Keeping your job?

[Marisse]

Hi All,

I am new here and I just wanted to hear your thoughts about jobs and combining it with this wonderful (!!!) disease. I have crohns and have always been without medication. I have just 1-5 cm of activity- that leads to strictures, and I have been operated to remove the stricture three times during the 20 years I have had this disease. Now the doctors have begun doing the dilations instead of operations, which works fine for me. I come to the hospital in the morning, go home in the afternoon and can eat and work as usual afterwards. I work part time and have 1-2 days off work every week. Unfortunately I have to have this procedure done every 4-8 weeks, until I am fully dilated. (Who knows when that will be). I always ask the nurses to have the procedure done on my days off, but the hospital is so unwilling to be just at bit helpful They just dont seem to understand or care, that I cannot take days off, especially when I am not working full time. I would very much like to keep my job, and do this procedure instead of an operation, but I am so stressed to beg the nurses every month to get an appointment that works for me

 

[ronroush7]

I am not sure what the answer is but I wish you the best. I am sure there will be someone who has the right answer.

 

[GI Jane]

Hi All,

I am new here and I just wanted to hear your thoughts about jobs and combining it with this wonderful (!!!) disease. I have crohns and have always been without medication. I have just 1-5 cm of activity- that leads to strictures, and I have been operated to remove the stricture three times during the 20 years I have had this disease. Now the doctors have begun doing the dilations instead of operations, which works fine for me. I come to the hospital in the morning, go home in the afternoon and can eat and work as usual afterwards. I work part time and have 1-2 days off work every week. Unfortunately I have to have this procedure done every 4-8 weeks, until I am fully dilated. (Who knows when that will be). I always ask the nurses to have the procedure done on my days off, but the hospital is so unwilling to be just at bit helpful They just dont seem to understand or care, that I cannot take days off, especially when I am not working full time. I would very much like to keep my job, and do this procedure instead of an operation, but I am so stressed to beg the nurses every month to get an appointment that works for me

I wouldn't stress it. My mom, sister, and niece are all nurses. They understand that people have schedules and try to work with them as much as possible.

My question would be does your job cause you stress? This, as we all know, makes our conditions worse. I'm recently medically retired from the military and there is it's own stress in not working.....isolation...finances...purpose.

I'm a true believer in charts and graphs. One side pro's on not having a job and the other side con's. How will this affect family. This needs to be done when not in pain and emotionally vested one way or the other.

It's hard....my thoughts and prayers are with you.

 

[moogie]

The first thing that came to my mind is who is paying the hospital. If it,s you then they have to service you the way you need. I've always been lucky enough to get the dates I want. But then again I'm quite forceful when it comes to treatments. I do everything or almost on my terms. I need my job to live.

Good luck to you.