I survived my first infusion of Entyvio yesterday. I did get very tired afterward, but I have not slept very well for days, so I am not willing to say it was due to the Entyvio yesterday. My next infusion is in 2 weeks.
Hi, hope everyone has been doing well. Just wanted to share a story.
During geography lecture yesterday, I sat next to this girl whom was kind of chatty. I usually sit a few seats away from her, but I wasn't too happy to find out that somebody took my usual seat after I had been absent from school for two days. I guess she must have noticed that I wasn't in school (we had geography lessons on both of the days that I was absent), so she asked me what happened. When I told her I had heart palpitations and went to the hospital, she was like "oh, you have heart palpitations too?" I was quite offended at first, but after she explained that she suffered from SVT too, I was starting to like her as a friend. Although her SVT is not as serious as mine, she seems quite intent on going for the surgery to get it fixed sometime in June, so I guess I'll just wait for her to be done with that, and see if I want to do it in a few years' time.
Unfortunately, she doesn't have Crohn's, so I don't expect her to fully understand what I'm going through. But anyways, I was glad I found a friend :smile:
Hey, where is everyone! Entyvio Group is more active than LOW today.
Hey Doug, I'm here too.
5 more days till I'm officially allowed to reintroduce food and start on Azathioprine. There've been ups and downs while I was on EEN, and to be honest, I'm both excited and scared at the same time (●﹏●)
Maybe eat some bland foods.I'm a bit frustrated today. I've been mildly nauseous all day. Because of the nausea, I have eaten next to nothing, so now I'm both nauseous and starving. What do you guys do when you feel like this? To eat or not to eat? I always seem to make the wrong choice. Maybe any choice is the wrong choice - if I eat I'm going to feel worse, and if I don't eat I'm going to feel worse. Ugh.
Good luck, CYY! I was on a liquid elemental diet just for 2 weeks back in late August/early September. Even though it was only 2 weeks, that by itself was really hard. I found myself thinking about food all the time and obsessing over what I was going to eat first when I could eat again. Are you going to ease into it - do small bits of food and still have some modulen for the first little while? That seemed to work out well for me. When I was on liquids only, I was drinking 6 Vivonex drinks per day. When I first started having food again, I'd still have 4 or 5 Vivonex with a little food, and as time went on I'd gradually lower the amount of Vivonex and increase the amount of food.
I like Food NetworkThanks Cat! I'll still pretty much be on Modulen for the next couple of months, trying out one thing new and reducing the scoops by two every four days. After that, I'll start the LOFFLEX diet, but my dietician recommends having a glass of Modulen as a supplement every day.
But won't it be nice to at least start eating again? To start chewing, tasting and swallowing actual food instead of just formula milk?
You have no idea how addicted I am to cooking shows right now. XD
latest project for my granddaughter, she's 9 months , so I need to start building it.
When are you all (including the Utes) going to realise that you're on the road to nowhere ??? I win,and I will always win.Anyone who thinks otherwise is in Cloud Cuckoo Land........I win,I win, I win,I win, I wiiiiiiiiiiiiiiiiiin !!!
The UTES wiiiiiiiiiiiiin!!!!!:dusty::dusty::dusty:
Douglas,you really don't want to see me angry.....:mad2::mad2::ack:
Sandy you and I both know that the real prize is.........the support,the friendship and the laughs that we all get on this forum,LOWs especially.....So for goodness sake put that old cup away,we all know you won it in a spelling Bee when you were 36.
Just got a call from my sister. They had a Valentine's day party at the facility where my dad is. They had dancing and he was non stop.
That sounds really nice.Yes.K., you were a total winner until now.It's a lovely day, so before I go into town we're going down to the coast on the bikes.I we do town first I might not feel like cycling afterwards.Got to get my priorities right........Winning with a smug smile.
Good ideaRon, they make adult trikes now and they are quite trendy, maybe you could ride one of those? My grandpa had one for awhile and one day we all took turns riding it. It had a nice big basket on the back and it was pretty fun to ride. It looked similar to this one: