IBD rash looks like pox?

[Devynnsmom]

When Devynn was in kindergarten (before she was diagnosed with IBD) She had some weird blistery rash that we thought was chicken pox. I took her to the dr who thought it looked more like measles. They never did find out what it was (lasted longer than pox or measles) and figure it was related to IBD. Last night after her shower I noticed 4 blisters on her back, that again look like pox. Nothing new this morning. She does have fever, sore throat and chest congestion. Has anyone else had a blistery pox like rash that is IBD related, rather than pox?

 

[Jenn]

Sorry I can't really help out, but wanted to reach out anyway. Alex has had lots of weird skin rashes, both before and after dx, but not pox-like ones specifically. He is officially dx'ed with psoriasis too. Do they respond with any creams- either cortisone, benadryl, antifungal, aloe vera? I would think chicken pox with having the fever, sore throat symptoms too

 

[Devynnsmom]

No, her rashes have never responded to creams etc. No new spots have come out, but shes feeling awful I'm still watching..

 

[Dexky]

What are Devynn's meds? If she's feeling awful in addition to the rash it may be time for an adjustment. Good luck!

 

[willsmom]

My son Will had a blistery pox type rash (also unresponsive to creams) on both his arms just prior to diagnosis. The GI doctors did not think it was related to Crohn's but oddly it disappeared once he was started on prednisone.

 

[Devynnsmom]

Dexky, she just started Mezavant on Mar 31. I am wondering if its the meds?
Willsmom, she had something similar when she was in kindergarten, I thought it was pox and my dr thought it was measles. He told me to keep her out of school and the *pox* were still there 2 weeks later. We went to a derm and they had absolutely no idea what it was.

 

[willsmom]

Will's rash showed up a few weeks prior to diagnosis, just prior to his mouth and throat being assaulted with canker sores. He wasn't on any medication at the time, but has had some strange and mysterious rashes and skin flushing since diagnosis and treatment has begun that has yet to be explained.

I think his is all related - Crohn's seems to personalize to the individual in wondrous ways doesn't it?

 

[Devynnsmom]

I think Devynn's rash is also Crohn's related. She's had rashes before and they have never been able to explain them. Her fever has broken and she seems to be feeling a bit better (right now). I am going to see how she's feeling over the next hour or so and if she starts feeling bad again we are going to a pediatric clinic near us. I hate to take her in if she's turning the corner, because the place is full of sick children. I finally got a call back from her nurse and she said its not the meds or she would have a full body rash and or hives. She told me if she still has the fever, take her to the ped clinic. I just want her to feel better. She's been through so much through the years and when you have no clue what is causing it, its so frustrating.

 

[Tesscorm]

On the off chance... my daughter (doesn't have crohns) had a rash a while back and, after months of testing, was 'so-so' diagnosed as nickel allergy (I say 'so-so' because tests showed only a mild sensitivity???). She'd been wearing a belt with a tarnished buckle, it had cut into her belly but she kept wearing it - dermatologist thought it may have gotten into her blood.

Other than the scrape/rash around the buckle area, the rash really started with small pox-like area around her ears and upper arm/elbow, spread to her chest and back. But, when it spread, it changed and became more like (kind of hard to explain???) small areas of skin (2-20 mm) where it looked like the top layer of skin disappeared or 'melted' (these areas didn't start with a normal rash, would just start with the 'melted' skin). Sort of just raw skin but not sore nor bleeding, only itchy and then would dry up. Strange... By the time we got the diagnosis, it was already clearing up. Nothing really worked well to get rid of the rash, just time. (Dermatologist recommended Mela-D by La Roche-Posay to lighten scars.)

As an infant/toddler, definitely had a nickel sensitivity but now only periodically gets an itchy spot around a bra snap, etc. but never before a rash. If the belt hadn't 'cut' into her skin, we probably would never have made the connection to the nickel.

Is it possible that Devynn has some sort of allergy like that? Earrings, etc. In my daughter, the rash really began to come out at her ears, not her belly (so not necessarily the same area that came in to contact with the nickel).

 

[Devynnsmom]

Hmm I don't know. She wasn't wearing any jewellery other than her medicalert. I took her to the Ped after hours clinic on Danforth last night. She said she would give her a 20% chance of it being chicken pox and that we would know within the next two days. If not, its prob the flu and for some reason she got blisters. I spoke to her GI nurse before we went to the cliinic and she said its not the meds or there would be more of a wide spread rash. She has an appt coming up in rheumatology on May 17 and her nurse told me to tell them about the rash. I don't get it, its still there and still only 4 spots. The fever has finally broke, her head is completely congested and she says she feels a bit better.