- Joined
- Sep 17, 2012
- Messages
- 4
so Ive been dealing with possible crohns for about 6 months but the doctors won't give me an answer on almost anything and I really need to know what to do...
I had an appointment today and was told the genetic tests finally came back.
My SED [inflammation count] was 43. and the normal inflammation count is 10.
[as a side note my GI was looking over the test stops and goes "Oh my gosh." and of course I'm sitting there screaming in my head :sign0085: mee because we all know thats never a good sign lol.]
He now wants to do ANOTHER MRE. I had one about 2 months ago...
they keep suggesting test that I've already had and I'm really not sure what to do? it just seems like we keep going in a loop.
I had been on a steriod... it starts with an E.. sorry can't remember... but it started giving me bad emotional problems and I had to go off of it.. but now they wont give me anything for the pain and junk.
he also keeps mentioning chemotherapy... should I be worried? whats yall opinion on this?
if you want to read a bit more heres a link to my blog entry from this past weekend's hospitalization. I'm quite tired of going in and them telling me they aren't finding anything when I'm in pain and bleeding
[I can't post a direct link apparently but this will give you a bit more info then just what I'm typing... just remove the spaces]
alive-and-breathing.tumblr. com /post/31730913684/back-from-the-hospital-with-no-answers
I had an appointment today and was told the genetic tests finally came back.
My SED [inflammation count] was 43. and the normal inflammation count is 10.
[as a side note my GI was looking over the test stops and goes "Oh my gosh." and of course I'm sitting there screaming in my head :sign0085: mee because we all know thats never a good sign lol.]
He now wants to do ANOTHER MRE. I had one about 2 months ago...
they keep suggesting test that I've already had and I'm really not sure what to do? it just seems like we keep going in a loop.
I had been on a steriod... it starts with an E.. sorry can't remember... but it started giving me bad emotional problems and I had to go off of it.. but now they wont give me anything for the pain and junk.
he also keeps mentioning chemotherapy... should I be worried? whats yall opinion on this?
if you want to read a bit more heres a link to my blog entry from this past weekend's hospitalization. I'm quite tired of going in and them telling me they aren't finding anything when I'm in pain and bleeding
[I can't post a direct link apparently but this will give you a bit more info then just what I'm typing... just remove the spaces]
alive-and-breathing.tumblr. com /post/31730913684/back-from-the-hospital-with-no-answers