Dropped 5mg of pred today and i feel bad

[MissD]

dropped 5mg of pred today and i feel bad

Its like the life has been sucked out of me. Im soooooooooo tired. Is that normal? Ive been on 40mg since I was diagnosed 12 days ago. Today was my first 5mg drop. Im also on 3000mg of sulfasalazine.

Ps...I also had a cigarette today, which was just stupid I know, however I did manage to last 9 days without one. Just because I had one, doesnt mean Im taking it back up again, just means I was weak once. Right?

 

[rygon]

Every time iv dropped 5mg ive felt really tired, and also get a constant headache. Normally lasts for 3-4days. The tiredness lasts a bit longer but after does steady get better.

With cigarettes, I find they play my crohns up too much to even contemplate having another puff. I guess each person is different. If you want to stop then go for it, you may find you will lapse everyso often, but who doesnt

 

[Astra]

Hiya Miss D

Maybe you've tapered too early?
When I was on 40mg I stayed on it for 2 months then dropped by 5mg for a month at 35mg and so on.
It took nearly a year to do this but it healed me nicely.
Maybe have a word with the doc and stay on 40mg for a while longer?
good luck
xxx

 

[Steve]

D,
If that is how you feel, you should probably stay on the pred a little longer. Whenever I end up taking pred, I usually stay on 40mg with 4 week, enough time to build my strength back up and then start tapering off. After feeling that crappy prior to that, I deserve pred for some artificial energy. Its great.

As for smoking, gosh, do I know how you feel!! Don't beat yourself up about it. Take it a day at a time and don't kill yourself over it. You are going through enough right now, so make decisions that are going to keep you sane. It worked for me. Just my 2 cents.
Good luck

 

[Ari]

Bum, You've had one. Now you'll get more cravings...

 

[ruthyp]

Hi, I had exactly the same, every time i came down 5mg i would end up in hospital!! so the doc gave me 1mg tablets to cut down by and once i felt ok on 19mg i would then cut down to 18mg and so on, now im on 3mg and feel great. listen to your body, if its saying that dose isnt working then its right, dont ignore the symptoms like i did xxx

 

[tiloah]

When I went from 30 to 25 I started getting fevers and feeling crappy. My doc put me back up to 30 and I feel better. I have an abscess though and it's possible we just needed to give the antibiotics more time to do their thing. When my doc was reviewing my case yesterday he commented on how that's not a big difference. A 5 mg step shouldn't be so noticeable, but I think it definitely can be. I try tapering again by 5 mg this weekend which I am not looking forward to, but hopefully it goes fine.

Maybe call your doc and ask to hold the taper off for a bit. I don't think 12 days is so long to be on 40 mg.