My story

[MojoRisin]

Hello, I was diagnosed with Crohns in Feb 2009 & on the 1st of August 2011 I had my 2nd Crohns flare up which Perforated a 5cm Tear in my small intestine.

I was rushed to hospital & I had a N-section where I later was told that I had 5 feet of my Large & Small intestine Removed..

It wasnt until 10 months had passed & I was informed that my Ileocecal valve was also removed....

Ive had 35 Bowel Movements a day (chronic Diahorrehea) Ive tried Physillium Husk, Questran Lite x 9 a day & it just made my BM's Worse....

I tried Lopermide Tablets worked but it would also make me severely bloated.....

Then I was told that I could Live on Codiene Tablets or a Colostomy bag & I take 8 x 30mg Tablets of Codine a day & now I havnt worn Adult Nappies in 8 weeks & Im starting too feel good again.....

Since my surgery in 2011, Ive been complaining of these 2 big lumps in my gut, they hurt at times & my GP diagnosed me with 2 Hernias, Sooooo I find out on the 23/8/2012 when they will fix these Hernias.....

Im Thankful that Im Alive as I woke up in the Intensive Care Unit as My Mother told me that during my surgery my heart had stopped & after a good Reboot, I now have a 2nd chance of Life.....

 

[Angrybird]

Hello and welcome to the forum

I am sorry to hear that you have had so many troubles. Out of interest what meds are you on (if any) for your crohns? Do I take it that the codeine is supposed to be a long term thing? I was under the impression that long term use of this was not a good thing so will you be monitored on this at all?

I hope they will be able to sort the hernias for you soon hun, you already have plenty to deal with without having these as well!

AB
xx

 

[amien]

Oh my!
sounds like quite an ordeal, glad to hear that your alive, and hopefully on the road to healing! what medications/regimens are you taking for crohns?

 

[MojoRisin]

To Angrybird Im not taking any medication ftor crohns as Ive had 2 Colonoscopys & on both occasions they tell me that there is No signs of Crohns so their not going to give me anything as it might dto the reverse......

My Gastroenterologist (hope I spelt it right) Says that I can Live on Codine for the rest of my Natural life as if I were a drug addict who took 20+ a day well then it would cause livery damage ......

I take 8 x 30mg of Codine (2 @ 6am, 2@10am, 2@3pm, 2@8pm) as this stops the Chronic Diahorrea & means I dont have to goto the tolet 30 - 40 times a day & I have 1 bowel movement a day & lm starting to Feel Good again

 

[Angrybird]

I am glad you are starting to feel better, as long as the docs keep an eye on things to make sure you're ok.

 

[David]

Hi there and welcome

With all that intestine removed, are they monitoring various vitamin and mineral levels for you? The biggest one would be vitamin B12.

 

[MojoRisin]

Re David
After my surgery l wasnt told to take B12 as they gave me Antibiotics & when l get homr from College, I will add the Meds although they didnt put me on ANY crohns preventive medication incase it dif the reverse effect & I do take these Antibiotics as I get alot of infections inside

 

[David]

I'd definitely suggest requesting that they test your vitamin B12 levels then. The terminal ileum, which is sounds like you had a lot of removed, is where B12 is absorbed. And B12 deficiency is bad news.