Hello all,
I'm a 22 yo male. Lot of GI issues. I have completely EXTREMELY FREQUENT random stools. By completely random I mean there is no logic at all. Sometimes it's hard, sometimes it's soft/loose, sometimes it's watery diarrhea, sometimes it's load of mucus, rarely streaks of blood in mucus.
But here's the thing, I go to the toilets a tremendous amount of times a day, at least fifteen times (no exaggeration), and that's fifteen times while taking anti-diarrheals medications. Even when it's hard, I can have 15 stools a day.
By random I mean, I have diarrhea all day, then at night constipation, then diarrhea again, then constipation again. I can switch between both multiple times a day.
I have pain varying, from mild to as bad as a broken bone (which I had so I can compare), I have urges, even hard or normal stools are emergency.
My symptoms have been constant from 9 months now, not a day has gone without symptoms, some days have been slightly better, but I haven't had a day with less than 8-10 stools I can confirm.
Other symptoms are : fatigue, brain fog, recurrent fever, up to 38°5 celsius, incomplete emptying, evacuation does not calm down pain right now, right now sometimes vomitting.
On blood tests : anemia, (hematocrit range : 43-37), low magnesium, low bicarbonate blood, slight hyperkalemia, 0.4-1.1 mg/dL CRP, low cholesterol (LDL, HDL).
I had colonoscopy, nothing found, but colonoscopy was done months ago, when I was almost in symptomatic remission. So I was diagnosed with IBS, but I can't relate with other IBS, I feel like I'm worse than most IBS cases I see, and so far I don't see IBS people having recurrent fever, infections (cdiff), or blood, and moreover no IBS treatment helps at all. That's why I come in IBD boards? What if colonoscopy was wrong? I'm starting to wonder. IBS doesn't seem to make sense. It seems my IBS is off the chart with so called "red flags". (I sometimes awake at night, I have fever, streaks of blood, somewhat weird blood tests, nothing calms down super-diarrhea)
Other health conditions: asthma, bronchiectasis, had recurrent Cdiff.
Something that impressed even GI: the day of my colonoscopy, not having eaten ANYTHING before colonoscopy (I really ate nothing, not at all), having taken the cleanse, I shat 4 times after colonoscopy, earliest stool being one hour after colonoscopy. It was a weird stool.
I'm totally hopeless right now. I've tried every treatment: antispasmodics, antidiarrheals (bowel doesn't care how much I take, it will still **** loads), antibiotics, lowfodmaps, vegetable only, exclusion diet, bile acid sequestrant, probiotics, enzymes, no gluten, no dairy, only poultry, only soup, fasting, psychotherapy, anti depression meds, ...)
Doctors are either helpless or say it's in my head. I'm totally disabled. I'm losing all hope. I hate people humiliating me. I suffer a lot and people say it's my fault or there's nothing to do. Why not to try me on opiates? On corticosteroids? Maybe an operation would help? Feces transplant? They can't let me like this.
If anyone can help or relate.
Thank you for all your answers.
As many of you are probably IBD-sufferers, I send you my wishes of good health. May your remissions be long.
AshRyzE
P.S: my "problem" started gradually, at first I have non-continuous symptoms and it improved after thing like "low fodmap", "probiotics", but right now it's completely out of control and out of proportion.
I'm a 22 yo male. Lot of GI issues. I have completely EXTREMELY FREQUENT random stools. By completely random I mean there is no logic at all. Sometimes it's hard, sometimes it's soft/loose, sometimes it's watery diarrhea, sometimes it's load of mucus, rarely streaks of blood in mucus.
But here's the thing, I go to the toilets a tremendous amount of times a day, at least fifteen times (no exaggeration), and that's fifteen times while taking anti-diarrheals medications. Even when it's hard, I can have 15 stools a day.
By random I mean, I have diarrhea all day, then at night constipation, then diarrhea again, then constipation again. I can switch between both multiple times a day.
I have pain varying, from mild to as bad as a broken bone (which I had so I can compare), I have urges, even hard or normal stools are emergency.
My symptoms have been constant from 9 months now, not a day has gone without symptoms, some days have been slightly better, but I haven't had a day with less than 8-10 stools I can confirm.
Other symptoms are : fatigue, brain fog, recurrent fever, up to 38°5 celsius, incomplete emptying, evacuation does not calm down pain right now, right now sometimes vomitting.
On blood tests : anemia, (hematocrit range : 43-37), low magnesium, low bicarbonate blood, slight hyperkalemia, 0.4-1.1 mg/dL CRP, low cholesterol (LDL, HDL).
I had colonoscopy, nothing found, but colonoscopy was done months ago, when I was almost in symptomatic remission. So I was diagnosed with IBS, but I can't relate with other IBS, I feel like I'm worse than most IBS cases I see, and so far I don't see IBS people having recurrent fever, infections (cdiff), or blood, and moreover no IBS treatment helps at all. That's why I come in IBD boards? What if colonoscopy was wrong? I'm starting to wonder. IBS doesn't seem to make sense. It seems my IBS is off the chart with so called "red flags". (I sometimes awake at night, I have fever, streaks of blood, somewhat weird blood tests, nothing calms down super-diarrhea)
Other health conditions: asthma, bronchiectasis, had recurrent Cdiff.
Something that impressed even GI: the day of my colonoscopy, not having eaten ANYTHING before colonoscopy (I really ate nothing, not at all), having taken the cleanse, I shat 4 times after colonoscopy, earliest stool being one hour after colonoscopy. It was a weird stool.
I'm totally hopeless right now. I've tried every treatment: antispasmodics, antidiarrheals (bowel doesn't care how much I take, it will still **** loads), antibiotics, lowfodmaps, vegetable only, exclusion diet, bile acid sequestrant, probiotics, enzymes, no gluten, no dairy, only poultry, only soup, fasting, psychotherapy, anti depression meds, ...)
Doctors are either helpless or say it's in my head. I'm totally disabled. I'm losing all hope. I hate people humiliating me. I suffer a lot and people say it's my fault or there's nothing to do. Why not to try me on opiates? On corticosteroids? Maybe an operation would help? Feces transplant? They can't let me like this.
If anyone can help or relate.
Thank you for all your answers.
As many of you are probably IBD-sufferers, I send you my wishes of good health. May your remissions be long.
AshRyzE
P.S: my "problem" started gradually, at first I have non-continuous symptoms and it improved after thing like "low fodmap", "probiotics", but right now it's completely out of control and out of proportion.
