- Joined
- Jan 20, 2011
- Messages
- 16
Hello everybody
I was diagnoised with CD in Sept 2010 after suffering for 3/4 years. I was too frightened to go to my GP as I was suffering with fatigue, rapid weight loss, no appetite, constant abdominal pain and mucus/bloody D. I was missing so much work that I knew I couldn't go on like this much longer so after much encouragement from my partner I went to my GP.
After much research I had kinda come to the conclusion of CD myself but also had the fear it may be something much more sinister. After months and months of tests and waiting for app's I was finally diagnosed, which was quiet emotional. It was bitter sweet, glad to finally know what it was but also aware how bad it can get and that it was for life.
It has been so difficult to come to terms with this and although I have a fantastic people in my life they still can't fully understand what I go through. The physical pain is one thing but the emotional pain can be very hard at times and I don't want to keep burdening them with my illness all the time.
I am now on my 2nd course of budesonide and will start azathioprine on Monday. My GI tells me that by the time I'm tapered off the budesonide in 3 months the Imuran will start to kick in, I am also on pentasa. I hope that these meds work for me and understand that it does take time to find the right meds for you, fingers crossed.
So that's me and I am so happy to have found this forum of experts. It is one thing to study a disease but I think the real expertise comes from people who suffer from the disease on a daily basis.
Look forward to sharing with you all
Maria
I was diagnoised with CD in Sept 2010 after suffering for 3/4 years. I was too frightened to go to my GP as I was suffering with fatigue, rapid weight loss, no appetite, constant abdominal pain and mucus/bloody D. I was missing so much work that I knew I couldn't go on like this much longer so after much encouragement from my partner I went to my GP.
After much research I had kinda come to the conclusion of CD myself but also had the fear it may be something much more sinister. After months and months of tests and waiting for app's I was finally diagnosed, which was quiet emotional. It was bitter sweet, glad to finally know what it was but also aware how bad it can get and that it was for life.
It has been so difficult to come to terms with this and although I have a fantastic people in my life they still can't fully understand what I go through. The physical pain is one thing but the emotional pain can be very hard at times and I don't want to keep burdening them with my illness all the time.
I am now on my 2nd course of budesonide and will start azathioprine on Monday. My GI tells me that by the time I'm tapered off the budesonide in 3 months the Imuran will start to kick in, I am also on pentasa. I hope that these meds work for me and understand that it does take time to find the right meds for you, fingers crossed.
So that's me and I am so happy to have found this forum of experts. It is one thing to study a disease but I think the real expertise comes from people who suffer from the disease on a daily basis.
Look forward to sharing with you all
Maria
