May 25, Kelly receives diagnosis

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Entchen

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Hi all, it's Kelly writing with an update. I've been informed that I am "high as a kite" from the 100 mg of Demerol that I received a little while ago, so I'll try to keep this short and sensible.

I've now officially been diagnosed with Crohn's, definitely in the sigmoid and possible also in small intestines (because earlier tests pointed to this). The diagnosis was almost official before, but now I have my very own GI doc and he's confirmed it.

I've been given a prescription for Colazal, but was not given the meds tonight as my pharmacist is concerned that I will be allergic to it.

Prep was difficult but manageable, although it was by no means a complete prep, despite me drinking all 4 litres of the Colyte and switching to a liquid diet well in advance of the date when I had to do so. So we'll need to make adjustments next time.

The colonoscopy itself was incomplete. In fact, he hardly got anywhere at all, due to the colon being "too loopy and floppy" (GI doc's words). I was in massive amounts of pain until the procedure was aborted because the colonoscope simply could not move through the intestines (I was also manhandled by the nurse, who was trying to help massage the scope through!). He did manage to take 5 biopsies in the sigmoid before ending the procedure, however. What surprised me the most was that my shoulder seemed to hurt every bit as much as my stomach -- the pain just seemed to travel right up. I don't see it as a poor pain management approach, though, because they did what they could to get me through a difficult situation and I appreciate their efforts on my behalf.

The hospital has a new piece of equipment for colons like mine (he called it "caterpiller-like"), so we'll try that route if a future colonoscopy is indicated.

Funnily enough, it's not my stomach that hurts now (it feels fine at the moment) -- it's my hand, wrist, and lower arm! The first IV was poorly placed and caused my hand to go numb. The second attempt was a needle that went into the vein and right through the other side, too. The third attempt worked just fine, but now I have quite a bit of tenderness! It'll be fine by tomorrow, I'm sure.

GI doc seems like a great fit for me. He's an assistant professor at my alma mater and was very personable, making sure to listen to my questions and to be very respectful. I'll meet with him in about 6 weeks to discuss things further.

Thanks to all of you for the kind words of support, the information, and the reassurances. :)

:calmo:
 
How exciting to get the diagnosis confirmed! I long for that day...Glad you found a great GI and good luck on your road to remission :)
 
Glad too hear you got a diagnosis

sorry to hear ya one of us

hopefully with meds u can get back on with things an live a semi normal life
 
Wow Kelly, sorry your procedure was so difficult :( I'm sure you're not thrilled to be a Crohnie, but at least you have a firm diagnosis. I hope they can find a med to bring you into remission very, very quickly (hate to disappoint, but it probably won't be Demerol :ylol2: )
 
I'm amazed by the speed of the biopsy results. It seems to take our GI two weeks to analyze a fart. I'm sure you're relieved to have a firm dx. Now you can get on with it.
 
Ooooh, ouch, sorry to hear about the uncomfortable prep and procedure. Next time should be easier; there is a prep available now that is much easier to handle... It's too early right now, I can't remember the name of it! :p

But, on the bright side - you have a diagnosis! Now you 'offically' know what you're dealing with! That must be a relief.


PS- Pico Salax! That was the last prep I had and it was awesome. Alright, brain!

Have a great diving trip!!!
 
Glad you have a diagnosis.......I use the Miralax prep (mixed with gatorade)....that is SO much better than the go-lytely! (YUK!).......
 
Hey Kelly congrats on your diagnosis, although it isn't fun to have Crohns, knowing better than not. I am with Mssick and tired (Sharon) the Picosalax was awesome and only two cups, but I also used two Dulcolax the privious night before the prep, and stayed away from meat. Still going Scuba diving? Good luck.
 
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Thanks, all. Am glad but of course also a bit sad to learn it's Crohn's. Absolutely better to know, though, and start working to get a handle on things.
Sure am going diving! Can't wait!
 
Congrats on your diagnosis - I'm still waiting for mine, so not sure what it feels like to finally be diagnosed, but I would imagine it's both scary and a relief.
 
Glad you finally got your diagnosis so you can get on with your life :) Too bad your scope seemed to be a pain, but manageable at least! Go enjoy your scuba diving!
 
Hey Kelly - glad you have a dx but so sorry it's Crohn's. Had to laugh at the "loopy and floppy" colon :) Here's to hoping that your GI gets things sorted for you quickly!
 
Sorry your scope turned into quite an ordeal.

Sounds like you're ready to take on Crohn's monster now that you've had a head start.
 
Hi Kelly

sorry about your procedure that sounds like pain!
So you're a Crohnie hey?
sorry about that too, but at least now you know what you're dealing with and in time you will be able to manage it and lead a normal happy life!!
xxxx
 
Thanks for the comments and well wishes, all.

Am going to start the Colazol tomorrow; GI doc has confirmed that it should be okay, allergy wise. I didn't want to start on meds this weekend since it was the the dive trip to finish getting certified in scuba.

This weekend there were a few times when I couldn't cover the bruises from the IV fails, and did I ever get some looks! The three bruises got worse and worse until Saturday, when most of my lower arm and part of my hand was mottled in varying shades of red, blue, and black. Things are clearing up quickly now, however.

Thankfully, there was no residual pain from the aborted colonoscopy. I am concerned about how future tests will be done, but my GI has a few ideas. I'd like to think that top on his list is: "Knock Kelly Out First!" On top of never expecting to get Crohn's, I didn't ever expect to be in the smallish proportion of people who can't be scoped, either! I didn't ask him to stop -- poor guy just couldn't get anywhere.

But, thanks to CF (and several library visits), I do feel reasonably prepared to start managing having Crohn's. I won't say I feel relieved to have a diagnosis, but I am glad to have some tools now for working at feeling better.

Oh, and my friends are very amused by my new addiction to Ensure. :ysmile:
 
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Good to see you have your priorities straight! I brought along a disposable underwater camera and will cross my fingers that something turns out. If there are pics, I'll share. Deal?

Diving the first day was tough, but by the second day we'd figured out how to arrange the gear (about 80 pounds, including weights to make up for the buoyancy of the layers of neoprene) to be more comfortable and I had a blast! There were suckerfish all around and they were just a hoot to swim with.
 
Glad you got a dx Kelly (sorry about the Crohn's, but here's your official 'I'm a Crohnnie badge') and glad the diving went well! Hope your doctor gets you sorted out now that he knows what he's dealing with.

Can't wait for the pics of diving :)
 
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