full time when I was on the verge of surgery (though sometimes the fevers made that really difficult/uncomfortable). I intentionally chose a job/career where manual labor would not be a part, before I was even diagnosed. I just knew I wouldn't have the energy.
 
I work full time as an patient care tech at a local hospital. I won't say it's always easy, but I try my best. My manager understands and is patient with me (she's been an RN for like 20 years). One of the biggest things I hate is that I'll be right in the middle of helping someone get cleaned up or I'll be taking vital signs and the need for the bathroom raises its ugly head. I deal with it the best I can, and on days that I'm thoroughly exhausted, in pain, weak and nauseated....I still push onwards because I know there are others out there doing the same thing because they must, and because we don't want to let Crohn's get the better of us. Keep fighting it! Take care...
 
I'm now working half-time until November due to the knee recuperation.

I started flaring really bad maybe about 3 years ago which lasted about 9 months, and I lost so much time. My employer tried very hard to terminate me. I didn't have the diagnosis for those 9 months, and every time I'd miss 3-5 days, I could count on coming back to some form of punishment. They took away critical tasks, reassigned me, changed my work schedule while I didn't know what my problem was.

I fought back after I got the diagnosis. I filed an EEO complaint against them based on the Americans With Disabilities act. I also had severe migraines and inflammatory (enteropathic) arthritis. My surgeon (who replaced my knee) actually gave the first diagnosis.

I began to kick @ss and take names after the diagnosis. Finally, during the EEO investigation, I stumbled across this thing called "Reasonable Accommodation (RA)" which is also tied into the ADA act. I changed paths, and pursued RA through the EEO office. My surgeon, my GI, and my neurologist each wrote brilliant letters discribing the extent of my disease and disorders.

When the employer got these letters, they were shocked because the MD's corraborated everything I'd been telling them, and they decided to buy into accommodation. It took me about three months, but I was given Reasonable Accommodation.

The accommodation was to allow me to telework/telecommute from my home on any day that my conditions would flare and I would normally call in sick. My supervisor told me to take my laptop home every night, then I would be prepared. My work laptop is right behind me. I was the first in my office to do this, but now they are offering telecommuting to the whole agency.

Working from home is the perfect solution for Crohn's disease. I'm more productive at home. I'm near the bathroom, I can lay down when I'm fatigued and finish later, and if I have accidents (which I have from time to time) I can shower and change clothes. There was something about the phrase "fecal incontinence" that my GI wrote that really gave my employer the hee-bee gee-bees.

I can't tell you how fortunate I am to have taken the path I did with my employer. Although I busted my tail working to get this break, I'm thankful each day for having this alternative work arrangement.

With an economy like this, you can bet I realize and appreciate this blessing.
 
I am an Executive Director running an IT team at an investment bank in London. I won't pretend it is easy, or that it has not affected my career, but I have battled though my problems and kept going. In the last 13 years, the longest period I have been off work was one week, once due to a bad flare up and another 3 times while recovering from surgery.

They key for me, I think, has been understanding where my limits lie. Generally, if I can stand up long enough to take a shower in the morning I am going to work. Otherwise, I spend the day in bed.
 
Sarah is still a student but since her diagnosis she has finished high school and moved away to university. She studies full time, has a part time job as Welfare Officer at the uni and spends quite a bit of her spare time involved with politics...campaigning, courses, meetings and holding positions with various arms of the party.
Sarah has been fortunate in that she has been in remission for 5 years and to be honest I often wonder if she would be achieving at the level she is if she didn't have Crohns.

Matt is at school and at university. He was diagnosed last December and has had to pull back on his studies this year. I am not sorry he has done this and at present he has the most spare time he has had in years and he is the better for it. He is in remission now and will resume full time study at uni next year, that is February for us.

Dusty. xxx
 
This was one of the hardest decisions to deal with for me. I will start out by saying my husband has a good full time job, which gave me some flexibility. When I was first diagnosed in 2007, I tried to go back to work as physical therapist assistant in an out patient setting. I was exhausted and had pain all over. I went on disability for a while with reduced hours. I finally decided on 6 hours a day instead of 8. I did that for a while and then have reduced my hours to 24 a week. 5 hour days with and hour lunch in between. Fatigue is my biggest issue and when I over do it I get fevers. I am in bed around 10 hours a night. So the answer to your question is it varies and your need to figure out what works for you. Hope all goes well.

Kit
 
Hey, I work full time as an architect and quite a lot of over time. Luckily my boss knows the situation and is sensitive to it but when I spend to much time on site it can become very painful.
My dads an advocate and has had chrons for almost 30 years and despite hospital visits, surgery and four kids still work full time.
Just make sure you find a place that will support you when you don't feel well and really can't work.
That to me makes a big difference at work.
 
For what it's worth, I do think my health would be better if I didn't have to work full time. There would be so much less stress and I'd have enough energy to do more than just go to work and go home. I have a friend with Crohn's who works part time and she says the decrease in stress has made such a difference in her health.
 
I have held a full time job throughout, I think most people with crohns do. I will say, though, the past year has been really tough for me, since I work from a car, driving around town for 10 hours at a time. I have staked out all the decent restrooms in my territory and have still had to come home mid-day when things got bad.

This has led me to seeking a normal retirement, instead of extending it. It would have been more financially beneficial to work a couple more years, but retirement is a window of opportunity that closes for everyone---just at different rates. I still want some life left in mine, so I'll trim my lifestyle to accomodate it.

You would seriously have the best accommodation to seek employment in some type of civil service, as they seem more likely to abide by ADA, if you are in the USA. Private employers can be good, if you have excellent skill sets to bring them when you are well.

Try to avoid the disability trap, if you can...after you win, you will still live on peanuts and have to pay the lawyer for getting it for you. I have seen too many people get sucked into this and suffer more because of it. It ends up being a pretty tough life.
 
No, I struggle to leave the house everyday. I'm 25 and have never been able to hold down a full-time job. I'm applying for disability next week and really hope I get it.
 
I work full time as a nurse. I'm fortunate enough right now to run a clinic, so I can stay at my desk when the pain gets bad. Sometimes I feel like I could stay home forever, but I don't think that would improve my mental health. You have to do what is best for you.
 
I work full time self emPloyed Physio and have had no problems since being in remission. It is a very physical job I don't sit at all during the day which I a tually find helps. I have to keep physically fit though to manage. I am more tired than before and always have a dip after lunch.

Last yr when I was Ill I had to take off 18 weeks in total due to being in & out of hospital, having surgery etc and just generally un-well. I was glad to come back to work but had to come back part time as I was knackered. Being self employed I had no option but to get back ASAP but it def was a struggle at times, and I spend my day listening to other people's aches and pains!!! I'm glad I'm back full pelt now though as I find it easier than looking after the kids...
 
I work full time in a customer services job, although this means I get to sit down all day, I do work long hours and often have to do over time. I'm still in pain every day at the moment and get really tired so it's often a struggle but i'll keep persevering :)

Rachel x
 
I worked as a Landscape gardener before i had a double bowel resection 7 weeks ago i still have chronic D and am dreading going back to work as I have lost a lot of weight and still feeling weak plus lack of toilet facilities is a major worry .My savings are running out so need to get some kind of income other than stautory sick pay which i am finding is not enough to make ends meet .
 
I worked as an assistant manager in a busy retail coffee shop for 5 1/2 years, on my feet for 8 plus hours a day. My boss knew about the Crohn's and was very supportive, but I started flaring so bad that I was sitting down for half of my shifts, had to take reduced hours, then eventually went on short term disability for a few minor operations for my kidneys. After that, I just couldn't work anymore. I literally didn't have the energy to get up early or stand on my feet for more than an hour at a time. My hubby has a good job that can support us if we live carefully, and he works a lot of side jobs too. Leaving work made me feel so much better, the reduction in stress helped out a lot. I was able to go back to school for a semester in the paralegal program, made straight A's and was so proud of myself. Then I flared again the next semester, missed 2 classes because of an infection and then a colonoscopy prep. My professor was unrelenting about the time missed, even for the colonoscopy. I should have planned in advance, like so-and-so did for their wisdom tooth extraction. I was devastated, but I literally couldn't keep up with the work so I had to drop out.

Lots of people with CD can work and go to school, but I really think it just depends on the type of work you do (physically and mentally) and how active your disease is at the time. I could have finished my semester if I had been allowed to do everything from home, but in that program, the professors won't give you a break that they don't give anyone else. Lawyers just don't care.
 
I used to work full time before i got ill but as time went on and the pain kicked in i had to leave work for around 4 months. I'm back in work now, part time. I work 4 hours a day which isn't great for my bank balance but it's really all that i can manage atm. Hoping that once i get some medication that actually works that i'll be able to increase my hours a little (and the money in the bank too!) :D
 
I work full time as a Paramedic as well as the Chief of the department, I am in my office most of the day which makes it great for those quick bathroom trips. I still work the streets and my staff knows of my condition and now when I say I need a bathroom break they get me to a bathroom. Funny thing is when I'm in the back with a patient I will have the pain but the urgency for the bathroom is not there (thank goodness) I can't explain it but I have really never had to interrupt care of my patients for a run to the bathroom. I have missed a few days from work due to the pain, but like most I sufferer through it and do my job. I am not sure I could handle life without my job. I can honestly say I love going to work and spend 60 to 70 hours a week doing it.
 
I work a full time job in sales. I LOVE to work!! Without a job to go to, I think my health would suffer much more! I've had symtoms of Crohns since 1997. Never stopped me. I travelled the world, literally all over the world, and worked full time. Yes, while going to the loo sometimes 25 times a day. Funny thing is, when I relaxed....thats when the trouble stuck with needing the loo.

Even with a perforated bowel, I was trying to go to work when they took me to hospital. Dumb...yeah.

So I guess I am learning my limitations!
 
I've been working through incredibly painful and difficult flares for decades now, although I do tend to use FMLA if it's really bad. I have a fairly severe case and just suck it up and deal because my family needs me to work.

I try not to be judgmental about people on disability with Crohn's because I know that there is a wide spectrum of severity, but I can't help but wonder if some of them aren't being just a bit of a poof-tah about things. :p
 
I was working full time as a school admin assistant when my crohn's flared up. I carried on working full time for about 3 yrs but it was a struggle and I asked to reduce my hours last year.

They were very good about it and I now work 20 hours a week term only + 5 days during the school holidays.

I've always tried my hardest not to let this disease run my life, I still travel, shop, work etc, I just need a little extra help sometimes. Fortunately, I have a very supportive family, which makes a huge difference.
 
I was diagnosed in 2009, I was and still am, working full time as a secretary. The year I was diagnosed I was also accepted at the open university to study European civilisation. Less than four months after my operation I was back at work and starting university. In 2010 I also started an in home gingerbread house business for the holidays. Last year I baked 30 houses, this year my goal is 60.
I have the most supporting boss ever. He never denied me time off for blood works and doctors appts. He supported me during my hospitalization and during my second flare last year. I work 40+ hours a week but my job is not physical its mostly my brain which gets tired.

I have a very supportive family in terms of taking care of my kids and helping around the house (Dh and my parents). Still I dont even think of Crohns when I bake or when I am writting an essay. On the other hand I am in remission so I dont suffer from severe symptoms.
 
i have always worked full time,i needed to. sometimes its been a bloody nightmare, especially before the surgery i had 11 years ago. pain so bad at times, but i got through it somehow. these days im lucky to have occasional bad days which i manage well with diet and positive thinking!! i know some people have a terrible time with this disease, but being active physically and emotionally i believe helps. if it interferes so much that you cannot do anything your doctor needs to find the solution so that you can get your life back.
 
I work full-time and have only missed 2 days this entire flare (going on 10 months now)-one because I was in the ER all night and another because I had a scope. I have plenty of PTO, so it's not a concern. I also have a very understanding team at work that knows I have a lot of doctor's appointments. I will sit at my desk with my heating pad and take half a pain pill so I can function.
 
I am a full time (40+ hours a week) accountant, part owner of a small business, and soon to be part-time student. It is not easy and some days, I leave the office and hit my couch. I am in remission. When I am flaring, I still work but I know my productivity is less than normal. You will learn your body.
 
I have only worked 2 weeks since the beginning of July. This is mostly due to the fact that I am undiagnosed and until 3 weeks ago I was not given any meds.
 
I've worked throughout having Crohn's, but I haven't really had a choice. I was in law school and working fulltime and didn't have the option to quit either. It was really hard in the beginning when I was bearing the full brunt of symptoms, but... I began my treatments, and I slowly got my health back, and life is much easier. I love working and I'm happy that with treatment I'm able to have a fairly normal life. And my career and grades didn't have to suffer (much).

I agree with (whoever said it) that my health would be better if I wasn't working. I know that my busy schedule and stress has made my condition worse and recovery longer. But, with treatment, I think there is a lot of hope that you can return to the work force:) You will be surprised at how dramatic the difference can be in how you feel once you're getting the proper care. The way I feel today as compared to how I felt a year ago is like night and day. Honesetly, I haven't felt this good in over a decade.

Good luck and I hope you get to make a comeback soon!:)


On bad days, I allow myself to come into work late, treat myself to some hot chocolate, and turn on my country hymns channel on Pandora.. it helps me relax and not focus on how miserable I am at work:)
 
Terriernut, you're my hero:) I also love working, and I work hard to make sure I run my life instead of my disease. But we always need to know when to chill too! I made a lot of mistakes putting work before my health in the past, and I have definitely paid the price.
 
I'll agree that my health would be FAR better if I wasn't working. I'm convinced that my stress level is the single driving force of my Crohn's severity and probably 67% of the stress in my life is my job. It's even more stressful than dealing with my daughter's ups and downs with her Crohn's, and that's saying a LOT. I work for passive aggressive sociopaths.
 
I have UC and work full time for an amazing, understanding company that allows me to take time off/pays me for doc appointments, etc, and it's great. My problem was with finishing my degree. It took me an extra year to graduate, but I flared up with every single exam period every semester (as well as during other stressful times). I think the main thing is to get your life and disease under control first, and concentrate on a low-stress environment. Sometimes it's worth it to accept lower salary and less of what you want to keep yourself healthy!

Good luck!
 
Do you have a job and have Crohn's

I am 27, and have Crohn's as well as Endometriosis. I was diagnosed 7 years ago and since started using the the self-injecting meds of Humira for about 2 y now... recently suffering from severe depression since I have split from my 8year Relationship. Its been hell the last few months and I've been in hospital a few times re my depression, however the stress i've been putting myself under has had a massive effect on my Crohn's. My tiredeness is severe and my job / work has been suffering severely over this. I've had to talk to my line manager about this, however have not had any support / understanding whatsoever in needing to take time off or not being able to funtion 110% as I normally would. I'm constantly running off to the bathroom and the pain has me in bits but feel like i need to put up a brave face in fear of losing my job. This puts me under a tremendous amount of stress even more so. I've hardly felt like im coping the last couple of weeks now that i'm slowly finding my feet in my personal life...everytime something goes rong she'd role her eyes at me as if to say ''argh you're not still feeling unwell are you?'' I've played open cards and told them my most intimate details of my disease and yet I wish I hadn't. My opinion would be that you have your understanding employers and then the few that just don't care. Frankly I'm just happy to be working and would love to keep working but since we're on a leave freez period I can't even take some time-out and take some time to myself. Sorry im blabbing on a bit but I don't believe that people really understand what we go through unless we end up in Hospital and then realise for a min the seriousness... I am angry always having to please-and-explain why things happen thats not in my control. :angry-banghead:
 
Noddy, that sucks:( I'm really sorry your employer doesn't seem to understand how sick you are. I really hope that things get better for you soon and that you find an employer who will treat you with the respect you deserve.
 
I work as an attorney for a large company. I was diagnosed while in college, and managed to finish school and get a job. After my first surgery, I was able to complete law school and work for years. I am fortunate that I have disability insurance through my job, and used it when I had my second surgery and am currently on disability due to this flare. I've worked during flares before but this is a particularly bad flare. I am also very fortunate to have a wonderful husband who does more than his share around the house when I am sick.
 
I work full time also. I love the company I work for they are very understanding (helps when the OWNER of the company has Crohns himself), so I get plenty of time off (without pay however).

What I do however; is way to stressful and I'm planning on quitting in 2012 and going back to school full time and getting disability. I've worked for over 20 years now and those benefits are mine, that I paid into. I plan on going to get them, because now I need them.
 
I am currently working part time and going to college full time. I was working full time (still same job)since I was diagnosed. The previous manager was a major b**** and if I called in sick she would always request a doctors note but since the new one came in, hes more understanding and flexible (dr notes no longer required) However I do feel pretty bad when I have to call in sick yet again. I need to win the lottery : /
 
I work with my Aunt in her home daycare so if I need a day off or am sick I can usually have it off. Of course it goes the other way that I'm working around kids all of the time so I am sick more but it really does help to have an employer that you are going to see at the next family function....
 
I work (for how long unknown)as a firefighter. The right diet, exercise, and juicing two -three days a week is a necessity. Flares do cause me to stay home. My chief as well as battalion officers are very accommodating, however sick days are not unending therefore I have to be aware of have often I call off. I could not imagine staying at home all the time but there are times I cant gey out of bed. I am sure being a full time stay at home dad would help but would probably lead to an early death due to my wife and kids killing me for driving them nuts. Wish you the best.
 
i dont work, although i am looking, it may think it rules my life, but as long as theres a toilet i will work....may have to run away sometimes =) lol
 
I've been incredibly fortunate to be able to hold a full time job since my symptoms started 2 years ago. I've even managed to get two promotions by accepting other positions since then though it's been very difficult, the first 6 months of this year especially. I imagine one day I might need to do FMLA or Reasonable Accommodation like others have mentioned but so far I've managed to get by with just taking the sick or vacation days I've accrued.
 
I work as a Medical Laboratory Technologist in Anatomic Pathology - the place where your biopsies are sent to be prepared for the pathologists to read.

I work full time and its all shift work - early mornings starting as early as 4 am. I find the hours very taxing now but I am still trying to get over being Iron deficient. I do have quite a bit of fatigue and lots of pain.

I have been on medical leave twice this year and use lots of sick time. I have hardly worked a full week since last november. I am still trying to get into remission. Work is getting frustratd with my sick time, but as I must take tramacet when the pain gets bad - I can't work as I am impaired and the work policy clearly states not to come to work under the influence of perscription or non-perscription drugs.

I'd love to stay home until I get into remission - but there are bills to pay. Even though I have excellent benefits - its still less than my wage so its tight money wise.
 
Hi all, new to the forum. Have had Crohn's for over 20 years, recently going through a flare-up.

I work as a floor manager in a casino, but would not be able to do it for most companies. I am VERY lucky that I have an employer who is sympathetic to my current flare-up and understands that I might need to run to the bathroom at a moment's notice or just sit down for a couple of minutes, even though I am generally not supposed to do either. I cannot emphasize enough that I am VERY thankful to work where I do.

Back in the day when I was a casino dealer, there was one point where I had to give up my job because I could not tolerate the long periods of standing, nor could they accommodate me having to make frequent trips to the bathroom, which is understandable. I got back to work as soon as I could, and I'd advise others to do the same. Not just for the money, but staying active keeps your mind off of your problem more than if you are sitting around waiting for the next bowel movement or stomach pain. Easier said than done, but I am definitely in favor of pushing yourself to try to work rather than waiting until you are 100% normal, which unfortunately may never happen.
 
I work full time in an IT company. My job is kind of stressing but on the bright side I can be sit all day in a comfortable chair.
 
I work part-time, and go to school full-time, taking 15 hours. School seems to be enough for me. I am really stressed and tired ALL the time! I've tried staying at home with my daughter, but it's not for me.
 
Everybody is different and it's entirely possible you can work with Crohn's.

I work part time during school 3 days a week and school 2 and then full time at work on breaks (summer, reading break, Christmas...)
 
I've held multiple types of jobs over the years - sometimes multiple jobs at once!

For 8 years I was an Emergency Services Dispatcher, then back in 2002 was hired on at my current job in the Fire Service. Thankfully my symptoms have been pretty much under control since being on Remicade - and I don't say much to my supervisor about my disease...although I DO have a reasonable accomodation request in with work whih has been dragging on for over a YEAR now.....all because of paperwork.....ugh - which reminds me I need to send an email!
 
JMC said:
I am an Executive Director running an IT team at an investment bank in London. I won't pretend it is easy, or that it has not affected my career, but I have battled though my problems and kept going. In the last 13 years, the longest period I have been off work was one week, once due to a bad flare up and another 3 times while recovering from surgery.

They key for me, I think, has been understanding where my limits lie. Generally, if I can stand up long enough to take a shower in the morning I am going to work. Otherwise, I spend the day in bed.
Click to expand...


I am all about my career.... did you tell others you worked with??? As I say, my career is my life right now... I don't want them to not give me the next big thing or challenge because they are afraid my health will get in the way of my performance or they "dont' want to stress me out." did you tell... if so, who? Just your manager... co-workers...?
 
I work full time, but it is more hours than full time. I need something that pays at lease as good as this, but I don't have as many hours. Ank I want to do something I like. And i want to work with people that ar smart and funny. And, I want to have some fun on my job. I thik THIS is never gonna happen! LOL!! Just keeping my 60 hours a week and my messy house is all i can doright now
 
I used to work full time 6 years ago and lost my job from taking too much time off work sick from immune system being suppressed, (Remicade for 10 years) and catching every virus that came around. Been on disability since and was working from home as a virtual sales representative, until I lost the my job, because Remicade stopped working and had to call out too much due to the flares. Now, while on disability, I go to college online, earning a business degree and planning to start a business, where no one can fire me because of my illness, when I graduate.

To me the pressure of being somewhere every day and not knowing if I'm going to make it there and lose that job is more stressful than living on the peanuts that I live on. I'd rather have the peace of knowing I'm not going to lose another job due to this stupid disease. I believe the sacrifices I'm making now will pay off in my future.
 
I'm not working but I am nearly finished school. I still manage to stay on top of things, but recently took 2 weeks off because of a bad flare up. Feeling better now and looking for a first job. :biggrin:
 

Similar threads

M
Active flare with Scleritis
Replies
1
Views
748
my little penguin
my little penguin
K
Possible Crohn’s disease
Replies
10
Views
1K
musicalwiz
M
Anna's Bandit
Hospital
Replies
5
Views
667
Crohn2357
Crohn2357
F
Advice needed 😊
Replies
3
Views
545
thike1966
thike1966
L
Isolated Perianal Crohn’s - new here
Replies
1
Views
707
MrWheat
M

Latest posts

Back
Top