HELP! (please)

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Jan 31, 2011
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I live in America, and do not have any insurance.... the doctor wants to put me on Entocort but at 1000.00 per refill, I am unable to afford it, or my growing hospital bills.... if anyone has any information on how to get grants or help with cost, I would be VERY thankful! I am at the point where I want to quit my job because the pain is SOOO bad! I don't know what to do, and the stress is mounting! Please HELP! I really need a miracle or something at this point.... I feel so lost and totally confused.
thank you for reading this!
anything will help
 
I feel for you, Entocort is really expensive and I don't know how drug companies expect people without coverage to be able to pay for that. Unfortunately there's no generic version of it either.

A couple of options you can try include: you can check with your doctor, pharmacist, or the maker of Entocort to see if there are any discounts they can offer you. Your doctor may also have free samples from the drug rep that they can give you.

Otherwise, is prednisone an option for you? The reason Entocort is so expensive is that is has a special coating so that the medication doesn't get released until it's at a specific spot in your intestine (the area where the small & large bowel meet). Prednisone is the same type of drug, but it doesn't have that coating so it goes throughout your entire body instead of just to one spot, which is why pred tends to have more side effects associated with it. But pred is cheap, much cheaper than Entocort, so that is something to consider.

And as far as your hospital bills, check with the hospital and see if they offer any sort of financial assistance program (they should). Even with insurance, last year I racked up about $6,000 in doctor bills, and I applied for the financial aid program even though I didn't fit the criteria, but I got approved anyway, so my doctor bills were eliminated.

I know it is overwhelming sometimes to work while you're so sick and in pain. One more suggestion for you is to apply for Family Medical Leave (FMLA). That way, you can take sick days due to your illness (unpaid, unless you have sick time or vacation time you can use) and they can't fire you due to absences.

Good luck, I feel for you and I hope you are able to get some relief from the pain and the bills!
 
Hi,
I do not have insurance as well :-( It is very difficult and I know how you feel. I found a free / sliding scale clinic here in my town and the doc was not a GI doc but helped me with getting my life back in order. Humaria has grants for people with Chrons and I got my Humaria for only 5$ a month. You might want to contact them directly and see if they could help. Before that I was on Sulfazalizen it only costs me 30$ a month at Costco with no insurance. See if you have any clinics in your area that help with medical.
 
Not much to add, the others have covered it pretty much, but I just wanted to say good luck. I hope you can find some financial help.

- Amy
 
If all else fails above, you can try for disability. You can recieve SSI as your income, not much money but better than nothing and get on Medicare/Medi-cal which is FREE health care. http://www.ssa.gov/pgm/disability.htm

That's what I have currently. I pay nothing for all prescriptions and doctor visits, ER etc.
 
I was just about to post, but Crabby beat me to it.

I know a lot of people really don't want to go on disability, but it has saved my life. There's no way I can work. I've proven this over and over through the years. Usually you're denied the first time through. Heck, I have a friend with a brain tumor who was still in ICU after they cracked his head open to get it out when he was denied. It's what they do first time around to deter people from trying again. A lot of people just kind of suck it up and work when denied, but if you appeal, you're quite likely to get it.

I've actually been on disability for over 12 years now. My doc told me to quit my job when I was 22 as I was going in for my second SBR within 12 months.

I don't get much, but it's enough to keep me going and the medical coverage is great. I got paperwork in last week telling me that my meds last year were over $25,000, but I paid less than $30 out of pocket. My pharmacist teases me that my Humira always sends his inventory wacky.

But I agree, talk to everyone to get help. This is the time to drop all pride and ask anyone and everyone for financial help in any way possible. Most hospitals have sliding scales. Talk to everyone who provides you with any service or help at all. There are programs out there. I know you feel like crud and don't want to deal with all of this on top of dealing with Crohn's, but they won't know you need help if you don't ask. This is the situation that the squeakiest wheel gets the oil. Squeak as loud as you can!
 
I don't have anything else really to add. I agree with CrabbyRelish though. I filed for Social Security, I didn't get the income, but did get the SSD. I also now have Medicaid which in MI is otherwise closed to new patients unless you are state disabled. The problem that I am having is that most doctors especially the GI do not accept the insurance, so it is a fight for me to get good health care even with the Medicaid.

I hope that you get the care that you need soon, so that you can start to feel better.

Margie
 

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