In a lot of pain. In the middle of Texas

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afidz

afidz

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Joined
Jun 7, 2012
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I've been having flare like symptoms for a few days. Woke up this morning and felt OK just a little upside down. Out of no where I was doubled over with awful pain in my ULQ. I am in the middle of no where driving home from vacation. I can't move. There is something hard and bulging right under my ribs. I trying to stick it out and get closer to home but it's becoming difficult. Just called my GI waiting for the oncall doctor to call me back
 
Are you by yourself?
Do you have a smart phone? Can you plot the closest hospitals as you drive along?
Oh I forget the name of the app but it will direct you to the closest hospital if it's needed.

I hope you hear from the GI.
 
Oh no, afidz, I hope the pain eases and you can make it back safely. Sending hugs!
 
My GI called me back. She said it's probably the hernia. I'm 140 miles outside of waco probably over 200 miles out of Dallas. She said I need to get as close to Dallas as possible and go to the ER
 
In Plano! On our way to the ER now. Have reached my pain threshold.
 
Good luck afidz! I hope if it the hernia causing the pain it is easily resolved and nothing urgent, as in surgery, is required! :ghug:

Dusty. xxx
 
The ER doctor says my intestines are twisted. He tried pushing them back in but he's not sure how successful he was. Going to get a ct now, might need surgical intervention.
 
Medical Center of Mckinney for now. If I need surgery I'm going to ask to be transferred to UT Southwestern
 
I sure hope you don't need emergency surgery, but if this is what it takes for someone to finally fix ya, then fingers crossed. Big hugs, afidz!!
 
Glad you made it to the hospital, hope they can get your sorted without surgery or at least a minimally invasive one!

~~~hugs~~~
 
Hey all
It was rudely pointed out that my hernia is massive. They also said that because of its size it is unlikely that anything is stuck or whathaveyou. I am being discharged tomorrow regardless of how much pain I am in. Oh. and I am still expected to lose all that weight even though my ability to move has just been decreased.
I have cried so much today. I am so stressed out. I just want someone to fix me.
 
I am home now. Still in a lot of pain but whatever. Going to be making an appointment with the surgeon AGAIN to see if I can persuade him to do the surgery soon.
I've cried so much over the last few days. I can't handle being me anymore. I am so tired of being sick. I just want this nightmare to be over!
 
I can't do this anymore. I've broken down in a hard cry more times than I can count this week. I am not strong enough to fight this anymore. I am in so much pain. And no one seems to care or want to do anything about it.
I waited all day for my surgeon to call me back but he never did. If he doesn't call me back by lunch time tomorrow I am going to go to HIS ER in Dallas. Enough is enough. I deserve a better quality of life than this.
 
You definitely do. You know your body better than anyone else and you know what you deserve, and it's certainly not this. It's good to hear you're taking charge and I hope it pays off and that the surgeon finally listens.
 
I'm so sorry that you're struggling with this! I may be wrong but I'm guessing that the surgeon(s) that you're dealing with aren't sure about what to do. Perhaps they aren't confident that they can improve your situation. That doesn't mean that there's not someone more expert who can. Ask your surgeon what he'd recommend if it was his/her wife/husband/daughter/son/mother/father..?If you get the doctors to think personally, sometimes they start approaching the situation differently. Best wishes!
 
I'm feeling a bit better today. Not planning on getting out of bed until I find a way to Dallas. A cab ride would beoff the wall expensive and an ambulance wouldn't take me that far so I'm in tough spot. If Andrew gets done with work early enough he can take me but he has commitments tonight as well. Thank you everyone
 
Afidz, are you doing okay enough that you could drive yourself to Dallas? If so, perhaps you could rent a car or look into one of those car share programs (I think you pay by the hour for those)? That should be cheaper than a cab at the very least. I hope they can help you feel better when you do get to Dallas. Hang in there and big hugs!
 
Afidz hasn't gone to another hospital. She's still in pain. She's afraid that they still won't do anything and that it'll be another bill for nothing. Her surgeon wanted her to make an appointment but that's more money with the surgeon likely suggesting that she still lose weight before they do surgery.

She has a hearing on Monday to see if she can get disability or not. They will be able to see her in person for this hearing and that may push them into giving her the disability status so she's torn between possibly being hospitalized again and missing the hearing (could be done over the phone but not as much impact as it would be in person) or going to the ER if she's still in pain right after the hearing. She also doesn't have anyone to take her to the hospital where her surgeon is right now (it's an hour away).
 
Thanks for the info Jennifer! But, sorry to hear it too. I'm afraid the best thing I can do from here is to offer some more hugs your way afidz. :ybatty: Wish I could do better than this. :hug:
 
Sorry I didn't reply last night, I wasn't up to it and asked Jennifer to post for me.
The hard knot that was under my left rib cage is still there but its a lot softer and I actually not in pain today. While in the hospital I gained 14 lbs of water weight in 2 days (but doctors still insist that my weight problem isn't water retention) I weighed myself today and have lost 10 of the 14 lbs I gained. I still feel incredibly swollen and puffy though.
I haven't left the house or bed really for that matter since I got out of the hospital, even though I am feeling better and tempted to leave the house, I think I am going to continue to be a hermit. I am so embarrassed by my body, I don't want anyone to see me. Thank you all for your support, it means a lot
 
Thinking about you afidz and hoping that you can find a way to get to hospital in Dallas and get this sorted once and for all. :ghug:

Sending much love, warm wishes and healing thoughts your way. :heart:

Dusty. xxx
 
afidz said:
Hey all

It was rudely pointed out that my hernia is massive. They also said that because of its size it is unlikely that anything is stuck or whathaveyou. I am being discharged tomorrow regardless of how much pain I am in. Oh. and I am still expected to lose all that weight even though my ability to move has just been decreased.

I have cried so much today. I am so stressed out. I just want someone to fix me.
Click to expand...


Hope you are feeling better!! I hate when we hurt so much, look for help, and get sent home.
 
So...update
I gained 14 lbs of water weight the 2 days I was in the hospital. In 8 days, I lost 20 lbs. No joke.
I can't really eat much, there isn't room for my digestive tract to expand. So when I do eat, it is incredibly painful. I have switched to a liquid diet for the most part and if I do eat food, its something light and soft.
I haven't seen the surgeon yet, he's just going to tell me that I need to lose weight before he does the surgery and I don't feel like driving an hour and paying $600 to be told I am fat. But, hopefully I will continue to lose (at a slower rate than this last week) and I will be on my way to scheduling the surgery soon
Until then, I wait.
Oh yea, my disability hearing went pretty well. Hope to hear back soon. I don't see how I can be denied, but the Uncle Sam is funny like that!
 

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