My Story :D

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Joined
Dec 23, 2009
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Hi,

Im currently 14 years old.

A couple of months before the summer break of 2008 ( the 6 weeks ) I experience a couple of week's of pain, went to my gp and nothing helped, but it went away.

Then actually in the 6 weeks, for the whole of the 6 weeks my stomach was in agony, constantly inflamed I presume. I couldnt sleep because of the pain and if I did, I woke up again.

We went to my gp and nother he did helped, laxatives ... more laxatives etc. Nother helped. My Dad has private health care with his job, so we decided to go private. After a few tests like endoscopies, barium meal, ( Which I could actually finish :S ) they diagnosed me with crohns disease.

I got started on multiple types of medication which have really sorted me out. For ages I was still low on energy, couldn't stand up for too long ( the church service we have at my school was a nightmare :S ) . I now have to take creon is it ? Which helps me digest my food, because my pancreas isnt working. So only recently I feel fully back to normal id say. Im now on some wierd drug, anzathioprine or something ? It basically lowers my white blood count. And ive been having blood tests every wednesday for the mast 2 months :) Just to make sure im ok.

But now Im finally getting back to normal ( in the past 3 - 4 months )

So thats my story :D Hasnt been fun but its over now ...
 
Welcome. Sorry to hear you have to deal with this at such a young age. I got diagnosed at 16 (I am 31 now) and it was not fun.

Glad to hear you are doing better.
 
Hi Lewis! Glad that you are feeling a bit better already.
Azathioprine is what you are on? You were close with the spelling, lol. It's also known as Imuran in the non-generic form.
Is the pancreas thing related to your Crohn's?
Welcome to the forum.
MBH
 
Hi Lewis. Welcome to the Crohnies Club. Stick around because you've just became our little brother. Glad your doing better and I hope things stay good for a long time.
 
Welcome Lewis! I had symptoms at 15 but not near as bad as you did and even tho I was mild it was very hard to hide with friends but they remembered (that was centuries ago) and now I watch my diet and eat smaller portions. Being young it is hard to avoid fries, pizza etc... I hope you stay well for a very long time! Lots of knowledge here and we are all here to help you!
 
Welcome Lewis! this forum is an incredible wealth of knowledge, and everyone is super friendly. Sorry to hear you've had so much struggle at such a young age, but it's good to hear that you're feeling better, and i hope that continues for you!
 
My Butt Hurts said:
Hi Lewis! Glad that you are feeling a bit better already.
Azathioprine is what you are on? You were close with the spelling, lol. It's also known as Imuran in the non-generic form.
Is the pancreas thing related to your Crohn's?
Welcome to the forum.
MBH

Um yeh, my pancreas got damaged by my crohns, apparently its slowly re-growing, but not enough to stop the creon.

And yeh Azathioprine :D thats the one :p

@Jetta : Luckily myne was in the 6 weeks so I didnt really see my friends, only about 2 - 3 people in school know :) But I prefer it that way :) I dont have to watch my diet suprisingly, as long as I take my creon with EVERYTHING I eat ... gets to be a pain when I have like just one biscuit and have to have a tablet but I got used to it :p

Does anyone get inflamed, when under stress or excitement ?

I seem to get awfull pains in my stomach when at competitions ( I do karate ) and also during exams. Just wondering if this is just me or if anybody else knows what I mean :)
 
Yep every Christmas time I flared, but not this time, I destressed alot and too bad if others don't get that. They dont know what it is like to not eat or enjoy Christmas for many years in a row.

Are you a nervous type person?
 
Jettalady said:
Yep every Christmas time I flared, but not this time, I destressed alot and too bad if others don't get that. They dont know what it is like to not eat or enjoy Christmas for many years in a row.

Are you a nervous type person?

Um I suppose I do worry and get nervouse alot.

Like I dont have an appetite right now. Because im quite excited about tomorow :p
 
Welcome and Merry Christmas Lewis!! Glad you have joined us....and glad you are feeling pretty well. Hopefully it continues :O)
 
Welcome Lewis, Im sorry you have had to go thru so much at such a young age. Glad that you are feeling better, lets hope it stays that way.
 
Welcome Lewis,

When I was nervous or stressed I always felt that I have to go to the bathroom, plus I lose my appetite. I still do. I am getting good at controlling it, especially when I was young and single. It is more difficult now that I have a wife and a 2 year old boy with another on the way. However, it is still very doable. I have a family that loves me...what more do I need...life is good!
 

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