Gaining Weight With Crohns Nearly Impossible

Crohn's Disease Forum

Help Support Crohn's Disease Forum:

Joined
Mar 13, 2014
Messages
10
Hi! I am 17 years old, have Crohn's disease, and barely weigh 80 pounds. It seems like no matter what I do, I cannot gain weight. It seems like no matter what I eat it bothers my stomach and none of it actually gets absorbed. I have been drinking Carnation instant breakfast several times a day, and it seems to be helping a bit, but I think it bothers my stomach. Any ideas on how to gain weight? HELP!
 
Hi and welcome. I've been in that place many times. Are you currently taking meds? I ate what I could when I could. Smoothies, ensure, carnation instant breakfast. It's important to get control of the flare. Once things settle gaining is easier. Prednisone helped with inflammation and weight gain.
 
I'm pretty much always in a flare, only been in remission once when I was on Remicade. It quit working though. I am currently on Humira without much improvement. Hopefully they will come out with something new soon!
 
I feel for you. I had the same problem and still do. You have to figure out what gives you you least tummy troubles and get your calories from the things that don't upset you. In basis I gain weight when on a good medicine. Without medicine I also can't gain.
 
I'm stuck with the same problem. I think the first thing you should do is figure out exactly why you're losing (or failing to gain) weight. Are you not taking in enough calories, or are you not absorbing what you eat properly - or both.

If you can, work out how many calories you consume on an average day - record what you eat and how many calories it provides; often the nutritional information is printed on food packaging, and where it's not you can find the information easily online. Take care to work out the amount of each food you consume accurately in order to get a good estimate of your calories intake. Once you've done this for several days work out your average calorie consumption. Then there are calculators online where you enter your height, weight, the amount of exercise you take, etc. and it will tell you how many calories you need per day to sustain your weight.

From the results of this, you will be able to tell whether you are losing weight because you are not eating enough. If the results tell you that you are eating enough and should not be losing weight, then you know you have a problem with absorption.

If it's an absorption problem, you'll need medical input to try to get your disease under control.

If it's not an absorption problem, you need to add in more calories. You can try to just eat more snacks and larger portions, but if you can't, see if you can substitute what you eat for higher-calorie options; for example, use full-fat milk instead of skimmed, butter rather than low-fat spread, avocados rather than other vegetables. Liquid calories can be very helpful as they go down easily; in addition to the Carnation, drink fruit juice rather than water, energy drinks rather than low-calorie drinks, etc..

Eating little and often helps too, so snack more rather than eating bigger meals.

Also, eat food that you like. Don't worry about eating what you feel you should in order to be healthy. It's far easier if you eat something you want to eat. Don't take this to extremes, obviously - to some extent you have to have a balanced diet - but when gaining weight is your priority, "junk" food definitely has its place. Fruit and veg can fill you up and be difficult to digest due to their fibre content, so rather than filling up on them in order to get your vitamins, try a vitamin pill or supplements like Ensure to make sure you are getting all that you need without needing to consume a lot of fruit and veg.

But then, I do all these things and I'm still struggling to gain! So if you can't add in more calories - e.g. due to lack of appetite or stomach pain, nausea, whatever, again, you may need a doctor's help to try to get the symptoms under control.
 
Last edited:
Here's an easy way to add calories without extra cooking, cleaning etc. Figure out some kind of crappy high calorie snack you can tolerate. Pop tarts, honey buns, etc. Eat one of those after every meal, and drink a glass of milk with it. It won't fill you up and it's a huge increase in calories each day.
 
Thanks for all the help! My problem is both lack of appetite and poor absorption. My doctor pretty much tells me there isn't anything he can do about it until we can get my disease under control...which he also says he can't do anything else to help because I've tried almost everything with no luck. I am going to try a gluten free diet soon to see if I possibly have a gluten intolerance. Wish me luck!
 
Here's an easy way to add calories without extra cooking, cleaning etc. Figure out some kind of crappy high calorie snack you can tolerate. Pop tarts, honey buns, etc. Eat one of those after every meal, and drink a glass of milk with it. It won't fill you up and it's a huge increase in calories each day.

That would fill me up. It would fill me up even without having a meal before-hand.

If gaining weight was that simple, I wouldn't be so thin.
 
Thanks for all the help! My problem is both lack of appetite and poor absorption. My doctor pretty much tells me there isn't anything he can do about it until we can get my disease under control...which he also says he can't do anything else to help because I've tried almost everything with no luck. I am going to try a gluten free diet soon to see if I possibly have a gluten intolerance. Wish me luck!

I would recommend not trying a gluten-free diet at this point. If you're looking to gain weight, the last thing you need to do is place heavy restrictions on what you can eat. Really bad idea! If you have reasons to suspect gluten is a problem (what is your reason for suspecting this, btw?), ask your doctor about being tested for coeliac disease (for the test to be accurate, you have to have been eating gluten in the period leading up to the test).
 
I would recommend not trying a gluten-free diet at this point. If you're looking to gain weight, the last thing you need to do is place heavy restrictions on what you can eat. Really bad idea! If you have reasons to suspect gluten is a problem (what is your reason for suspecting this, btw?), ask your doctor about being tested for coeliac disease (for the test to be accurate, you have to have been eating gluten in the period leading up to the test).

In all fairness, you can have a sensitivity to gluten and test negative for coeliac. Gluten is in just about everything. Especially all the junk food that was recommended. If your body has a sensitivity to gluten, it can lead to issues with malabsorption. By cutting out gluten for a month, the IP will know for sure whether or not they have a gluten sensitivity.
 
In all fairness, you can have a sensitivity to gluten and test negative for coeliac. Gluten is in just about everything. Especially all the junk food that was recommended. If your body has a sensitivity to gluten, it can lead to issues with malabsorption. By cutting out gluten for a month, the IP will know for sure whether or not they have a gluten sensitivity.

But that's a month of a very restricted diet, and may end up giving misleading results as there are many other factors - in particular, the necessary dietary change could cause or relieve symptoms, but it may be the foods consumed in place of gluten that cause the change, rather than the removal of gluten itself.

Not something to try if weight gain is the priority without very good reason (e.g. a positive coeliac test, or if there is a clear and obvious correlation between gluten and symptoms - e.g. if symptoms always occur directly after consuming gluten and not at any other time).

Surely there are other alternatives to pursue at this point - e.g. seeing a different doctor, stool test for fat malabsorption, adding in supplements, trying different medications to control the disease...

gutbuster - how was your malabsorption problem diagnosed?

Have you tried domperidone to help with appetite?
 
UnXmas- my doc told me I was probably not absorbing nutrients well after my colonoscopy(my intestines are very swollen and covered in sores) Plus, even when I do eat a good amount and take additional supplements, I still cannot gain weight. And no, I have never tried domperidone.

I would love to try a new doctor, but the one I am seeing now is the only one around me who will see anyone under 18. In a few months I might change docs though. My current doctor even recommended changing to another doctor when I can because he doesn't feel comfortable trying any other meds on me.


I am going on a gluten free diet because I have had many people tell me it would be beneficial to me. I have not been tested for celiac, but am going to get tested as soon as I can.
 
UnXmas- my doc told me I was probably not absorbing nutrients well after my colonoscopy(my intestines are very swollen and covered in sores) Plus, even when I do eat a good amount and take additional supplements, I still cannot gain weight. And no, I have never tried domperidone.

I would love to try a new doctor, but the one I am seeing now is the only one around me who will see anyone under 18. In a few months I might change docs though. My current doctor even recommended changing to another doctor when I can because he doesn't feel comfortable trying any other meds on me.


I am going on a gluten free diet because I have had many people tell me it would be beneficial to me. I have not been tested for celiac, but am going to get tested as soon as I can.

Yes, I thought as I was posting that advising to just see a new doctor was probably easier said than done.

I was advised to try gluten-free too (and dairy-free and various other diets) but it did me no good at all. If you must try it, make sure your calorie intake is not going to suffer beforehand. That doesn't just mean making sure you have gluten-free foods around, but making sure you can actually consume enough of them - you may find that, with your appetite problems, gluten-free foods are harder to get down than what you're eating now. Or you may find that gluten-free foods worsen your symptoms. For example, eating more meat and veg might seem like a good alternative to eating gluten-containing cereals, but if meat doesn't suit your appetite and veg gives you digestive problems due to fibre, you may end up on a gluten-free diet that really limits your ability to eat enough. I guess a lot depends on what your current diet is like and what your version of a gluten-free diet will look like.

Domperidone is generally a pretty safe medication. It did help me for a little while but then it seemed to stop working for me. Your doctor may feel ok about prescribing it since as far as I know it doesn't carry many big risks.

I'm no expert on this, so perhaps someone can correct me if I'm wrong, but the colon only absorbs water and salt, while the main extraction of nutrients takes place in the small intestine. So I wouldn't have thought a colonoscopy could tell you as much about your ability to absorb as tests which look at the small intestine? Again, I could be wrong on that though.
 
That would fill me up. It would fill me up even without having a meal before-hand.

If gaining weight was that simple, I wouldn't be so thin.


You need to get used to eating more. Gaining weight is simple. (Not easy)
 
UnXmas-you are correct about the small intestine I think. However a colonoscopy can go as far as the ileum(the lowest part of the small intestine) and I did have inflammation and sores there too.

I just started the GF diet today and I have found a lot of fattening things I can still eat(peanut butter, carnation instant breakfasts, potato chips, chocolate...) I even found some really good GF chocolate chip cookies. I don't know if it will do me any good, but it's worth a try!
 
You need to get used to eating more. Gaining weight is simple. (Not easy)

I can't get used to eating more. Do you think I haven't tried?!! I think you have no concept of the type of lack of appetite some of us experience - your comments are pretty ignorant to be honest. The more I eat, the worse my digestive system gets, no matter how gradually I increase or how long I keep trying for.
 
Last edited:
I have a similar issue. I am 26, and am 110lbs. Well, normally I am, but I lost 5 since yesterday morning due to some random GI bug that my crohn-y intestines didn't like very much.

I spoke to a dietitian over the phone, and she recommended Absorb Plus instead of carnation instant breakfast, ensure or boost as they are all not as "high absorption" as you may think, because of how the vitamins, minerals and proteins are gathered/made in a lab. She recommended Absorb Plus which is designed for those with weakened intestines. I haven't tried it yet, but it I am going to order some and give it a shot.

This dietitian also has Crohns herself.

http://www.absorbplus.com/index.php
 
The thing with prednisone is that it's catabolic. So while it gives you an appetite, it breaks down muscle and adds only water weight. I had this problem for 8 years. For me it was a combination of flare ups, and not eating enough calories even though I thought I was. Now I literally eat every 2 hours and I make sure every meal has protein and carbs. Or failing that a protein shake.

You are 17 so you would also have to contend with a very fast metabolism.
 
I would love to b able to lose weight. I will give u 20 lbs. Lol

I have been drinking my food lately. My mom bought a vitamix and I throw in some fruits veges and a little almond milk or juice a turn it in to a wonderfully tasting drink my gut doesnt know what hit it!!!! :D
 
The thing with prednisone is that it's catabolic. So while it gives you an appetite, it breaks down muscle and adds only water weight. I had this problem for 8 years. For me it was a combination of flare ups, and not eating enough calories even though I thought I was. Now I literally eat every 2 hours and I make sure every meal has protein and carbs. Or failing that a protein shake.

You are 17 so you would also have to contend with a very fast metabolism.

You can still build muscle while on pred. Sure your hormones aren't optimized for it but I've trained while taking it several times and never really noticed that much of a difference. Usually do drop about 5 lbs of water weight coming off though.
 

Latest posts

Back
Top