Has anyone tried medical cannabis for Crohn's disease or IBD?
After reading the research and discussions and consulting with my doctor, I’m considering trying medical cannabis as a treatment for Crohn's disease. I found a clinic in the UK where I live, Releaf, that offers
medical cannabis treatments for gastrointestinal conditions. What I liked most about them is that everything is done online and they deliver directly to your home. They seem to have a good track record, but I’d like to hear the experiences of those who have tried this treatment, especially if they have had success.
Hi, I'm 66, diagnosed with Crohn's when I was 25. I had surgery for partial blockage, around 4 yrs ago. Part of my colon was removed, and also part of my intestine. After the surgery I began to experience urgent BMs. At first I didn't know why, when I asked my GI doctor, he said with my colon now being smaller, I can't always hold it if need be. Needless to say, that has a huge impact on many aspects of daily life. When I say "urgent", I mean I sometimes have less than 30 seconds to get to a bathroom. Doesn't happen every day, but I'd say it happens once or twice a week on average. The trick is to be home when it does happen, and not on the road somewhere.
As for the medical cannabis, well I kinda found something out by accident one day. I noticed if I take an edible, it tends to "numb" my digestive system. I can only describe it this way. .....it's kinda like when you have surgery, and you wake up in recovery, and it takes awhile for your system to get going again to where you are having BMs again, (due to the anesthesia's numbing effect), of course not quite as strong as anesthesia. I also noticed that taking an edible is the only way this numbing effect takes place, it kinda puts my BMs in check for a couple hours. Smoking it can sometimes help, but it's much different, in that the numbing effect on my colon/intestines is not nearly as good as when taking it as an edible. I usually buy a water-based THC tincture (the oil based ones don't work very well with me for some reason), and I take a measured dose about 45 min before I need to go out to do some errands, shopping, doctor's appointments, etc...and the numbing effect for the most part shuts down my system for a couple of hours so I can get stuff done. It's not 100% foolproof all the time, but pretty close, and it works better than anything else I've tried, including medications. Also worth mentioning, the one I get is mostly THC, and only 1% CBD. Yeah unfortunately just CBD alone when taken doesn't have the same effect, the THC needs to be there.
So this is how I roll, at least for now. I'm still limited as far as travel, and some other things, but until I find a better way, this is it for now. I'm still wondering if there are other people who have had similar surgery, and experience the same kind of urgent symptoms that I have. I'm one who believes in diet refining first before just popping pills made with chemicals in a laboratory. I have a very good nutritionist who I've been working with for 4 yrs now. I notice if I steer clear of fried foods, and heavy oils, like canola, avocado, etc...and stick with coconut oil and olive oils mostly, it also helps. Knowing trigger foods also goes a long way. It can be so strange sometimes though, for example, if I have any kind of fresh cooked food, it can cause an urgent BM, even if it's a proven safe food. Example...if I buy a piece of fresh salmon, cook it and eat it right away, it can cause urgency, but if I eat canned salmon, or if I eat the fresh salmon the next day after it sits in the fridge for a day after cooking, I don't get the urgency. If I eat fresh grapes, urgency, grape jelly, no problem. Who ever heard of such a thing?? If most freshly cooked foods cause urgency, that kinda rules out being able to enjoy going out to a restaurant to have a meal. Yep, it sucks, but it's a mystery that my nutritionist and I haven't been able to figure out. I saw another post on this forum about cholestramine (I think that's right), but I haven't discussed with my doctor yet. Strangely enough, I also have to be careful with fiber though, cuz I can get constipated from certain kinds of grains, mostly whole grains. I try to basically stick with softer fiber foods, like steamed artichoke, carrots, potatoes, in order to avoid constipation. Crohn's, I call it the disease from hell.
I hope some of this info has helped. Not sure if you are dealing with the same issues as me, but in general, it might be worth trying if you are having any chronic or urgent BMs. From what I've heard, the THC can also help other symptoms of Crohn's, but as always, what works for one person, may not work for another.