Kid sized stomas

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Joined
Oct 13, 2011
Messages
1,557
Location
Michigan, USA
I have a lot of questions that I didn't have enough time to ask the nurse I spoke with I thought I could ask the questions here and anything left unanswered I could find the answer and post for other parents. Please feel free to add any tips/tricks.

My daughter is authorized for medicaid as our secondary insurance I was told it will cover everything our blue cross doesn't cover. Does this cover all her ileostomy needs?

I have been poking around on the Internet, I saw some belts would this kind of stuff be covered? Guards? Swimming gear?

Will I have to order it?

How long does it take for you to get your stuff and insurance to cover it?

Do you order through your pharmacist?

I don't want to be shopping around while I am stressed out. Trying to get ahead of the stoma here. Is this possible? Do I need a prescription?

I have heard hollister has good products... Does this hold true for small children? Where do you buy stuff for a kid that is only 40 lbs?
:sign0085:
 
I'm getting ready to go to bed so my brain is a bit foggy , but I just wanted to tell you that I will be on tomorrow and I think? I can answer most of your questions for you :)
Its scary and new but you will learn quick! :)
I'll get info together and post after I come home for you - hang in there momma. And great job gettin a jump start on the info! Wish I had ! :)
 
Thanks for starting this Mary.

For those in Australia...when you join the Ostomy Association in your state your supplies are provided free by the government. Full annual membership in NSW is $45.00.

Dusty. :)
 
I live in Michigan too Mary and my dad had a colostomy 3 years ago when he was diagnosed with Colon cancer. They had someone meet with him at the hospital to show him how to change everything and what supplies he needed. This person also came to his house several times over the next two weeks to help him and to make sure he was understanding. The nurse who did this was set up for us through the hospital and brought all supplies and everything was covered under insurance. My dad has blue cross blue shield and Medicare so I am not sure if that will be different or not. He had a certain number of bags he was allowed which the nurse dropped off to him. He felt like he needed to change a bit more often than what insurance allowed but he made do with what they provided. My guess is you could order more and just pay for them out of pocket. Everything was covered. He did go swimming but I am not sure if he had a different appliance for that or not. Sorry I don't have more information for you. I know he got use to it very quickly but it was a bit tricky at first.

Praying all goes well for Rowan and this gives her a healthy pain free childhood. ((((Hugs)))))

Tiffany
 
Yeah she loves to swim and my sister has a huge in ground pool. Are plan is to live poolside this summer. So I have a feeling I will need extra supplies.
 
Oh my gosh ! What happened to my post ?? :yrolleyes:
I am so sorry, and I feel like a jerk ! I wrote out a rather long post and I just realized it's not here :ybatty::ybatty:
I haven't been around much lately, but I know I wrote it...ugghh....so sorry again ladies ..
I'll try again ...

My daughter is authorized for medicaid as our secondary insurance I was told it will cover everything our blue cross doesn't cover. Does this cover all her ileostomy needs?

We have United Health Care and it covered 100% ~ I'm not sure on your particular insurance, but I would guess it will as well; especially since you have medicaid as a back up.

I have been poking around on the Internet, I saw some belts would this kind of stuff be covered? Guards? Swimming gear?

Yes, it should cover "generic" belts. Now there are some "special" belts, such as Stealth Belts, (you can google this and see), that the insurance most likely will not cover. I have heard both good and bad reviews on this particular belt. Gab tried one on in her Ostomy Clinic and decided it wasn't for her as it was too "bulky". However, since your daughters are so young, it may be a good option ~ especially for swimming :) There are also waterproof tapes you can use for added protection when swimming ~ I believe the tape is also covered by insurance.

Will I have to order it?
Yes, you will have to order it. You will have to order everything.
I will not lie, the search in the beginning and the "learning" may seem overwhelming ~ however, it does get easier I promise ! Once you learn what works best for your girls you will have it down to a fine art :)


How long does it take for you to get your stuff and insurance to cover it?

It never took longer than 2-3 days to receive our orders in the mail. Also they always came in a plain brown box, which we thought was very nice. We used a company called Edgepark Medical Supplies. You're Ostomy nurses in the hospital will give you several brochures, catalogs, etc. for the different available companies and you will be able to decide which best suits your personal needs. Most of these companies will provide free samples upon your request so that you can decide which product works best for your child; such as do you need a one piece, two piece, both, small bags, long bags, belt, no belt, barrier creams, rings, etc.
Again, you should get tons of info from the ostomy nurse while in the hospital ~ every single day you are there ! :)

Do you order through your pharmacist?

I don't want to be shopping around while I am stressed out. Trying to get ahead of the stoma here. Is this possible? Do I need a prescription?

No, you do not order through your pharmacist.
Yes, you will need a prescription in order for your insurance to cover it.
There are also Medical Supply stores you can personally go to and "shop", however, I highly recommend the online shopping to save yourself time, and headaches ! LOL

I have heard hollister has good products... Does this hold true for small children? Where do you buy stuff for a kid that is only 40 lbs?

You have heard right ~ Hollister makes great products. That was the brand of choice for Gabrielle. However, you will have to see what works best for her. There may be an ingredient in the glue or something that they use that she could be allergic to. You just won't know until you try them out and see unfortunately.

Ok, so this is a lot of info to take in already so I will stop here for now.
Please feel free to compile another "list" of questions and I will do my best to answer them correctly and specifically ~ Or maybe there will be other input as well to help :) There is a lot to learn, but I know you will both be just fine ! You're both amazing mommies and will soak up the new info quickly just like you have the rest ! :ghug::ghug:
 
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