Ignorance

[merrywidow]

ignorance

i need to vent , sorry.

i have had crohns for 12+years, and had a stoma for 7 years. ALL of my family know this. hard to keep it a secret when you stink out the whole house!!.
anyway, i buy my loo rolls in bulk, it saves money. my sister popped over to deliver easter eggs and commented on the loo rolls, then said that i didnt need to use them anymore as i have a stoma!!! my son, bless him, said i need loo roll for fred (stoma) and to dry my girlie bits.

then the best bit was, when we were delivering easter eggs to my brother in laws, kids. he asked if i was better, i said so so. he said he was glad that my crohns wasnt that bad aand that i didnt get affected to bad by it. i have a stoma for gods sake, how can that be classed as "not bad"?
familys, i am so glad i only see them at easter and xmas. i am better off without the comments. my son understand crohns better than that lot.
rant over, thanks for listening, if you did. and if you didnt listen, well at least i had a place to vent my rage.

 

[katiesue1506]

people are dumb

 

[My Butt Hurts]

First of all, don't apologize for venting, silly. That's what we're here for.
You are so lucky that your son is so awesome with your stoma. I remember your other stories about him. He is great!
But wait - did your son really say the "dry her girly bits" part?? Or just the Fred part? Cuz if he said the girly bits part too, that is AMAZINGLY funny of him!

But yeah - I agree with Katie. People suck.
Your CF family understands. Happy Easter!

(Honestly though - I was ignorant about Fred too. I would not have thought that you needed toilet paper for him. But at least I would have the common sense enough not to say anything <I hope> )

 

[Guest]

your son is awesome, Sharon

just shrug off the dorky comments from the relatives.. it's not worth getting upset over, honestly.

 

[Mark33180]

Do like i use to do and threaten to throw the bag at them.

 

[merrywidow]

mark, you make me die with laughter.
mbh, are you sitting comfortable, then i will begin. my poo is collected in a pouch, the pouch has a "tail" you unseal the tail to empty out the poo, then before you reseal it you have to wipe the opening. hence the need for loo roll. and yes my son did tell them about drying girlie bits. though i dont know how he knew we had to dry them.

 

[ThingsHaveChanged]

jeeze sorry for your family, get confused by people sometimes re Crohns when people are dismissive of it, though tbf I didnt understand it till It got worse

 

[vonfunk]

I have family members I'm not a fan of for that very reason, I'm just lucky enough that I haven't seen them in years.

On a side note, I did not realise that I would need to continue to buy TP after my surgery. As a guy I just assumed I'd need to stock a couple rolls just in case company came over.

 

[Jennifer]

Certain family members of mine know not to bring up the subject ever again. I rarely get angry but when I do you better hope you aren't on the receiving end.

 

[Swirl]

Family can be the worst. I just had one issue with one person in my family. But if they ended up dealing with the same thing, I bet that ignorance they have will be no more! smh

 

[MADiMarc]

Girly bits! I like it. Don't let them get you down though. I thought the suggestion of throwing your bag at them was wonderful.

 

[Terriernut]

I'm sorry, but the fact that folks dont think you need loo rolls hit home for me. My partner thought he could buy the little 2 roll packs of toilet paper after Stan was born. He said...well honey, think how much money we'll save now that you dont need loo roll! Huh?

Erm....what on earth do people think we do with bodily waste now? Are we to fertilize the garden instead or something????

Gawds sake.

Misty

 

[Lisa]

I got a bit of a chuckle out of this...geeze...people really don't think sometimes do they???

And @Terrier - umm.....when I was visiting my Aunt in Finland for the first time- guess what she did with the waste from the outhouse???...and yes, it really was an outhouse with a bucket under the hole.....

 

[MizzSarah]

some of my family make inappropriate jokes about having this disease.—-like as if enjoy being in the bathroom. They like to throw around that I must be reading in the bathroom or doing ‘expletive’ things which is why I’m in there for so long.

 

[Bufford]

I have a stoma and yes I too stink. I took it upon myself to build an outhouse. Its a two holer, one with a regular seat, and the other simply a round hole in the floor leading to a pit below where it can decompose. I simply stand over the hole, undo the bag clip and its 'bombs away', no mess or odor in my house.


There are days I wonder which one is my primary residence when I spend so so much time out at the outhouse.
As for the outhouse, it has to be one on the best decisions I made; no more mess in my inside bathroom and no odors in my house at all. Having a stoma makes it difficult to keep things clean in the house, and I cannot stand bathroom odors when I want to work in my kitchen for the next meal. So out I go.