I have to take stuff day by day as I'm dealing with a blood clotting disorder MTHFR where my body throws small clots any time on top of my Crohn's which is quiet.
I am dealing with dvts in BOTH legs and a small remainder of the 12" clot on my brain right now. Taking Arixtra shots for a blood thinner as Lovenox failed as well as Entocort for the CD and a different muscle relaxer for the side effects from the stroke...very bad migraines.
I have learned to really cherish what is given to me, to stop and smell the roses per se and just really enjoy being in the moment..I live across lake ontario and I love it when Toronto is lit up on a clear night. so beautiful. Also, seeing as I can't work and am on DBL, I give back by volunteering at a local hospital speaking to new ileostomates. it makes my heart smile knowing that I could help someone who was in the same situation I was 28 years ago and someone from the local ostomy support chapter came to visit me the night before surgery.