Izzi update...

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haha yes fair dinkum, not dingham lol!
and a pic from our vacation...I *do* have another child (when I met Mike he was unaware of my younger, ignored on crohns forum son) lol xavier is 2 1/2 :)
I am seriously technologically disinclined...when I try to resize it comes up T-I-N-Y...so sorry for the huge image!


julytrip013.jpg


julytrip118.jpg
 
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Awww, they are fab pics! :)

I can edit the size to what I normally use but that may be too small for your liking.

Dusty. xxx
 
All done Angie! :) Hope they are okay...went one up on what I usually use.

Also edited the one on the nothing thread...:shifty-t:

Dusty. :biggrin:
 
That is great that Izzi has shown so much improvement!! :biggrin:
I know how you feel about being technologically challenged - I still haven't figured out how to do any pictures.
If it makes you feel any better - after looking at your pictures, I couldn't figure out how to get back to the actual posts - had to shut it all down and restart ;)
 
Awesome!

Enjoy your summer and while you're at it, enjoy some extra summer for my daughter and I. We've had a bit of a rough one this year.

Go swimming, bike riding and horseback riding for us. Then do my favorite activity, rollerskating! Yee ha!
 
Nature...the swimming and biking we can do...but horseback riding and rollerskating? I might break a hip! (My sil has horses...she broke her neck after being thrown aa few years back. I have very little desire to go near them lol!) Hoping your summer improves before it is over...they are short enough as it is!!
 
Oh how cute they are!!!
I know what you mean. I do have a son that's 20 months older than Grace. He's a great kid and at 5 is already going to be a fireman. Yes we have the whole gid-up for him and plenty of opportunities for him to rescue Grace.
 
izzi'smom said:
Nature...the swimming and biking we can do...but horseback riding and rollerskating? I might break a hip! (My sil has horses...she broke her neck after being thrown aa few years back. I have very little desire to go near them lol!) Hoping your summer improves before it is over...they are short enough as it is!!
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If you ever want Izzi to try riding- come on out!!!.....I'm sure Tori would be happy to 'share' Marci with her for a ride or two around the yard!!!!!
 
oh - you ever have any thoughts of going up to the Great Escape - or do you think the kids are too young still? I am heading that way with Tori this Thurs/Fri, and possibly again Aug 18th.....and can get DISCOUNT tickets/parking!!!!!
 
yippeee! So happy to hear Izzie is doing so well. I was just thinking about you guys and wondering how it was going
 
OMGosh what sweet angels! Seeing their adorable smiles just made my night!

Do I need to tell you al I have never ridden a horse?
 
Pasobuff...let me think about Friday (I have a "mommy night out" Thursday and need to decide if I will behave or not ;)) I have a wedding the 18th otherwise I'd take you up on that date! Message me with ticket prices and details...I am super tempted!
Your neck o' the woods look beautiful...we may take you up on that horse ridin' visit some day!
 
Second day of multiple bathroom trips and belly pain :( :( :(

Yesterday we spent the day at the beach and I thought she might be dehydrated.

Today it continued. :(

We happened to get bloodwork drawn today, and her doc said he'd look for it and text me the results later. He also said there is dome viral stuff going around *fingers crossed*

*sigh*

I am not ready to get back on the Crohn's wagon yet...I was enjoying my ride down that sweet river (De Nile ;))
 
OH, I'm sorry.:kiss:
I hope it is just a bug.
I hope you can still float on your river, next to my bubble.:)


Farmwife
 
Angie,
Keeping my fingers crossed that it is just a bug. Keep us posted she is in my thoughts and prayers!
 
Really hope Izzi just has a bug and she gets better super quick! Sending warm thoughts along :ysmile:.
 
Crp down to .4 now *fingers crossed*...virus virus virus :voodoo:

Although her doc has told me we will have to wait and see.

Patience is NOT one of my strong suits. :( :voodoo:
 
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yay if it is only a virus! .....hope she feels better soon and gets to enjoy the rest of the summer!
 
I never thought I would be hoping some cute little girl had a virus but..........
I really, really, sincerely hope it's a virus!
 
She didn't complain of pain at all yesterday (although I started my workweek...she was in day care part of the day) and I am hoping that it was just something in passing. YIPPEE!! Thank you all so much for the positive thoughts!!
 
Hi Angie I'm glad Izzy's doing better! I'm Karina's mom, Sue. We met at the park a few weeks ago with other children that had Crohn's or UC. Thank you for telling me about this site.
 
Hoping for a good day today for you and Izzy.

I loved your imaginative name - river De Nile!!

But I hoping there is no deneil here, just a tummy bug that will soon pass. I am so happy she has had a good summer. I kow you have had a long road.
Best wishes,
Lily Rose:)
 
Thanks all!
Still had pain today, and I only had her for four hours :( which makes me think her symptoms are creeping back, slowly but surely. I haven't yet cancelled her surgery (8/31) but probably still will...some days I hate being the parent!! Darn rollercoaster anyway lol!
 
Sorry to hear that. I really hope she manages to get over this quickly without having to have any intervention!
 
Ah come on! Is it too much too ask for a little virus once in a while...give a girl a break! I hope things turn around quickly and you are able to cancel that surgery!
 
So ....today I went and got my first tattoo. It is a tribute to my son, Matt, in honor of his past year and his perseverance during such a difficult time for a child. It's a flaming ring with his hockey teams logo(unfortunately the Boston Bruins logo)...over the logo is a replica of his hockey number patch......the reason? When he was his sickest he continued to play hockey with severe anemia. When he was diagnosed and pulled from sports...he requested to be with his team throughout their season......and didn't miss a game despite a busy travel requirement. He dressed as normal and warmed up on the ice before sitting the bench and cheering on is team. He was returned to hockey just in time for the state sectionals and played well despite his recovery and lack of practice. I hope the tattoo reminds him of this perseverance and I hope he never needs to be reminded ....but it's there if he should forget how strong he ..and others like him had to be. I am declaring tattoo's on parents the official symbol of UC /Crohns ! So everyone get to your designing!
 
What a great thing to do for him!!! My son is also a hockey player so I definitely have a soft spot for these guys! :cry: Matt's lucky to have such a great dad!! :thumleft:
 
Aw Dutch that is totally adorable and touching!

I would take you up on the challenge but I just got back from Florida and let's just say that a tattoo that you get when your twenty (zip it farmwife I KNOW I am no where near 20) is not even identifiable when you are 80 and crap is sagging all over! Let me get over my PTSD first.

Oh yeah! Pics are a must!
 
First things first. I would put up a pic..but I'm not sure how.....it says I need add the photos URL???
If anyone knows how to get the pic from my iPad to a post ill try....
Also ..as far as being 80.....at that point who cares what the tat looks like...you'll likely have bigger concerns....and anyone who sees the tattoo on an 80 year old will think, "that was a cool chick right there"
 
Dutch941 ...I post it to a hosting site, like photobucket, first. I am sure there is another way but I can't figure it out lol!

A tattoo is an amazing tribute...does Matt love it?! Can't wait to see it. I am in crohnsinct's camp...no saggy, unidentifiable ink when my body is...well, worse than it is now lol! Otherwise I would have gotten one years ago!

I haven't had time to read through all of the threads...is Matt still doing well?

Izz seems to be stable-in the bathroom a bit more frequently with slightly more pain but nothing awful.

The Utica CCFA take steps walk is 9/29 @ 3:30, Izz had a great time last year and we are attending again if you are interested in joining us. :)
 
Glad izzie is stable for now. Hope she gets better soon. Prayers coming your way. Can ya hear them? LOL!

Yes! Absolutely! Post pics of the tattoo
 
Matt is doing well...we have reduced his meds and are waiting(again). To see if this corrects his liver enzyme issues.
Regarding the tattoo.....when your old and someone sees the tattoo they're not gonna think .."look at that old fool"....theyre gonna think..."that old person WAS cool once!"
Hope izzi is well....
 
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Finally! Sorry it took so long....
 
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Glad to hear that Izz is stable. Hoping that the trend continues!

Way cool tat Dutch!

I would actually like to get a tat, but DH would have a stroke. Ryan doesn't like them either, so I better get to thinking on another tribute!
 
LOVE it Dutch!!! and who says I won't still be cool when I am old??! ROCK ON!! (Kidding. I never WAS cool loL!)
Hoping that the med shift works.
Izz is doing well...started kindergarten yesterday. Her BUN/creatnine may be creeping upward (or her mother may be neurotic) and I need to get a reserve plan in place. We haven't tried Imuran but I read that it should be used with caution in patients with poor kidney function lol!
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Dustykat, can you message me and explain how to resize puhleaaase?? I am an idiot and can't figure it out!!!!!
 
Why resize? I love it when that adorable face takes up the whole screen. She looks great and so happy!
 
She's so adorable! And she looks so 'well'!! I'm so glad she's doing better! :D :D

So, are you running out to get a tattoo... guarantee you will be a very cool grandmom one day! :lol:
 
She looks great Angie! adorable. does she like school? my kids are not happy in their new school although I keep telling Caitlyn she can't judge yet since she has only been at school for five days out of the three Weeks they have gone.
 
:cool:Oh Angie I'm SOOOOOOOOOOOOOOOOO SORRY, are girls can NEVER meet.:yfrown:

There would be the biggest girl cat fight between Grace and Izzy about who's the prettiest. :ybiggrin:
Then it would get really ugly when the mom's jump in.

:thumright:She beautiful. I hope she had a great day at kindergarten.:thumleft:
 
Oooooo, nice Tat Dutch! :ycool:

Awww, what a fab pic Angie...:)...she is absolutely adorable! :hug:

Seems like the consensus is no resize! If you do want to know though, I work off a Mac so unless you are using one too I'm not sure how you would resize. I use to work off a PC but I can't remember what program I used, I think it was just through office.

Dusty. :Flower:
 
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Izz *loves* school; when I brought home her school supplies (ridiculously long list-20 glue sticks-really??) she claimed it was the "best day of my life!" LOVE her!! She really enjoys school and aims to please her teacher.
farmwife, we would be afraid of Gracie...she is one tough farm chick!! They must meet, though...they are too cute not to!:rosette1:
and Dusty, yup, I have PC's! I am useless when it comes to a mac lol!:yfrown:
 
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Oh Angie, what a joy to read! She really is a fab young lady and I have no trouble seeing how she makes your sing. :)

I will call David in on the pic resizing. I well imagine he will able to set you straight!

Dusty. xxx
 
Such an adorable picture Angie!!! And that dress I love it. :heart: It makes me happy to see Izzi so happy. Praying for a very uneventful, normal school year for all of us!!!! Dutch - Great tattoo!!! And I love the reason for it even more, it is a great tribute. :)
 
izzi'smom said:
Dustykat, can you message me and explain how to resize puhleaaase?? I am an idiot and can't figure it out!!!!!
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The forum software doesn't resize. Do you know what size you want it? Or do you know what you want to use the resized image for? I'll do it for you once I know that :)
 
That's great that she's enjoying school. What on earth are they going to do with 20 glue sticks :eek2:
 
David said:
The forum software doesn't resize. Do you know what size you want it? Or do you know what you want to use the resized image for? I'll do it for you once I know that :)
Click to expand...

I was just going to make it smaller so it doesn't take up an entire page and slow down page loading for everyone. :) So I would have to upload it to, say, photobucket, and resize it there?

Sascot, I think they eat them. :p Seriously, I about fell over when I read her supply list. Mind you, I had to fight to get her in to the elementary that is two blocks from us, so I got the list 3 days before school.

5 boxes crayola crayons
2 boxes markers
20 elmers glue stcks
2 boxes colored pencils
1 package index cards
1 package #2 pencils
1 1" 3 ring binder
4 vinyl folders; 1 red 1 blue 2 choice
1 art smock
1 box tissues
1 box zipper bags
1 black dry erase marker, pointy tipped
$30 later, ugh!! Her teachers seems great, though, so I am thrilled. :thumleft:
 
I had to also get 20 glue sticks for kindergarten. I distinctly remember being so puzzled by it. I mean really by the time she gets to the tenth one they will be dried out.

5 boxes of crayons, 2 boxes of markers, dry erase marker, tissues?????Sounds like they are asking those who bring to bring extra for the kids who might not and also sounds like you are stocking the teacher's supplies.

Art smock! I still have T's and it was never touched.

But like you said, she is excited so who cares really.

So glad she is having fun in school!!!!
 
Awesome news! She is so cute. I can't even upload pictures bc I am on an iPad and I haven't figured it out. I did the other stuff from the laptop and it really doesn't boot up or navigate well. I want a Mac.
 
So her Creatinine is at the top of the "normal" range and her BUN is high. From what I understand BUN is less relied on, but GFR (glomerular filtration rate) IS relied on, and in peds they also use cystatin c levels to determine GFR. Waiting for her doc to return call regarding what kidney function levels he is comfortable with (I am not convinced that her levels are "too" high; but want to prepared for the next step when that moment comes). Going to post separate thread to see if anyone else has used cystatin c/gfr. :)
 
Going to get a CXR today to ensure the month long cough she has isn't pneumonia despite being on antibiotics. Stupid immune suppressants make me more OCD than I already was! She is also complaining of headaches and a sore throat...pushing water as the headache may be dehydration...all of this crap is taking up important brain function that I could be killing off with a glass or two of wine!
 
Sorry to hear about her cough. Grace has started her seasonal cough also.
I hope she gets well soon and her levels go down soon.
 
izzi'smom said:
all of this crap is taking up important brain function that I could be killing off with a glass or two of wine!
Click to expand...

I'll be right over!!!

I hope the chest xray goes well and this is jjust an annoying lingering cold...that girl has gluing to get to!
 
Hope nothing comes of the x-ray and she gets over the cough quickly! And you can get back to enjoying your wine! ;)
 
Crohnsinct-LMAO @ gluing!!
and don't tempt me with a road trip-I've never been to CT and it's on my list!! I can always bring some great NYS wines ;)
Tess I haven't had a chance for any good ones lately-I actually dumped out an opened untouched craft beer this week! :cry: You'd think for the price I pay for them...ugh.
I have the delusion that I'll put the kids to bed and have a drink/clean the house/research the latest IBD treatments/iron, and put away laundry. I usually fall asleep in my two year old's twin trundle bed, exhausted. Super mom I am not.

Izz's CXR was deemed "fine" by her GI. I am awaiting the final report (not that I don't trust him, but he also deemed her labs fine when her kidney function markers were elevated and top normal. He *knows* I am an OCD mom; he must forget these things ;).
 
Happy to hear cxr looks good. My boys both had long time with coughs and ped thought allergies and gave them an inhaler. Cough lessened and went away and stopped using it.

Wine road trip sounds good. I can not tell u how many times I have dumped out a wine in the am that I thought I would sit and enjoy before I went to bed.

Sounds like izzi is enjoying her neighborhood school
 
Still coughing...ugh!! Haven't heard final report yet...forgot to ask when i saw him yesterday. She is complaining of headaches-EIM or being stuck in a hot classroom for 8 hours/dehydration? I am pushing water-we shall see!!
 
I pray to she feels better soon.
I know what you mean you just never know this time of year.
Grace is starting some more symptoms, is it a virus or worked up about brother starting school???
 
I don't know if you use electrolyte water or not. We found Essentia water and it tastes like real water and it has all kinds of healthy stuff infused and has a ph of 9.5. It might help hydrate her quicker.
 
Don - EIM = Extra Intestinal Manifestation, i.e. joint pains, eye issues, etc, etc, etc.

Ang - if her cough is due to common allergies (dust, mould, etc.), my daughter used a syrop called Zaditen (Zaditan??) and it was a miracle treatment!!! She would get a cold in the fall and her cough wouldn't go away for months (would usually stay until April-ish). This happened when she was around 5, 6, 7 years old, did lots of tests, respirologist thought she had asthma (symptoms didn't make sense to me though), allergist determined the dust, etc. allergies and prescribed this syrop. It literally got rid of the cough in 3 weeks and NEVER came back! :eek: The way he described it is that it's not a 'cough' syrop, what it does is lessens the mucous/phlegm in your body and it is this mucous/phlegm that causes the cough. She took it for 2-3 weeks, and then weaned off it and the cough was gone! Although, at the same time, we did replace old carpeting, bought allergin free pillow cases, etc., it really was amazing that after 2-3 years of the same 'winter' cough, it disappeared and never came back!

:thumright:
 
Hope the cough goes away soon! Tess made me think (hard I know) - I'm sure Andrew was around 4 or 5 when he started getting allergies. Maybe it is something "as simple" as that.
You know that wine trip sounds great just about now! Think we should all join together and go on a tour!! We could hire a bus since we couldn't drive with all the wine :thumleft:
 
Sascot said:
Tess made me think (hard I know)
Click to expand...

...gosh, were you cooking at the same time?!?! :eek: :lol:


You know, there seems to a high correlation between the number of conversations we have about our 'questionable' cooking skills and our enjoyment of cabs, merlots, chiantis, etc. :shifty-t: Could there be a link? :)

(by the way, save me a seat on the bus!!)
 
Ragweed is in bloom/ mold in your area now.
Zyrtec or Claritin tend to work.
Allergist can run a rast test on your next blood draw.
Hope she feels better soon
 
Tesscorm said:
...gosh, were you cooking at the same time?!?! :eek: :lol:


You know, there seems to a high correlation between the number of conversations we have about our 'questionable' cooking skills and our enjoyment of cabs, merlots, chiantis, etc. :shifty-t: Could there be a link? :)

(by the way, save me a seat on the bus!!)
Click to expand...


Ahhh...so we need to drink more to cook better??? I like it!!!:thumleft:
Izz has added a runny nose to her cough, and this ocd mom is concerned about her recent fatigue given that it is an early symptom of lymphoma, which is a SE of Tacro. I may actually have her seen (ped or GI? unsure yet. GI seems to cover all of it for us lately) It does not escape me that fatigue is also a SE of her IBD; however, this is not something I would be able to stress about, therefore I will assume the worst so my OCD PITA self will be all-consumed, needing to drink more cabernet. :biggrin:

No headache complaint today, and it was only 63 out (it has been in the 80's). Hoping it is over...yay!! We are having trouble with her being whiny, which generally signals that she isn't feeling the greatest (not that it is an excuse/acceptable). Hate all of the possibly obscure/may be nothing/may be disastrous "symptoms" that IBD has made me neurotic about.
Need wine again. Sadly, I am at work. Maybe I will drink when I get home lol!!
 
Just to say 'Thinking of you" and I completely understand the OCD Mum thing! I go with detailsed lists of questions to our GI and don't leave until I have done them all!!

Hoping it all settles down nicley. Certainly warm weather, school etc etc can make kids tired and headachey.

Take care,
LilyRose
 
AW Ang...I drank for you last night...not IBD related just pissy swim team BS and felt I needed to be there for you.

I sure hope the fatigue, headache, cough and whining are all related to just some stupid cold. She could also be fatigued because of the new schedule. It is tough going to school and having to be "on" all day..my oldest never napped but I remember the first weeks of Kindergarten she was exhausted and slept for over an hour when she got home. A few of my friends kids used to fall asleep on the bus. But I am right there with you wondering about all the things every little occurance could be. Just stay out of Dusty's corner and leave your eyelashes alone.

How is she today?
 

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