Info on Stem Cell Research and Crohn's

[Ademaio]

I went to my GI yesterday for my post hospital checkup. I was informed that I have exhausted just about all options in regards to medications. The few I haven't been on are so similar to ones I have already been on, that there was no point on even trying them. I've had one resection already and was told that because I can't keep my Crohn's under control, that I would more then likely have to have more in the future. My GI now wants to refer me to a Stem Cell Research Program. Everything I have found points to a Stem Cell Transplant and involves Chemo. My GI wants to make sure I am a candidate for this research first before she elaborates on what all involved. She doesn't want to get my hopes up or scare me away from the idea before we know for sure, if I can even get in or not. I'm not too sure what all is involved. So, my question is this....

Has anybody heard anything about the Stem Cell Research that is being done, had it done, or know anything at all about it? Any info would be a big help right now.

 

[nogutsnoglory]

Here is some info on stem cell therapy. There are also listed threads discussing the subject.

http://www.crohnsforum.com/wiki/Stem-Cell-Treatment

 

[Tenacity]

Hi there,

I think your dr might be referring to this trial:

http://www.centerwatch.com/clinical-trials/listings/studydetails.aspx?StudyID=169588

This entails infusing the patient with stem cells. No chemo. No transplant.

There are basically 3 types of stem cell treatments in the US:

Autogulous stem cell transplant - using chemo to wipe out your immune system, and then replacing it with your own stem cells that have been "cleaned". Relatively safe procedure as there is no chance of rejection.

Allogeinic stem cell transplant - using chemo and then giving you donor's stem cells - usually from cord blood. More risky, but increased cure.

Infusing with donor stem cells. No chemo. No transplant. Pretty effective.

Btw, have u ever heard of IVIG infusions? Incredible remission rates but no- one ever talks about it. Maybe cuz it's so expensive, but now with Remicade and Humira etc, costs should not be an issue as IVIG is less expensive. Google it but I doubt your dr will know much about it. I don't understand why it's not being used with those remission rates, and no side effects at all.

Lastly, LDN - you have nothing to lose. Hardly any side effects.

Just my thoughts - trying to help.

Take care.