Laying down and then OWCH!!

[LizzieB]

Hello lovely loyal IBD friends,

So since recently diagnosed I've been keeping a food and 'activity' journal. I'm noticing lots of weird things, but I was wondering whether this one affects anyone else.
So I go to bed, my stomach starts grumbling like a moody teenager, then pounds a bit like an imprisoned psychopath (I like to give my stomach personality, keeps him separate from me- and yes my stoma is a he) then he just starts inflating in various places. Kinda feels like I can feel big lumps moving, it gets swollen and then passes/deflates.
It's not particularly painful, just uncomfortable.
Anyone else? Or anyone know why it's when I go to bed?
It's an odd one. Slooooooowly tapering down the budesonide at the mo, I might be able to finally slip down to 3mg next week. Maybe it'll stop then?
Any advise or if someone has had something similar it'd really help me out to know.

Good health to all xxx

 

[DEmberton]

Pretty much what was happening to me with my stricture. Wasn't particularly painful and came on in the evening. A nice man cut me open and let the mental patient out and I've been fine since.

 

[tzvia]

I also had symptoms like that with a stricture. Have you had any imagery done lately?

 

[LizzieB]

Well that's very interesting to find out. Is a stricture still possible if your going to the toilet almost normally? I say almost because sometimes it's not for a couple of days and some days if a couple of times at the mo.
It's changed from the horrific D I had before the steroids.
Maybe I need a bit of my mental patient removing? We're not talking tonight, he's been a bit of an arse today.
Last imagery I had was a pill cam just over a month ago. Can things change this quickly?

 

[tzvia]

I don't have the answer to the questions you asked, but for me my stricture gave me D most of the time. Did the symptoms you describe in the orginal post start recently? I wonder if it's because you are weaning from the steriods and things may be starting to flare a bit? Just throwing guesses out there.

It's good that you had the pill cam done recently. Were there any areas of narrowing?

 

[CLCH87]

Hello lovely loyal IBD friends,

So since recently diagnosed I've been keeping a food and 'activity' journal. I'm noticing lots of weird things, but I was wondering whether this one affects anyone else.
So I go to bed, my stomach starts grumbling like a moody teenager, then pounds a bit like an imprisoned psychopath (I like to give my stomach personality, keeps him separate from me- and yes my stoma is a he)

I love that I'm not the only one who does this. I tell my husband all the time that I feel like I have a tiny dinosaur eating my stomach from the inside. I even named him sorry that's not helpful to this thread but it made me smile!

 

[DEmberton]

I was only ever getting diarrhea once every 7-10 days generally with constipation the rest of the time. When I was finally diagnosed they told me to eat high calorie, low residue food (i.e. avoid all fibre), and in that period of six weeks waiting for surgery the bowel movements were almost normal.

The annoying thing is that the psychopath would never perform for the doctors. I'm sure if I'd been able to demonstrate the gurgling and swelling I'd have got through the system much quicker, but it's almost like he was trying to not get caught.:lol2:

My understanding is that the stricture is caused by scarring from long term inflammation, so even if you don't currently have any inflammation you're stuck with the stricture. You'd think a pill cam would spot that, but I don't know. It was the CT scan that made it clear in my case.

 

[Mush]

Is there a difference between a stricture and a obstruction?

 

[tzvia]

Strictures can cause obstructions. A stricture is a narrowed, thickened part of the intestine that is typically made of scar tissue. If the stricture gets very narrow, it can essentially close off, causing a blockage which is know as an obstruction.

Other things can cause obstructions too, like blockage of food. Sometime hard to digest foods like popcorn or nuts can get caught in a narrow stricture, causing an obstruction.

One can have a full or partial obstruction. Full obstruction causes excrutiating pain and usually vomiting because nothing can get out through the intestines. Partial obstructions are no walk in the park, but they do allow some food aand gas to pass.