Just having a whinge

[Sparky]

I'm just having a whinge...

After a rubbish few months, I thought Imuran was doing the trick...I was wrong, just spent a weekend away where I got to know every loo going as I had multiple 'OMG, I need to go NOW' moments.

Had several 'almost' accidents, fortunately made it to the loo just in time on each occasion.

Just really hacked off - I thought things were improving, I'm eating fairly regularly and my weight has been going up slowly but steadily. Weighed myself tonight and I'm down 4lbs - not surprised based on the last 2 weeks, but still disappointing.

I'll stick with Imuran/entocort for another 2 weeks till I see the consultant, but it looks like infliximab is on the cards. I really wanted to avoid it - imuran worked so well for me last time.

No point to this really - just fed up. I feel like I ruined a weekend away with dh and ds because I was ill, and I'm sad about it. They're fab about it - it can't be helped. It's me that feels bad.

 

[jamie2462]

i do have to say...i am on Remicade (infliximab) and imuran and the remicade works better for me.....and I feel better quite quickly after getting it...the 2 weeks before hand where my body is craving it is another matter....but after i get it...good to go for another 4-6 weeks ish...as long as everythings on the up and up... good luck.

Dont feel bad about it...i totally felt like I ruined my family's xmas last year as I was pretty much bedridden with this damn disease before I was diagnosed....theres nothing we can do about it besides do our damned-est to keep it under control....and stressing will just make it harder...take it easy. And hopefully all works out well. xox

 

[gibby]

How long had you been on the Imuran hun? it does take a wee while to work, but then i have never been off it then had to go back on it again. I am probably looking at being taken off it as had to stay on it for 6 years which is not recommended and now i am getting toxic so its beginning to muck up me bone marrow. not cool!
Hope things look up for you soon, and dont worry about feeling crap about feeling you ruined the weekend, you didnt i am sure and its so good you have people who understand what you are going thru. Just one of those low times which happens and all i can say is just keep venting and ranting on the forum, its the best medicine! let us know what happens hun x
Gibby x