Endometriosis or IC with Crohn's?

[whysoserious]

Does anyone else also have endo or interstitial cystitis? I just found out I have endo last week after having a laparoscopy. My gastro was thinking that the reason for my D and bleeding was due to endo on my bowels, because I would only flare on my period. I was hoping that was going to be it as well; I was thinking I would get it removed and voila, all my problems would be gone. I did have endo on my bowels, but only a small amount. A few days after my laparoscopy, I started having really bloody D. My OBGYN said my surgery should not have caused it, and I didn't have enough endo on my bowels to create the problems I have, so now it's back to square one in regards to what's wrong with me.

I also found out have interstitial cystitis, but fortunately just a mild case. I consider myself very lucky in that aspect; some people with IC have to pee up to 70 times a day! I have to do about nine treatments of steriods shot into my bladder, and then I should go into remission.

Does anyone else have either of these problems? Or am I just a freak?

 

[Astra]

Hiya
if you're a freak, then so am I!!!!
I had a hysterectomy, full of endos, all glued to my bowels and bladder, a right car crash in there, best thing I've ever done, my Crohns subsided immediately and I'd been well for years, til back in Jan when I was blocked, but if you need any more info, PM me, cos I could go on for days about this
xxxx

 

[Absentminded]

Hi,

I have endometriosis as well as Crohn's.
I was diagnosed with endo. quite a few years before the crohn's so not sure if they're linked personally.
I get very bad period pains etc, but don't seem to get flare ups at the same time.

 

[Aura]

Hi you are not a freak. I have chron's, endo, mild IC plus problems on filling and voiding, PCOS, diabetes, LERD and asthma. My urologist said I'm a good gusher, I fainted in one of his tests, totally embarrassing. He want to implant a tens type of machine to regulate my bladder control. But I turned him down, preferring muscle control to machine control for a while longer. This is a good place to chat. It's good to find other multiple chronics out there.

 

[poolside]

I was chuck full of endo when I had my hysterectomy. The doc said it looked like someone poured a bag of cement into my abdomen. He had to "scrub" my bowels down. I have never felt better now after having the lady parts removed. The "monthly" really made my crohn's a lot worse. All the best to you!

 

[Dras]

I've found that my stomach gets upset when my period starts also and i get really bad period pains too. But seeing as im still young ive never thought of going to a gyno.

 

[Astra]

Hey Dras

all ladies should have a gynae! and a smear test, especially if you're sexually active!
check out my thread 'Endometriosis & Crohn's'
xxx

 

[EvelynSchremp]

I also have all 3. It is very hard and very dicouraging sometime . I sometimes get depressed from the stuff I miss cause I'm either to sick, or hurting to bad

 

[2thFairy]

Endo and UC, but no IC. I had all reproductive organs removed for the endo at age 22 and still no remnants to haunt me, thank goodness!