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Took my loading dose today. I'm really hoping it works well. The pain the shots gave me wasn't too bad really. I thought they would be much worse than they were. Then again the anticipation has always been much worse for me.
If anyone is frightened by them, with just starting them try not to be. It really wasn't bad. It burned a bit going in, but I'll be able to do the one shot every two weeks easy.

How have others here done on it? I've been on remicade a long time ago and did really good on it, but never been on humira before.
Take care all :)
 
It sounds like you had a pretty good experience with them, which is great! Are you using the pre-loaded pens, or syringes?

And the burning going in is pretty normal. I find it's actually from the medication itself rather than the syringe.

I've done really well on Humira, and it's kept me in remission without any problems. :) My GI still wants to re-add an immunosuppressant into the mix because of the severity of my illness before, but in the meantime I've been fine. It's also done wonders for my fistula, which I can't get over.
 
No it wasn't bad today. I did try a shot in the top of my leg that hurt quite a bit more.lol
I wont be doing that again, but I did want to see just how bad a shot in the muscle would feel. The fatty part of my inner thigh was much better.
I am very hopeful that I do well to be honest, by the way I haven't had any side effects so far and I would guess if I were going to I would have. At least I hope.
 
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Humira has worked very well for me, no side effects other then sinus issues every now and then.
Good Luck!
 
I actually got sent into flare awhile back, from a combination of a birth control I was trying and taking too much naproxen sodium when I didn't realize it was bad for me. I was still diagnosed as having UC back then, and was on Pentasa and had a really passive GI. He just kept throwing prednisone at me but every time I'd get my taper low enough my symptoms would just get worse. I eventually asked him about Remicade, which he put me on with no follow-up. It turned out I was highly allergic to it, and landed myself in the hospital because I just kept getting worse and developed a fistula.

I switched to a different GI, and the fistula development meant my diagnosis was officially changed to Crohn's. I stayed on Remicade a tiny bit longer but it did nothing for me and we knew I had super high antibodies to it, so I stopped it and went on Imuran, then added Humira. By the time I was put on Imuran, I was already in remission after a long hospitalization, terrible antibiotics and a brief course of prednisone/solumedrol.

Humira I already got tested for, and I have no antibodies to it and have been responding to it really well. I can't tell how beneficial it would be in flare because I haven't been in one since, but I assume it's what keeping me in remission at this point. :)
 
Thank goodness your in remission. I've never had a fistula but haven't heard good things about them. I have an illiostomy which is permanent. People think omg but they have no idea how much better my quality of life is. I feel so much better with it. If I had only one thing to say about it, it would be that when I turn over in my sleep and I can't believe the darn thing is full of air. Lol.
 
Stephen McConnell said:
Thank goodness your in remission. I've never had a fistula but haven't heard good things about them. I have an illiostomy which is permanent. People think omg but they have no idea how much better my quality of life is. I feel so much better with it. If I had only one thing to say about it, it would be that when I turn over in my sleep and I can't believe the darn thing is full of air. Lol.
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I can't say I'd ever recommend a fistula to someone, no. :p But I can at least recommend good medications for healing one as a result!

And that's great that you've had such improvement with the ileostomy! I can see why people would be a bit stunned to hear about it, but I've heard about how much of a difference they've made for people and that's wonderful.

Haha, yeah, I'd imagine sleeping with it could sometimes get a bit difficult. Do you find maneuvering with it difficult at all otherwise?
 
Oh yes. Very much so.
Once I empty it I'm good for awhile. Shoot I don't even know it's there half the time. ONLY when it's empty. Now once it starts to fill up then the dang thing swings alot and you notice the weight of it the more full it is. Over all I don't have any complaints. It was either this or die so it really was a no brainer.lol
to be honest tho I am very self conscious of it as if EVERYONE can see it say when I'm grocery shopping. Realistically tho I know it's just a small bump in my shirt.
 
I'm lining up to start Humira in the next couple of weeks. Glad to have this place to read through. Seems like the first doses are bad for some and not others. What are the most common initial side effects?
I was just diagnosed in early Feb so this is all fairly new. And sucky. :(
 
Really for me I haven't noticed any side effects. I am really worn down today. I took my four shots yesterday. Other than that I really don't see or feel anything. But I am exhausted today. I've read other forums and I think this is pretty normal.
I'm so sorry your not doing well. Having crohns is always different. My stories would only scare people to be honest. But mine got very bad. I've seen sooo many others that haven't gone through what I have.
I am thankful to god for being on the right side of the grass tho.lol
I've heard alot of very good things about humira.
Just don't give yourself a shot in the top of the leg. It hurts more. Go with the inner thigh.
I am bull headed and had to try it just to see, and I found out.lol.
over all the shots don't hurt really any more or less when you give yourself one. The medicine does burn some but like I said it wasn't bad for me.
I hope you do well on it, and keep us posted on how your doing.
talk to ya later. Don't hesitate to ask me or anyone else any questions you have. :)
 
Nancye50 said:
I'm lining up to start Humira in the next couple of weeks. Glad to have this place to read through. Seems like the first doses are bad for some and not others. What are the most common initial side effects?
I was just diagnosed in early Feb so this is all fairly new. And sucky. :(
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My GI explained that people either have it work for them or they don't, and that side-effects don't really happen. Humira is made from a human protein (unlike Remicade, which is mouse protein) so people aren't as likely to get reactions.

I do get injection-site reactions, but I have zero antibodies to Humira so it doesn't mean you're allergic to it or anything. It's just a raised, itchy rash that goes away. About 10% of people get it.
 
NO side effects, besides a little tired the day after the first quadruple shot.

I inject in my stomach, and have no signs there except for a little red spot which disappears within a day or so.
 
I had an improvement within 2 weeks of first dose, but it is different from person to person, I started a month before with prednison and pentasa, which helped, but best improvement came 2 weeks after first dose humira.
 
Generally biologics are pretty fast-acting, which is one of their advantages. But sometimes it does take longer in some individuals. For me Humira worked instantly, though!
 
Wow, I'm glad that biologics have worked so quickly for others! For me, it took 6+ months for Humira to begin working, but then again, my Crohn's is gastroduodenal, and it was pretty bad. None of the prior meds worked for me, so I wasn't on anything prior to starting Humira. My condition is still far from perfect, but it's as good as my GI and I can get it. :)
 
No side effects here. Remicade is a faster acting Biologic than Humira, which is why most docs pick Remicade first, that & it had a head start in its usage. We are about a week away from month 6 and not kicking in so far. Just waiting on the antibody test and drug level test to decide if we are dropping it or increasing it. Its a great drug if it works for you, and I much prefer a quick needle over giving up 1/2 a day for an infusion.
 
I hope that Humira works out in the end! I chose Humira over Remicade because of the convenience of being able to do it from home. I'm actually glad that I didn't know it would take this long to work, because if I had, I would have gone with Remicade. Now, however, I am glad that I'm on Humira.
 
I don't think that Remicade is faster-acting than Humira, actually... Humira acted immediately for me, whereas Remicade didn't do anything until I was five months in, and then we found out I had such high antibodies I had to switch anyway. So I think it's more an individual thing.
 
Could be an individual thing, I just remember when we were deciding over Remicade or Humira our doctor had suggested Remicade because results showed it worked faster than Humira. It could have been her own results versus clinical results, I will have to ask.

Personally Remicade worked faster for the symptoms, but Humira did more actual healing in the same time period. Then again we have never done Humira without methotrexate, but when on Remicade, had no other combination medication with it so its hard to say what worked better. After the blood test results we might just be changing again anyways so no time yet to get comfortable. Hoping for a steady course of treatment soon!
 
My doctor said both had very good results, but we chose the self-service-pen with humira, so I didn't have to travel 2 hrs to the hospital every other month.
The costs are about the same I think, but for some insurance might have something to say.
Fortunately I get Humira paid, as it is sooooo expensive, still working on imuran, but that should come through soon as well.
 
theOcean, I was curious to see if there were studies on 'which one is faster/better' and there is no study! I did find this http://www.medpagetoday.com/MeetingCoverage/ACG/42277 & this http://thegreatbowelmovement.org/remicade-vs-humira-showdown/

I like the great bowel movement article thoughts on 8 weeks of treatment over 52 weeks of treatment on Humira/Remicade. Wonder if they will ever test the drug directly head to head. Either way I am just glad there are options and am looking forward to the new ones coming down the pipe soon, vedolizumab, tofacitinib, & ustekinumab. Have a long way to go before they are even approved for Pediatrics.
 
SupportiveMom said:
theOcean, I was curious to see if there were studies on 'which one is faster/better' and there is no study! I did find this http://www.medpagetoday.com/MeetingCoverage/ACG/42277 & this http://thegreatbowelmovement.org/remicade-vs-humira-showdown/



I like the great bowel movement article thoughts on 8 weeks of treatment over 52 weeks of treatment on Humira/Remicade. Wonder if they will ever test the drug directly head to head. Either way I am just glad there are options and am looking forward to the new ones coming down the pipe soon, vedolizumab, tofacitinib, & ustekinumab. Have a long way to go before they are even approved for Pediatrics.
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That's interesting! Although both of these are for people with UC... I wonder what it would've been with people with Crohn's, instead. I know I'm super excited about the new options coming out, too.

I hope there are more pediatric options approved, as well. I remember reading posts on your daughter and I would love to have her find something that works.
 
I know this is probably a redundant question but I haven't seen much.
Do others notice beig exhausted the day of the loading shots, and the day after?
I'm also assuming that with the next shots being only 2 then 1 every other week this will get better.
 
I didn't, no... I know some people talk about being exhausted the day of their injections, though. It seems I'm pretty lucky and don't react that way to any medications.
 
Stephen, I was quite tired after the first loading shots, the next shots were easier, notice only that I'm a bit short of breath the day after my shot.
 
Tb test came back negative. Just waitin to hear back from the doc. Will prob have to call on Monday because I didn't have time.
 
The first few doses I would get a little tired, but nothing that interfered with my day. Since the first few doses, no real side effects. Been on humira for just over 3 years.
 
Sounds like we are on the same timeline lcat945. I'm just waiting for the Rx to come through. Also trying to decide which day I can lay low in case it wipes me out.
 
Well the prescription went to the mail order thingamabob...but needed a tb test and insurance approval. Now I'm just waitin on have approval I guess
 
Just did my loading doses last night. (took 2 days to build up the courage to do the shots) I had an oops an wasted one of them, so I only did 3. I am waiting on a call back to see what I need to do about the 4th one.
I already feel better. I got up from a squatting position without cringing or yelping in pain and my back doesn't hurt nearly as much. I am sure its helping Crohn's as well, but my flare has been very silent and I hardly every notice that I am flaring, so its hard to tell.
 
I just wanted to say thank you for all the input.
I have a bad cold from one of my kids, we are all sick in the house.lol.
just the thing I didn't want to happen right after my loading dose shots. Lol
I'm not sure but I would guess this is just bad luck really, or maybe good luck. If I get sick now maybe it'll be better later.
Is it unusual to catch a chest cold three days after the loading doses?
 
Aw! Of course that would happen. :p

I would say it's unusual to catch a chest cold, but you've said you were exposed to your kids and everyone else is sick. So I don't think it's just because of the medication or anything.

Don't worry about it, and just take care of yourself. Do watch your lungs and sinuses, though, and if it gets worse see if you need antibiotics. People on Humira can be prone to sinus problems.

Hope you feel better soon!
 
Just watch the bugs. It only takes me a few hours to move from a cold, to throat, larynx, chest infection. My doc says if I get two symptoms ie runny nose and sore throat then make an appointment. I've been on humira two years now and I get real tired post jab day.
 
Your very sweet. Thanks for caring. Yes I have a 20yo ellie, 17yo lannie, and my youngest 14yo gravey, well thats my nickname for him, and my wife is not near as bad but we all have the flu or cold. Blllaaahhhhh. Lol.
I'll be keeping an eye on all of us here, especially myself with taking humira.
I also keep a journal every single day of how I feel, pain level. That kind of stuff, but only about my health. I guess you could call it a medical journal. Lol. Well I do write in the last line something romantic to my wife, so if she ever reads it she'll have a nice surprise. I guess I'm just a romantic at heart. Anyways I like talking to everyone on here. I also love the fact that people here care.
And thank you. It's late and I'm going to hit the hay. Good night all, and god bless. :)
 
That's wonderful that you have such a large family! Even if you're all sick right now, it must make things so lively at home. Hopefully you can all recover soon!

And that's so, so sweet that you'd do something like that for your wife! I actually kept a journal after I first started dating my SO, and would write little things about him that made me happy every day or how he's affected me. I gave it to him as a gift for our first anniversary. I'm a huge romantic too, and what you said reminded me of that. I'm sure your wife would be so pleasantly surprised if she ever read your journal, too!

I'm glad you like talking to people here. I'm so grateful I've joined this forum because it just has such a sense of community behind it, and everyone is so supportive. It's really wonderful.

Goodnight! Get a good rest. :D
 
That's the sweetest thing ever, writing something to her in the last line!

My dr called for pre-auth and was told it has to be board approved and could take 7 days. Today was a super-awful day symptom-wise so I'm really down about not starting yet since I basically feel untreated at this point now that the steroids are over and Imuran hasn't even kicked in.
 
I'm sorry to hear that Nancy, I'm hoping that they will do a good job and get your humira out to you soon.
I've noticed a very nice improvement in my crohns. I've only taken the 4 shots loading dose, but WOW I am feeling much much better. Sometimes these insurance companies can be troublesome. Then they have to find a preferred pharmacy. It really makes me mad. Because you know it's all about the money to them, and here we sit without the help we need because of some ridiculous rule or regulation.
We will be thinking and praying for you,, that you get it soon and it works well for you.
Well once again I'm up too late.lol.. good night all, and god bless!!
 
Hello everyone. Well good news. My surgeon removed the seton yesterday after saying it appears the Humira has been effective in my peri-anal manifestation of the Crohn's. I have blood work today. Because of my other symptoms, diarrhea and stomach pain, my GI is considering adding Methotrexate. Anyone with any experience with this drug? Any advice would be much appreciated.

I enjoy reading about each of you. I'm a little shy and don't post too often, but appreciate those that do. You all offer a great amount of encouragement. I'm 36, and didn't not have manifestations of this disease until October of this past year. It has been difficult on me, and incredibly difficult on my marriage. However, we've made it through a pretty tough time and appear to be doing better on this side of the diagnosis. Thank you all for your thoughtful and supportive posts.
 
ey218, It is amazing the parts of your life Crohn's puts a strain on. I feel like this is the only community that really gets it. I wish you all the luck and support. When I was in such constant pain and unable to eat for so long I really learned who my friends were (i'm single). Not every one got the fact that I could simply work and that was it. I'm not even sure how I did that to be honest, being a single mom leaves you no choice I guess.
 
I have a question about the loading dose for Humira. Do I just do all four in one sitting? Or do I space them out over the day?
 
Saw my doctor this morning and hopefully I will be starting Humira within the next week. Hope it goes well with my insurance company to get approved or whatever the case is. Im a bit nervous about starting this, as I've only been diagnosed for a few weeks and its been pretty rough so far...can't wait to finally know what it feels like to have normal energy! Any tips for a newbie? Ive seen to maybe ice the area before the shots...I get pretty nervous with any kind of needle so any advice helps...
 
Nancye50 said:
I have a question about the loading dose for Humira. Do I just do all four in one sitting? Or do I space them out over the day?
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You can take them in one sitting, not exactly same spot... this is the time to try out where it feels best on your body. Important to squeeze your skin good before you set in needle.
Good luck!
 
Just realized after reading through more of this that my doctor never gave me instruction on how to actually do the shots....nor did he say I was going to have help from a nurse my first time. Luckily I'm married to a nurse (fresh out of school last month) so he might be able to help me figure it out. This doctor has never been great communication-wise, so I am not suprised that he fell short telling me about Humira. He never even mentioned that it would suppress my immune system and that I might be more likely to get sick. He did mention 3 times that I have an increased risk for cancer though...
 
Oh no! That's unfortunate. There's actually an instructional video on my provider's site... can you maybe look up yours? It often requires the DIN number on the Humira box.

Also: there was actually a study that just came out that says biologics like Remicade (so that includes Humira) don't actually increase your chance of cancer!
 
My dr gave me an educational kit with a DVD and practice pen and all. Can you call and see of yours might have one? If not, I can post the instruction pages.

I got approval but now can't get the starter pack till tomorrow. Come ON! Today works better to be exhausted ;)
 
Mrsday, good to have a nurse at home!
I got a bit info leaflet with good pictures, even though the daycarenurse at the hospital helped me with the first load, it was good to have it at home, with two weeks between doses!!

my doctor forgot to tell me about the immune part of it, so always important to do your own research, without getting scared away by it.. (They really need to list al the risks... but they are often rare...)
 
Thanks pusheen, I should finally get it in-hand tomorrow afternoon!

MrsDay I wish I could give you this educational kit. The practice pen is a little over the top but the "click" definitely startled me the first time I heard it. I'd have jerked if a needle had gone in for sure.
 
Did the loading doses this afternoon. Just waiting for the tireds to kick in but feeling fine so far. Hoping to feel good tomorrow bc I'm hosting friends for the evening!
 
Nancye50 said:
Did the loading doses this afternoon. Just waiting for the tireds to kick in but feeling fine so far. Hoping to feel good tomorrow bc I'm hosting friends for the evening!
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A lady I know gets really hyper on her humira days, she gets lots done.. so we all respond in our own different ways!
 
Hi everyone.. here is my update.. humira does not seem to be doing a lot for me. My last hospital stay was close to emerg surgery. High doses of prednisone started things again. Life should be wonderful.. My last eye exam has signes of high pressure in the eyes so i am being monitored closely.. meeting with the surgeon and i am told that all of my small bowel is bad and my next hospital visit will result in surgery. Wonderful what I didnt want to hear.. this time last year it was only a small section of the small.. things are getting worse instead of better.. where to go from here.. think a visit with the GI is in order..
 
Oh jeez... it does sound like it isn't helping too much, then. Have you gotten an antibody test for it? :( Otherwise, it may be time to consider another biologic... Have you been on Remicade?
 
I was on imuran but had reactions to it.. don't think they have tried remicade. As for an antibody test don't think they have done that.. mind you they have been taking bloodwork over the last few months but I think that is just the routine bloodwork
 
Imuran isn't a biologic, just an immunosuppressant! And yeah, that's likely just routine bloodwork. Call your GI and see if you can request an antibody test next time you go for an infusion, and otherwise I think it's time to set up an appointment and talk about the possibility of another biologic if Humira is failing.
 
I'm on humira right now and have been told that my next med will be remicade. Maybe this is an option for you?
 
I'm going to be starting Humira tomorrow, guess I'm pretty worried about it since I've stressed myself into having D. I've been on prednisone since January :( now I've been weaning off in anticipation of starting Humira but I'm feeling the effects. I really hope it works for me
 
It should kick in quickly if it's effective for you, which I hope it is! If you feel like you are getting worse during your prednisone taper, call your GI and let them know because you should probably stay on prednisone a little longer.
 
I think Humira is working for me! Took my loading dose last thurs, have felt great ever since even with a crazy exhausting weekend!!
 
Just found out my insurance approved Humira, so I should start next week! Im a little nervous, but excited to see if it works for me!
 
Anyone else really tired after their loading dose? I think I've taken a nap every day since my injections, normally I can't sleep because of the prednisone so it's weird.
 
I found myself a little tired for the first two months, then it seem to go away. I have been on humira for three years with great success.
 
Hi Everyone,

I'm on Humira and have been since February. My mom came to town, and has a bad cold, so of course I am feeling absolutely miserable today. My throat hurts. I have sinus congestion, headache, and body aches. Should I see the doctor? Should I give it a few days to pass? Thanks in advance.
 
ey218, I havent started Humira yet (Going to start later this week) so I can't help you out there. Has anyone tried taking Emergen-C or Airborne? Both of those add a ton of great vitamins that usually help me when I start feeling sick, but has anyone had luck with them on Humira?
 
ey218 said:
Hi Everyone,

I'm on Humira and have been since February. My mom came to town, and has a bad cold, so of course I am feeling absolutely miserable today. My throat hurts. I have sinus congestion, headache, and body aches. Should I see the doctor? Should I give it a few days to pass? Thanks in advance.
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I'd say to go to the doctor to be on the safe side. Humira already makes you more prone to sinus issues, so you'll want to get that taken care of.

I mostly just take Advil Cold & Sinus to deal with the congestion, especially since it gives me migraines. Then I also have a steroid nasal spray to help me breathe better. The rest of it is just time, I think.
 
ey218 said:
Hi Everyone,

I'm on Humira and have been since February. My mom came to town, and has a bad cold, so of course I am feeling absolutely miserable today. My throat hurts. I have sinus congestion, headache, and body aches. Should I see the doctor? Should I give it a few days to pass? Thanks in advance.
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Hi-I have been on Humira since Sept. and ever since I started, I have been getting a cold/virus every 3 months or so (that is a lot for me). I actually have one right now, sounds like you do, too. My GP now puts me on antibiotics at the first sign of a virus, as a precaution. I have been told by my GI dr. that as long as I don't have a fever or other signs of infection, I am ok to take the Humira. I was due for my injection this past Friday, but waited until today to make sure the virus did not worsen into an infection. Hope this helps and I hope you feel better. Good luck!
 
Nancye50 said:
I was told no NSAIDs, was that only while on prednisone?
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Hi Nancye,
I made the mistake of taking advil and it caused a minor colitis flare-up. My GI specialist told me NEVER to take ibuprofen because it can, ironically, cause bowel inflammation.
Hope this helps!
 
Luthien said:
Anyone else really tired after their loading dose? I think I've taken a nap every day since my injections, normally I can't sleep because of the prednisone so it's weird.
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Hi Luthien,
The Humira made me tired for the first several months. I had terrible fatigue, and my doctors didn't really know what to do about it. In the meantime, I came down with a cold and my dr. prescribed Levaquin (antibiotic) as a precaution so that I wouldn't develop an infection.
A possible side effect of Levaquin is sleeplessness. Not only did I experience that side effect my first few days on it, but is somehow cured my fatigue permanently! I doubt your dr. would prescribe Levaquin for fatigue associated with Humira, but this is what happened to me. It was a blessing in disguise. If you are feeling fatigued, I just wanted you to know that I did also due to the Humira. It's not just you. :) Hopefully it will get better for you one way or the other. Good luck and HTH.
Nancy
 
ey218 said:
Hi Everyone,

I'm on Humira and have been since February. My mom came to town, and has a bad cold, so of course I am feeling absolutely miserable today. My throat hurts. I have sinus congestion, headache, and body aches. Should I see the doctor? Should I give it a few days to pass? Thanks in advance.
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My doctor said not to wait too long, and always go when having a fever.
 
Well my fever went up to 102.4. I saw the GP on Tuesday. She did a strep test, which was negative. She doesn't want me to take too much Tylenol as my liver panels were elevated because of the Humira. I am still feeling pretty miserable, but my fever broke and I'm back at work. I see the GI tomorrow about everything. This is just the worst.
 
Oh gosh, I'm sorry to hear you're still not feeling well. :( At least the fever finally broke... I know those are so miserable. You rest up as much as you can and take care of yourself, and good luck with your appointment!
 
I have a nurse coming over to my house in 2 hours to start my Humira! I'm pretty nervous :( hopefully I start feeling better soon. Does anyone know if it helps with the fatigue? Unlike most people, I have gained weight since my Crohn's symptoms started. I wonder if it will help my weight to go back down
 
You can do it! :D And depending on what your symptoms manifested as, it could help with the weight you gained -- if you were on prednisone and are able to get off of it, that would make a huge difference, too.

The fatigue it kind of depends. It may be caused by malabsorption, low iron/hemoglobin/ferritin, or low B12. Have you gotten a blood test to check for any deficiencies lately? If it is caused by your IBD causing malabsorption, it would definitely help with that.
 
ey218 said:
Well my fever went up to 102.4. I saw the GP on Tuesday. She did a strep test, which was negative. She doesn't want me to take too much Tylenol as my liver panels were elevated because of the Humira. I am still feeling pretty miserable, but my fever broke and I'm back at work. I see the GI tomorrow about everything. This is just the worst.
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It is miserable, but it's positive that your fever broke. Really watch and keep your doctor on top of your liver panels! Unfortunately, three weeks ago I was diagnosed with Autoimmune Hepatitis, and have been unable to take my Humira until my LFTs normalize/plan of attack. Humira and almost ever single other drug is hard on the liver, and us with Crohns/UC also are more likely to have concurrent liver autoimmune issues, like Autoimmune Hepatitis, Primary Sclerosing cholangitis, and primary biliary cirrhosis (not saying or inferring you have these issues, just something to be cognizant of as an IBD patient).
 
I have low iron and low b12, and I am on supplements for both. I've still been pretty tired though. Haven't noticed that they have helped a ton, but a little. I know different people react differently to humira, but I hope I feel the results soob
 
...my humira came yesterday...loading dose...it's in the fridge and I have to wait till wed for the humira nurse...
 
LCATC945 said:
The being able to drink again is the best part.
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I haven't started Humira yet & I was wondering about Humira & alcohol consumption. Can you still consume alcohol while on Humira? I am having difficulty finding documentation on Humira & alcohol consumption.
 
BayAreaChronie said:
I went straight from prednisone to Humira with a dose every other week. No Imuran and I hope it stays that way. 1 Biologic was already tough to accept.
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My GI has recommended Humira treatment immediately. I have skipped over everything : ) I have not started Humira yet. Due to a positive TB test I have to treat latent TB before starting the Biologic.
 
Man that stinks about the TB. Hopefully it clears up soon. I will have to go look up Humira and alcohol. I remember it wasn't as much of an issue like if taking Imuran, but don't quote me.
 
Jay Woodman said:
I haven't started Humira yet & I was wondering about Humira & alcohol consumption. Can you still consume alcohol while on Humira? I am having difficulty finding documentation on Humira & alcohol consumption.
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I drink and there don't seem to be any problems with it. I think antibiotics/antidepressants/etc are the only medications where that's a problem. Biologics and immunosuppressants should be fine.
 
Scaryman said:
MTX on humira is prudent if tolerable.
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I had no idea your body produced antibodies against Humira. Nor was I aware you could use Methotrexate in combination with Humira to reduce these antibodies. I am reading as much as possible to understand Humira before starting the drug. The more I read the more confused I become : )
 
Jay Woodman said:
I had no idea your body produced antibodies against Humira. Nor was I aware you could use Methotrexate in combination with Humira to reduce these antibodies. I am reading as much as possible to understand Humira before starting the drug. The more I read the more confused I become : )
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It happens with any of these biologics, unfortunately! There are tests to see if you've developed antibodies to the medication or not, and using immunosuppressants in combination with biologics often help.

Remicade is a biologic that people are more likely to develop antibodies to, since it's made from mouse protein. Humira and other biologics are made from humanized ones instead so they don't run quite the same risk. I instantly developed antibodies to Remicade and had to stop because of that, whereas even without an immunosuppressant I haven't developed any to Humira. :)
 
Start Humira in the morning, feeling very anxious about the side effects. However looking forward to it working and getting off steroids. I have very bad cognitive issues at the moment and pains on the inside of my legs and arms. Arthritis?? So I'm trying to be positive that this Humira will help of these as well.
 
farm296163 said:
Start Humira in the morning, feeling very anxious about the side effects. However looking forward to it working and getting off steroids. I have very bad cognitive issues at the moment and pains on the inside of my legs and arms. Arthritis?? So I'm trying to be positive that this Humira will help of these as well.
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Stop worrying about the side-effects, most people do really well on Humira!!!And so will you!!
help your body with positive thinking, My GI said about 1-3% have side effects on Humira, all the others are perfectly fine!
 
If you worry about side effects they'll A.) actually get them because you think you will get them. B.) psych yourself out of taking the medication all together and go longer untreated. I had a friend that didn't want to take the steriods that were prescribed to her (rehmatoid arthritus) and waited a year to try it because she was so worried about sued effects. After a few days taking it she wasn't in pain and she kept kickin herself cause she didn't try it sooner
 

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