hi kiki,
welcome to the forum. I felt the same way when I was first diagnosed at age 12 and then when I got married because I was in the hospital for several surgeries and a stroke over the last 15 yrs.
I got lucky though because when I was dating my husband, he wanted to educate himself about Crohn's and living with an ileostomy so he went to all of the CCFA (crohn's & colitis foundation of america) meetings and local ostomy support group meetings to educate himself in regards to what I ate when flaring, the types of medications to treat it, surgery options, as well as how I lived with my ostomy, etc.
I even encouraged him to ask any questions and he did so he knew what to do if I ever had a bad flare up or blockage. It came in handy after 4 months of dating because I had a full blown obstruction and rushed me to the ER and stayed with me until the GI came in to admit me. He's definitely a keeper because he will get my medications at the pharmacy, make meals when I'm ill, and he's even rushed me at 2 am to the hospital for blockages.
I feel truly blessed. He told me one time that education is the key when dealing with Crohn's and by going to the support meetings, he learned what I have to live with on a daily basis plus how I take care of myself when I have an emergency....seek immediate care from the ER doctors because the gut can blow up to the size of a basketball and then perforate if not treated ASAP.
It's normal to feel guilty but don't be. You are very lucky to have a great support system. Some IBD folks I've met don't even have that and they are dealing with it alone.
Be sure to ask your GI questions, take your medications on time, and check out this site esp. the wiki forum. take care and feel free to PM anytime.
hugs.
