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CYY said:
Hey peeps! :)

Tried potato and chicken for another day. Seems to go well with me. I'll be trying rice with some chicken slices tomorrow. Maybe even make myself some chicken broth. Too bad I can't cook as well as Jamie. That pasta really did look nice :p

Just took some Azathioprine. Feeling all nauseous again, a headache and sore throat has started to set in too. I feel so sick, and my feelings are so bipolar right now. I was feeling okay only an hour ago...

Side note: lots of homework, projects and topical tests coming up my way soon, so I may be less active for a while. I've still got crap loads of stuff to study, but I'm just so exhausted that nothing's going in D:

I really hope that I can wake up in time for school tomorrow :/

Crohn's really does suck :(
Click to expand...


Hi,yes crohns does suck... you've just gotta suck back harder ☺

Positive thinking goes a long way in dealing with this blighter...
Your doing great, keep it up ☺
Hope the studies go well and though easy to say...try to stay calm n all will go well. Best wishes 💕💕
 
Cat did you not know that chronic illness can be cured that easily.... oh how silly you are!!! NOT.. . Omg its so annoying to have that one chucked at you over n again aint it. Why do people think that, even those that are'nt supposed to have a mental illness 😡.

I say sod them ... cloud cuckoo land must be blooming wonderful eh girl ?? 💕
 
March the 10th is the magic day where it would still be light outside at this time. I have a love/hate relationship with daylight savings time. Can you tell?
 
Chronically positive we have fun planning Christmas parties and New Years. Technically the last person to post is the winner, so we all win albeit briefly at times. We just chill out and support each other.
 
I get to go have my second loading dose of Entyvio this Thursday. I can hardly wait! It will be interesting to see if it puts me to sleep for the whole weekend again.
 
Good luck for that Doug. I'm still waiting to here about when I get approved for remicade and then when my loading doses will be.
 
Good luck Doug! Good luck Aura!

I'm feeling like a failure today. I've felt crummy for over a week and the past few days have been rough. So I finally conceded defeat and increased my pred dose. :( I had been at 6 mg and I've gone up to 8 mg to try to feel better. If that doesn't do the trick then I'll go up to 10, but I don't want to go higher than that. I just want to be off of pred but it sometimes seems like that's never going to happen...
 
I am sorry, Cat. I had wondered last night if Prednisone might help me with the way I have been feeling lately.
 
Prednisone is a necessary evil. I felt better. It had horrible side effects and could not wean off easily. It also did damage to my bone density. I've been coughing and sneezing a lot lately. All thanks to those colleagues at my work. Their thinking is that they are sick and feel bad so they might as well show up and get paid rather than using their personal time to stay home and get better. Ummm thanks. I spent some time watching Pine Car Derby cars race this weekend. What fun!
 
Cat-a-Tonic said:
Good luck Doug! Good luck Aura!



I'm feeling like a failure today. I've felt crummy for over a week and the past few days have been rough. So I finally conceded defeat and increased my pred dose. :( I had been at 6 mg and I've gone up to 8 mg to try to feel better. If that doesn't do the trick then I'll go up to 10, but I don't want to go higher than that. I just want to be off of pred but it sometimes seems like that's never going to happen...
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Sorry to hear that Cat , pred is such a good drug but it can be so hard for some of us to come off it , maybe try even smaller reducing doses for longer the next time ,
Im on 8 mg at the moment and my GI has told me to reduce by 1mg every 4 days and Im dreading such a rast reduce .
 
Cat, Your prednisone experience has me wishing that I could get off my pred tomorrow. I wish you well.
 
Reducing to 20mg was uncomfortable for me. When I reached 10mg I had to reduce by 1mg every 7 days. A very long taper but it eventually worked. Good luck Cat and Doug!
 
Howdy peeps ☺
Wishing those dealing with their meds doses the very best of luck...it will work out at some point bear with n hang in there💝

Wish i got my updates on here not had any for ages😕 good job i always keep an old email update on my phone to go to and get back in the game...
Thus im winning 😃😃

Love n hugs to you all :ghug:💕💖💞
 
Feel better everyone. Hubby and I are just recovering from a bout of cold.

Mandy, I have an app called tapatalk on my phone. It allows configuring the forum. So I access it from my phone. You might wanna check it out :)
 
Madhu said:
Feel better everyone. Hubby and I are just recovering from a bout of cold.

Mandy, I have an app called tapatalk on my phone. It allows configuring the forum. So I access it from my phone. You might wanna check it out :)
Click to expand...
I have Tapatalk also
 
I had tried tapering by 1 mg per week - failed at that multiple times. :( So now I'm going to try tapering by 0.5 mg. My GI prescribed me some 2.5 mg tablets and some 1 mg tablets, so I can combine those to get to the dose I need. It's frustrating, though. I keep feeling like I'm taking 1 step forward and 2 steps back. This flare started back in July, so my goal is to be off of pred by this coming July, but at this rate I don't know if that'll happen. Ugh.

The good news is, I think I'm doing a bit better on the 8 mg. I was able to eat some toast earlier and now I'm having some tea. And I'm doing my favorite sick day activity, which is crochet. Currently I'm crocheting a blanket in shades of blue - there's royal blue, turquoise, and a light teal blue. It's really pretty so far.
 
welcome chronicallypositive

talking of tapatalk, I installed and didn't like it so deleted it, then I got lots of emails from them, then I started getting emailed copies of all you guys messages that you posted from tapatalk, I have emailed them and told them to stop emailing me, I am sure this is breaching some privacy laws. any way I am melting away, its so hot today after the crappy summer we have been having.
 
So sorry you had to go through that Trev. Maybe it's a good thing I did not create a tapatalk ID. I merely chose crohn's forum and signed in to it using my forum credentials. So no emails whatsoever from tapatalk.
 
Welcome, crohnicallypositive! Glad to see new people joining here, especially the younger generation! That'll also mean that I'm not the newbie here anymore (Although I'm still the youngest...) :D

Just wanted to take this opportunity to thank each and every single one of you here on LOW for all the support and encouragement you've been giving me, especially over the last few trying days :ghug:

So... It's Day 4 of me being on Azathiprine, and I'm still feeling nauseous and dead beat after taking it. Sore throat and headache has subsided a little, but hasn't really gone away. And just when constipation broke the monotony of having diarrhoea for more than decade, Azathioprine had to come and take that freedom away from me. :poo: <-- See this here? This is how the typical toilet slave looks like.

Not sure if I've mentioned this before, but I've got this feeling that Azathioprine hates me more than I hate it (._.)

Anyways, I'll be having an appointment with both my GI doc and my dietitian next week, so it's very probable that I'll be getting my blood tested as well. Hope that my blood is alright and that I can get used to Azathioprine soon :/

But on the bright side, at least I don't have to be solely on Modulen anymore. A little food is better than no food at all...
 
CYY said:
Welcome, crohnicallypositive! Glad to see new people joining here, especially the younger generation! That'll also mean that I'm not the newbie here anymore (Although I'm still the youngest...) :D

Just wanted to take this opportunity to thank each and every single one of you here on LOW for all the support and encouragement you've been giving me, especially over the last few trying days :ghug:

So... It's Day 4 of me being on Azathiprine, and I'm still feeling nauseous and dead beat after taking it. Sore throat and headache has subsided a little, but hasn't really gone away. And just when constipation broke the monotony of having diarrhoea for more than decade, Azathioprine had to come and take that freedom away from me. :poo: <-- See this here? This is how the typical toilet slave looks like.

Not sure if I've mentioned this before, but I've got this feeling that Azathioprine hates me more than I hate it (._.)

Anyways, I'll be having an appointment with both my GI doc and my dietitian next week, so it's very probable that I'll be getting my blood tested as well. Hope that my blood is alright and that I can get used to Azathioprine soon :/

But on the bright side, at least I don't have to be solely on Modulen anymore. A little food is better than no food at all...
Click to expand...
Best of luck to you
 
CYY, I so feel for you. I'm similar with my prednisone right now - I hate it and I'm pretty sure it hates me too. I can't seem to stop crying and I'm not sure if it's the pred or the flare or what. Ugh. Hopefully things will get a lot better for both of us, soon.
 
Welcome from here too chronicallypositive!
Trev, I tried Tapatalk and didn't like it either. I can't remember why or if I had any problems with emails (as that was ages ago), but I know with things like that there is usually an unsubscribe area that you can press to get off their mailing list. It should be either on the email itself, or on a link on the email. Hope that helps.
As for the rest of you, I sure hope all colds, pred tapering, new meds, foods and procedures starts to go better. It's been a rough patch around here.:ghug:
 
Carol, yes! I keep a sudoku book in my bathroom. :p

I'm angry now. I had emailed my GI letting him know that I flared up again and went up to 8 mg pred to try to recover. He responded saying that we still don't know what's wrong with me and that I should continue tapering down, not up. Gosh, I'd love to taper off of this evil stuff! But I also have to be a functional human being so that I can work so that I can have health insurance so that I can see the doctor and get meds in the first place. Ugh! And the fact that I'm still technically undiagnosed, does that mean I should just suffer quietly until some doctor finally figures me out? It's not my fault they can't determine what's wrong with me, but I feel like I'm the one being punished. I mean, yesterday I could feel the entirety of my colon. It felt inflamed, it felt like it was protruding out my abdomen (it wasn't though). Bending over sort of squished my colon and that hurt. I've lost something like 6 lbs in just the last few days from having no appetite and having diarrhea. I've been miserable, in a nutshell. And he thinks I should just keep tapering down? I'd like for him to live one day in my shoes and then see if he thinks I should still taper down! Ugh. :(

Gotta keep a sense of humor though. On the subject of feeling the entirety of my colon - I had a thought that I could get a tattoo of my colon directly over my colon. :p That way if I ever have surgery, I'll have a memento of what it looked like. Or if I don't have surgery, I can just point out the spot on my colon tattoo where the pain is. I'm not a tattoo person, but if I were going to get a tattoo, it'd probably be something weird like that.
 
Cat,

I know what it feels like to be undiagnosed. It is so hard. If I was diagnosed with Crohn's I would qualify for up to 40,000 dollars in government grants to get working again. You deserve better than this Cat. Hang in there bud, I feel for you. I wish our medical teams would just figure it out.
 
Madhu thanks for info on tapatalk.. it not that my keypad is that small, its a case of it keeps disappearing and coming back or not . Sometimes i have to send the msg half done then get back on it and edit to finish it off 😯.
It seems better when i go on desktop version but i forget to do that most of the time lol. 💕

Love n hugs to you all :ghug: 💕💖💕💞💝
 
hi guys, I did unsubscribe to tapatalk, I think the reason I got emails was because they were trying to promote their product, I don't think sending forum messages and private messages in an email is ethical. the reason I stopped using it in the first place was because of all the notifications I kept receiving, my wife doesn't cope with sick people and doesn't want to read all the crap we talk about, pun intended. how lucky am I that this is all I have to complain about. I wish. I hope you are all coping with our daily strife.
 
fuzzy butterfly said:
Madhu thanks for info on tapatalk.. it not that my keypad is that small, its a case of it keeps disappearing and coming back or not . Sometimes i have to send the msg half done then get back on it and edit to finish it off 😯.
It seems better when i go on desktop version but i forget to do that most of the time lol. 💕

Love n hugs to you all :ghug: 💕💖💕💞💝
Click to expand...

Sometimes I create my post in a note taking app and then cut and paste into here. It seems much easier especially when it is a lengthy post.
 
Trev, can you mark your Tapatalk emails as junk mail? Sometimes it takes some training for the email server to get all of them in the junk mail folder, but keep marking them as junk mail and it should eventually get it.
 
Going to a church retreat the first weekend in March. They are being accommodating concerning my food allergies.
 
That sounds like fun! So nice of them to be mindful of your medical conditions. I'll be on a ladder pruning trees about then. I like the exercise. I'm getting to be quite good at gardening too. It pays to stay busy with something you enjoy.
 
SandyUte said:
Sometimes I create my post in a note taking app and then cut and paste into here. It seems much easier especially when it is a lengthy post.
Click to expand...

Great idea Sandy ..except i can never seem to do copy n paste lol. Im hopeless at that kinda stuff even if its normaly easy for most people.
Iv tried before n failed miserably 😕 💕
 
Good Morning friends,did I ever tell you that I like long walks,especially when they are taken by people who annoy me ? But for all of YOU I'm sending a huge group hug.Have as good a day as you can.Back later.
 
Haha Carol theres some folks i know could do with taking a long walk...off a short pier !!

Hugs to all :ghug: 💕
 
Hmm, I like taking long walks, and I'm sure I annoy a lot of people, so that makes sense to me! :p Ha ha.

Tomorrow is one of my favorite days. It's $2 pants day! I love $2 pants day. A local upscale thrift shop occasionally puts all their pants on sale for $2 per pair for one day only. And it's everything - jeans, work trousers, sweat pants, shorts, even skirts. Since I've gained some pred weight, my pants size has gone up, so it's been wonderful being able to restock my wardrobe on the cheap. It's like a holiday for me. :) Forget xmas, bring on $2 pants day! ;)
 
Hey Cat grab me a few pairs hun lol☺.. hope you get some good bargins. Im sure you will as your one the best bargin queens i know. :hug:
Ps im a uk size 8 not that i wana be but till i can gain weight il have to live with it ☺
 
Mandy, I'm a US size 8 but I don't know how that compares to UK sizes. I'd give you a few lbs of my pred weight if I could. And yes, I definitely do love a bargain! :) I am all about bargains and being thrifty and DIY. Just last week, I saw in celebrity fashion news that some celebrity had a fancy new designer headband and it "only" cost $295. Um, yikes. But I looked at the headband and it looked like it was just a basic black headband wrapped with some black ribbon in an artful way. So I bought a headband and I had some ribbon in my stash already, and I got out my hot glue gun and made myself a very similar headband. It only cost me about $1 in materials. So I guess I saved $294! How's that for thrifty! :p Ha ha.
 
Gotta keep a sense of humor though. On the subject of feeling the entirety of my colon - I had a thought that I could get a tattoo of my colon directly over my colon. That way if I ever have surgery, I'll have a memento of what it looked like. Or if I don't have surgery, I can just point out the spot on my colon tattoo where the pain is. I'm not a tattoo person, but if I were going to get a tattoo, it'd probably be something weird like that.

I have four crohn's related tattoos. My wife thinks I should get a zipper tattoo over my resection scar.I never considered myself a tattoo person either. I had three operations in one year and was feeling down. The pain of a tattoo is nothing compared to what we go through,so I did it. I am thinking of a booster page for my 5th. I want one of Bruce and Dobby,they are so good to me when I flare.
 
dave13 said:
Gotta keep a sense of humor though. On the subject of feeling the entirety of my colon - I had a thought that I could get a tattoo of my colon directly over my colon. That way if I ever have surgery, I'll have a memento of what it looked like. Or if I don't have surgery, I can just point out the spot on my colon tattoo where the pain is. I'm not a tattoo person, but if I were going to get a tattoo, it'd probably be something weird like that.

I have four crohn's related tattoos. My wife thinks I should get a zipper tattoo over my resection scar.I never considered myself a tattoo person either. I had three operations in one year and was feeling down. The pain of a tattoo is nothing compared to what we go through,so I did it. I am thinking of a booster page for my 5th. I want one of Bruce and Dobby,they are so good to me when I flare.
Click to expand...

That's funny I thought that same thing when my daughter who has tattoos was asking me what I'd get. I also thought of getting just a dot of where they should draw blood since I'm such a hard stick.
 
GI Jane said:
That's funny I thought that same thing when my daughter who has tattoos was asking me what I'd get. I also thought of getting just a dot of where they should draw blood since I'm such a hard stick.
Click to expand...

A talented artist can do wonders. Like wise,a bad artists work is on you for life. Choose wisely. You could get a bullseye on your blood draw site. Tattoos do not interfere with blood work,infusions,etc..
 
Can you post pics of your tattoos Dave? I have a few myself mainly koru design and my medical alert bracelet.
 
Aura said:
Can you post pics of your tattoos Dave? I have a few myself mainly koru design and my medical alert bracelet.
Click to expand...

I'll show you mine if you show me yours. :wink: Perhaps I can get Joanne to take some pics. Two are quotes: 'It does not do to dwell on dreams and forget to live' is on the inside of my left forearm. 'Life is like a rollercoaster. It goes up and down,makes you scream and costs a lot to ride' is on my back,left shoulder. I have a tree of life on my right inner forearm and a Chinese pictogram of cannabis on my right arm,above my bicep. The pictogram was done to look like it was done with a traditional brush. The pictogram is purple and the others are black.
 
dave13 said:
I'll show you mine if you show me yours. :wink: Perhaps I can get Joanne to take some pics. Two are quotes: 'It does not do to dwell on dreams and forget to live' is on the inside of my left forearm. 'Life is like a rollercoaster. It goes up and down,makes you scream and costs a lot to ride' is on my back,left shoulder. I have a tree of life on my right inner forearm and a Chinese pictogram of cannabis on my right arm,above my bicep. The pictogram was done to look like it was done with a traditional brush. The pictogram is purple and the others are black.
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Wow Dave,you have a BICEP ??? :thumleft: :ylol:
 
Hi guys im a bit of a tattooaphobe ... rather see the art work on paper. My son and sister have them. I was so annoyed when my son had one n now he has loads . It is one of my pet hates. Hope iv not caused offence to anyone. That was not my intention.
Big hugs 💕💕
 
My mother thinks they are awful. LOL I think that some people are more suited to them than others. I like the kind that are tasteful and especially those that have a meaning to the individual. I mean no offense to anyone either. I'm still kind of on the fence about them myself.

Each unto their own, :)

cmack
 
cmack said:
My mother thinks they are awful. LOL I think that some people are more suited to them than others. I like the kind that are tasteful and especially those that have a meaning to the individual. I mean no offense to anyone either. I'm still kind of on the fence about them myself.

Each unto their own, :)

cmack
Click to expand...

I agree. Some tattoos can be really nice! Others.. not so much.

As an artist I appreciate tattoos.. but I'm not suree if I'll get one my self. Maybe one day. It's a big thing that you might later regret!
 
My GP wants me to have a barium swallow and have my GI scope my esophagus. I have lost five lbs. She also wants the dermatologist to do a full body check. My blood pressure is a little on the low side.
 
ronroush7 said:
My GP wants me to have a barium swallow and have my GI scope my esophagus. I have lost five lbs. She also wants the dermatologist to do a full body check. My blood pressure is a little on the low side.
Click to expand...

Ron,

That all sounds like a good idea to me. I hope they get you straightened out. It seems like now they want to investigate further. The barium is kind of gross but I managed it ok.


I hope they lead you in the right direction,

cmack
 
Thanks.. I also have an endoscopy scheduled. I have let my GI know I am having faecal incontinence once a week and that I have lost weight and had some abdominal pain last week.
 
Aw Ron your in the wars at the moment arent you. :hug:

What are we going to do with you eh ?? Think i should come over to yours and give you a get better now shake... lol. Seriously tho i hope you get better soon 💕💞
 
In 45 minutes I go in for Entyvio Infusion #2. This time I remembered to bring my Chromebook with me. Netflix here I come!
 
Good luck, Doug! How long does the infusion take? I loved having my chromebook along when I had iron infusions in 2015. Definitely made the time go by faster, being able to watch movies.

Ron, I know you've not been doing well for awhile now, so I'm glad to hear you're having some tests done. Hopefully they can figure things out and get you feeling better.

Mandy, you're only as old as you feel! Okay, so on some days when everything is acting up and I have to use my cane for my arthritis, I feel physically much older than I am, but mentally I don't feel old. I still play Legos so I must be young! ;) And I feel similarly about tattoos, they're just not for me. And they're so permanent, it's like, do you really want Tweety bird or whatever on your arm for the rest of your life? I sure don't.

CYY - I have a question for you. When I went to Japan, there were mostly western-style toilets (really nice ones with heated seats, bidets, etc) but there were also some squat toilets which were pretty awful. Do you guys have squat toilets in Singapore?
 
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