- Joined
- Jul 16, 2014
- Messages
- 13
Hi Everyone,
Sorry just felt like a moan this morning. Had a blood test two weeks ago in my GP surgery. The day after he phones me and says he is concerned my white cell count is down to 2.6. So I ring my IBD nurse, tell her, and she says she will inform the consultant but she isn't concerned. This was on a Thursday and I have to ring her the following Wednesday for instructions.
Wednesday comes, no call, Thursday no call, messages left. Friday I get hold of another IBD nurse who tells me to stop the azathioprine I take daily immediately, have another blood test asap, and ring Tuesday and tell them how I am.
Aza is stopped. Blood test done. Since Monday I have had diarrhoea with urgency, no appetite to speak off, weight is slowly going down. Was only off aza for 5 days. Apparently second blood test was OK so told to restart. Could being off Aza for 5 days unsettle the Crohns so much. Feel so tired today, and as its my birthday was going to go out with partner this morning, but as there wasnt going to be a toilet nearby, I havent gone.
A couple of weeks a go I felt settled and would have. Feel a bit low today.
Sorry for the long post
Thanks
Sorry just felt like a moan this morning. Had a blood test two weeks ago in my GP surgery. The day after he phones me and says he is concerned my white cell count is down to 2.6. So I ring my IBD nurse, tell her, and she says she will inform the consultant but she isn't concerned. This was on a Thursday and I have to ring her the following Wednesday for instructions.
Wednesday comes, no call, Thursday no call, messages left. Friday I get hold of another IBD nurse who tells me to stop the azathioprine I take daily immediately, have another blood test asap, and ring Tuesday and tell them how I am.
Aza is stopped. Blood test done. Since Monday I have had diarrhoea with urgency, no appetite to speak off, weight is slowly going down. Was only off aza for 5 days. Apparently second blood test was OK so told to restart. Could being off Aza for 5 days unsettle the Crohns so much. Feel so tired today, and as its my birthday was going to go out with partner this morning, but as there wasnt going to be a toilet nearby, I havent gone.
A couple of weeks a go I felt settled and would have. Feel a bit low today.
Sorry for the long post
Thanks