Flare up of Crohns

[Babypink]

I'm not exactly sure what a flare up is.

Recently I've felt unwell, tired a lot, nausea and been to the toilet to pass the mucus and blood which I've been doing since I had my stoma last June. I always passed in the morning no problem and went to work then home. Last few weeks I've had dull aches then rushed to the toilet as soon as I passed my mucus and blood the pain would disappear like it never happened. Then I was fine

Now it's happening more but not as severe, I feel nausea too. I'm recently on HRT as I was having difficulty coping with that too (insomnia, flushes, memory loss, lethargy, aching bones, itching, etc etc). I feel weak tonight, very upset and can't stop crying. I've got shakes (usually do when I don't want to be sick). I do have Mezalzine enemas to take which I haven't because I was given HRT and wasn't sure I should take them, so I'm a bit of a mess at the moment. I even had an accident at work messing myself it was awful

Odd thing is my stoma works fine never had a problem with it. I only ended up with it as a surgeon pierced a hole in my bowel during an endoscopy. I'm 47 and was as fit as a flea up to Dec 2012 then it all went wrong

I'm i experiencing flares?

 

[SarahBear]

You are flaring. You've been flaring all along, actually, if you've had blood in your stool.

When in remission, your IBD is inactive. Tests done while in remission should show no active disease. You will feel normal. Ideally, you'll have no symptoms at all. However, it is common to have mild symptoms but they should not be severe enough to interfere with your life on a regular basis. Essentially, you'll be able to live normally with no symptoms at all, or occasional mild symptoms.

A flare up is when the disease becomes active again. You have symptoms again. They may be the same symptoms and the same severity as past flares or they may be different. Any time you have blood in your stool, you are flaring (assuming there is not have another cause such as hemorrhoids or fissures caused by something other than IBD).

Personally, I think you should go to the emergency room. Some of your symptoms could point to significant blood loss - such as weakness, lethargy, memory loss, shakes, flushing, etc. You really need to be checked out as soon as possible.

:hug:

 

[Babypink]

I spoke to my consultant and he said to use the Mesalazine Enema meds I was given, and I used one on Monday and boy was it uncomfortable. However the good news is within 24hrs I had stopped passing blood and it's lasted all week. As usual there is always a but with me.

I'm struggling with a foggy like head, intense deep headaches and difficulty looking at thing and I find it unnerving. Then after a few hours it's like a mist has cleared and I feel normal but then it all comes back again. I'm also having difficulty sleeping too

 

[pink&green]

Sorry your having a hard time Babypink sending :ghug: I agree with Sarah you may need to go to the ER or visit your Dr. office.

 

[Babypink]

I've ordered some B12 supplements and liquid Iron supplements too, get some water and Gatorade tomorrow see if that helps with the headaches and fuzzy head

 

[Babypink]

Well its Sunday evening and I am laid up on my bed. Still having issues with my sinus, aching round my eye, ears feel blocked, slight nausea. The good news is the enema I took seems to have stopped my blood loss. I only used the one.

I'm abstaining from the B12 tablets and going to ask my consultant to check my blood levels. I'm honestly trying to remember when this sinus/headache thing started. If it wasn't for that I could cope I think. I've broken down a few times recently, absolutely sobbed. I'm on HRT since December 2013 as I was seriously overwhelmed with the menopause. I was ill with Infliximab last march with horrendous vertigo. I had a stoma in June as you guys know through a surgeon bursting my intestines, nothing to do with my Crohns would you believe

I read the spoons story and it made me cry. I wake up on a morning and wait for that feeling when I need to go to the toilet which is usually about a minute after waking, slight dull ache, I get up and go. The mucus I pass is ok nothing different, the blood has stopped. I may get an extra tummy ache, but I've got used to that, sometimes it hurts and I stay on the toilet until it subsides. I then go back to my bedroom and take it easy getting ready for the day ahead. I know I have to pass more mucus so that way I set my alarm for 5am in preparation to leave home for 730am and hope I've passed everything. It's then a half hour car drive to work and I hope there are no traffic problems. I have a bag or spare ilieostomy bags, some wipes, some sprays and a change of clothes. I get to work and and sort myself out. Go to the toilet, make a cup of tea, my other spare bag and spare clothes are in a cupboard in my office. I cope ok, but then my sinus/headache starts I struggle to concentrate, I get up and walk about try to do something before I go into panic mode. If nothing sort out, I go to the bathroom and sob. I pull myself together, go back to my desk and try to carry on. I watch people just go by doing there daily stuff, I've no idea if they have an illness, or just are carefree or problems in their life. But I do know I feel that I've been robbed, of my being, of being who I was, just a living thing. Someone who exists. My day goes by I sit with a colleague and I feel a trickle on my tummy, I excuse myself and before I get to the top of the stairs, my bag has leaked. It's through the front of my jeans, I wrap my long cardigan around me. I bought it special to hide the bulge of my bag. I grab my spare emergency bag and head to the toilet, someone is in there. I consider the gents but wait holding onto my bag, pushing it back to stop the contents leaking further. Eventually I get into the toilet, thrown my things on the floor and start to change my bag, my jeans are stained, my underwear needs changing I start to talk to myself to laugh at myself. I know I cN change my underwear, but not my jeans as I only have got spare leggings, people will know I've changed and then they will ask why, and then I don't know what to say. I've basically crapped myself and could not stop it. I decide to keep the jeans on, I wipe the poo from the wasteband and pocket. I go back to work. The end of the day arrives, I hope there are no traffic issues, I get so far home and my boss calls. I pull over to talk, then suddenly I have a stomach cramp. I keep talking trying to ignore it, I then end the conversation by lying to say my battery is low. I start to move again and then I have a bowel movement and I loose a lot of mucus, i grab for a plastic bag to sit on so I don't mess the car seat, it's too late.its everywhere, I cry all the way home. I park up, get out of the car, I'm a mess, I run up stairs to the bathroom, take all my clothing off and jump in the bath. I sob. That was a bad day.

Today I was ok, by afternoon my sinus was playing up, my headache returned, I laid on my bed to rest. My boyfriend has been so supportive but I feel just lost, as if I'm stood alone, in a vast expanse of space that can be seen as far as the eye can see and there is nothing, no one who can hear me, or understand. I'm relatively a strong person, but this is so debilitating its testing me to the core, I would love a normal day