Hi everyone!
I just turned 38 June 5=) At least I had a great birthday and vacation before I got sick. My story starts back in 2007 when all of a sudden I started have diarrhea real bad..thought it was a virus and ended up in ER when my HR hit 160/min. I was put in the hospital on IV's and took several days to get my HR down and dr. thought it was salmanella and gave me IMODIUM..yep! Then I went home and was sitting at computer when I felt something pop in my stomach..ran to bathroom and it was pure blood...guess a fisture burst?? Didn't know that at a time..but that was just the beginning of my heartache..over the next 3 months I was in 3 different hospitals..stuck a million times while the drs. were wondering what in the world was going on. I weighed 122 then and went down to 98 lbs. I finally ended up with a colonoscopy and one dr. told me it was crohns and then the surgeon was like it was ulcerative colitis. I didn't want to take that diagnosis and I was told I would be on asacol for the rest of my life. I hate medicine so I declined that after I started feeling better and just assumed since I was getting better it was food poisoning and that was that...
Fast forward to this past Friday...I had eggs and biscuits for breakfast--then at lunch at a dip that I made with sour cream and mayonnaise that was kind of spicy. I know that last time I just took a couple bites of the dip weeks ago I got bad cramps but just thought that was a bug. Well about 2:30 I got the worse cramps..I thought I was going faint...came with diarrhea..and then about 4:30..the blood came again..I freaked out!!! Immediately thought back about what happened. I went to hospital my blood count was low- severely dehydrated already..and they put me in and gave me Cipro and Flagel? They stopped in the next morning due to E-Coli going around and it shutting down kidneys if you are on the antibiotics. My Wbc went down though from 13500 to 7000. Then next morning I had about 5 diarrhea episodes and it had blood in them but not a whole lot..they came later and typed my blood cause it was down to a 9 and they were going to have to transfuse at 7. Fast forward some more..I had a endoscopy - showed 2 gastric ulcers- small hiatal hernia--reflux and pretty raw in deodunum (sp?) also. THey are going to have to wait a little bit to do the colonoscopy for this time to see what damage it has been over the last 3 years...they have told me today that they are 95% sure Crohns is what I have...so here I am joining you today! To date...I have suffered with...
Mitral valve prolapse (racing heart)
Medullary Sponge Kidney Disease (diagnosed a year ago)
Nodule on thyroid they are watching closely it is getting huge
Ruptured L5-S1 back in 2005
Just found 5 nodules on my right lung they are watching and will redo a scan in August (they are very small)
Endometriosis (just showed up with this on CT Friday night)
Enlarged Cervix (found this time also)
Kidney Stones
Wonder why I feel like I am going crazy at 38! I have literally really had me a cry today...if you have stuck with me this long..thank you for reading and hope to get to know you all!!
Terri (Wife to Steve and mother to Darrian, Emily and Savannah)
I just turned 38 June 5=) At least I had a great birthday and vacation before I got sick. My story starts back in 2007 when all of a sudden I started have diarrhea real bad..thought it was a virus and ended up in ER when my HR hit 160/min. I was put in the hospital on IV's and took several days to get my HR down and dr. thought it was salmanella and gave me IMODIUM..yep! Then I went home and was sitting at computer when I felt something pop in my stomach..ran to bathroom and it was pure blood...guess a fisture burst?? Didn't know that at a time..but that was just the beginning of my heartache..over the next 3 months I was in 3 different hospitals..stuck a million times while the drs. were wondering what in the world was going on. I weighed 122 then and went down to 98 lbs. I finally ended up with a colonoscopy and one dr. told me it was crohns and then the surgeon was like it was ulcerative colitis. I didn't want to take that diagnosis and I was told I would be on asacol for the rest of my life. I hate medicine so I declined that after I started feeling better and just assumed since I was getting better it was food poisoning and that was that...
Fast forward to this past Friday...I had eggs and biscuits for breakfast--then at lunch at a dip that I made with sour cream and mayonnaise that was kind of spicy. I know that last time I just took a couple bites of the dip weeks ago I got bad cramps but just thought that was a bug. Well about 2:30 I got the worse cramps..I thought I was going faint...came with diarrhea..and then about 4:30..the blood came again..I freaked out!!! Immediately thought back about what happened. I went to hospital my blood count was low- severely dehydrated already..and they put me in and gave me Cipro and Flagel? They stopped in the next morning due to E-Coli going around and it shutting down kidneys if you are on the antibiotics. My Wbc went down though from 13500 to 7000. Then next morning I had about 5 diarrhea episodes and it had blood in them but not a whole lot..they came later and typed my blood cause it was down to a 9 and they were going to have to transfuse at 7. Fast forward some more..I had a endoscopy - showed 2 gastric ulcers- small hiatal hernia--reflux and pretty raw in deodunum (sp?) also. THey are going to have to wait a little bit to do the colonoscopy for this time to see what damage it has been over the last 3 years...they have told me today that they are 95% sure Crohns is what I have...so here I am joining you today! To date...I have suffered with...
Mitral valve prolapse (racing heart)
Medullary Sponge Kidney Disease (diagnosed a year ago)
Nodule on thyroid they are watching closely it is getting huge
Ruptured L5-S1 back in 2005
Just found 5 nodules on my right lung they are watching and will redo a scan in August (they are very small)
Endometriosis (just showed up with this on CT Friday night)
Enlarged Cervix (found this time also)
Kidney Stones
Wonder why I feel like I am going crazy at 38! I have literally really had me a cry today...if you have stuck with me this long..thank you for reading and hope to get to know you all!!
Terri (Wife to Steve and mother to Darrian, Emily and Savannah)
