Isn't there a remote option for school, since COVID cases are going up everywhere? I know she's had COVID but it is very possible to get it more than once. At M's school, there are very few students allowed back on campus (mostly seniors). So while there are some classes that are in-person, they ALL have a remote option, even science lab courses. All lectures are recorded because students may live in different time zones.I really don’t want to send her back to school. I am concerned about her ranking when her tapers steroids and the possibility of needing the hospital and for sure that small country hospital by her school with no GI is over run with Covid. I will fly her home before I send her there.
I know O will not want to stay home but the fact that she's flaring, lost so much weight, is on a high dose of steroids and has such severe disease, anything could happen. Especially since it's such a long journey to get home (there are no direct flights, right?). Just worried for her. I know she wants to graduate ASAP but she also doesn't want to end up with a stoma.Background and Aims
The impact of Coronavirus disease 2019 (COVID-19) on patients with inflammatory bowel disease (IBD) is unknown. We sought to characterize the clinical course of COVID-19 among patients with IBD and evaluate the association among demographics, clinical characteristics, and immunosuppressant treatments on COVID-19 outcomes.
Surveillance Epidemiology of Coronavirus Under Research Exclusion for Inflammatory Bowel Disease (SECURE-IBD) is a large, international registry created to monitor outcomes of patients with IBD with confirmed COVID-19. We calculated age-standardized mortality ratios and used multivariable logistic regression to identify factors associated with severe COVID-19, defined as intensive care unit admission, ventilator use, and/or death.
525 cases from 33 countries were reported (median age 43 years, 53% men). Thirty-seven patients (7%) had severe COVID-19, 161 (31%) were hospitalized, and 16 patients died (3% case fatality rate). Standardized mortality ratios for patients with IBD were 1.8 (95% confidence interval [CI], 0.9–2.6), 1.5 (95% CI, 0.7–2.2), and 1.7 (95% CI, 0.9–2.5) relative to data from China, Italy, and the United States, respectively. Risk factors for severe COVID-19 among patients with IBD included increasing age (adjusted odds ratio [aOR], 1.04; 95% CI, 1.01–1.02), ≥2 comorbidities (aOR, 2.9; 95% CI, 1.1–7.8), systemic corticosteroids (aOR, 6.9; 95% CI, 2.3–20.5), and sulfasalazine or 5-aminosalicylate use (aOR, 3.1; 95% CI, 1.3–7.7). Tumor necrosis factor antagonist treatment was not associated with severe COVID-19 (aOR, 0.9; 95% CI, 0.4–2.2).
Increasing age, comorbidities, and corticosteroids are associated with severe COVID-19 among patients with IBD, although a causal relationship cannot be definitively established. Notably, tumor necrosis factor antagonists do not appear to be associated with severe COVID-19.
Oh geez that is worrisome.Frequency still up today and she started bleeding.
Miss Adult thinks she doesn’t have to tell the GI just yet.
Is she sure this is a cyst and not an abscess? Has her GI ever seen it?In other news her pilonidal cyst is back. It doesn't seem to be oozing and it isn't painful so probably just going to mention it in her weekly update and watch it.
Honestly, I'm SO impressed she did it all by herself for so long. My kiddo tried gluten free and barely lasted 4 weeks (though she was about 15 then so much younger). She ended up doing EEN for 16 weeks this summer and it was honestly truly horrible for her, mostly because her formula goes through a J tube into her small bowel so her stomach was always empty and she was always starving.I don’t think it is the particulars of any diet that really bothers her as much as the extreme restrictions. She says market shopping takes forever trying to read labels. Looking for recipes online is the same and forget trying to find a restaurant to eat at. It’s possible and she was a trooper for quite awhile but when it doesn’t even help it is hard to stay motivated.