Has Anyone Been Told That They Have Refractory Crohn’s disease of the Vulva? Or Might This be a Medication Side Effect?
I've never been told that I have it but I have had unexplained symptoms since I was a child. Sometimes it was simply lesions, almost like tiny stretchmarks in the creases of the labia and other times there was unexplained swelling of the inner and outer labia. I haven't had issue with either since my late teens before my resection. Now I have both yet again. Since starting .3ml of Methotrexate back in June this year I started having both issues again (this is also my first flare since my resection). My GP told me to see a lady doctor but this cleared up before I could be seen by anyone. My GI and Rheumatologist both felt it was unrelated to the medication. Maybe it is unrelated to the Methotrexate, so maybe its Refractory Crohn’s disease of the vulva? It started again yesterday and again my GP said to see a lady doctor but also suggested I speak to my specialists as he thinks it may be related to the Methotrexate. I'll call my specialists tomorrow to let them know but chances are this is going to clear up again on its own before anyone sees it. The fact that it clears up so quickly though makes me think its related to the Methotrexate or possibly that on top of the 6MP and Entocort simply destroying my immune system.
In case you don't know anything about Refractory Crohn’s disease of the vulva, here you go: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2658576/
I've never been told that I have it but I have had unexplained symptoms since I was a child. Sometimes it was simply lesions, almost like tiny stretchmarks in the creases of the labia and other times there was unexplained swelling of the inner and outer labia. I haven't had issue with either since my late teens before my resection. Now I have both yet again. Since starting .3ml of Methotrexate back in June this year I started having both issues again (this is also my first flare since my resection). My GP told me to see a lady doctor but this cleared up before I could be seen by anyone. My GI and Rheumatologist both felt it was unrelated to the medication. Maybe it is unrelated to the Methotrexate, so maybe its Refractory Crohn’s disease of the vulva? It started again yesterday and again my GP said to see a lady doctor but also suggested I speak to my specialists as he thinks it may be related to the Methotrexate. I'll call my specialists tomorrow to let them know but chances are this is going to clear up again on its own before anyone sees it. The fact that it clears up so quickly though makes me think its related to the Methotrexate or possibly that on top of the 6MP and Entocort simply destroying my immune system.
In case you don't know anything about Refractory Crohn’s disease of the vulva, here you go: http://www.ncbi.nlm.nih.gov/pmc/articles/PMC2658576/
But I found this interesting article about it, in case it's helpful to anyone else. I hadn't heard of this before...
