Need advice

[mcneil143]

need advice

I a new here. I have been dealing with Crohn's for about 10 years but was finally diagnosed last fall. I think I have handled it as best I could. Been good about diet, meds and have tried with stress, although my job dictates when that elevates or declines unfortunately.

The biggest issue I have had is my husband. Since my diet change I have told him what I can and can't eat, but he never remembers. I sometimes don't feel very well and although he appears to understand, I know he is frustrated inside. He knows very little about the disease and hasn't done any research and hasn't asked me any questions. I recently went to my GI who has placed me on new medication - Azathioprine. He gave me the choice of medication or surgery and stated that with medication I wouldn't be able to have kids for a couple years because of complications it can cause. I want to avoid surgery as I have heard bad things about it and thus choice medication in attempts to put the disease into remission.

I came home with the news and told my husband that kids were off the map until remission. He was upset.

I just don't feel that he is on my side about this... maybe I am being over sensitive or selfish? If I am, I would like to know - hearing some advice from those who are involved with the disease would mean a lot. :sign0085: , Lana

 

[SarahAnne]

Maybe if he went to one of your appointments with you, he would understand a little better. My hubby is very supportive, but clueless. He only started to educate himself when I got very sick and was getting sub-standard care. It's a hard disease to understand if you don't have it, if he loves you he will eventually make the effort to understand or at least help you deal with it. Good luck!

 

[Jessica]

I agree, take him to at least one apointment! My boyfriend remembers what I can and can't eat, and sticks it to me! He asks questions, does research, and hears out my numerous rants and bitching sessions. However, I took him to an apointment a couple months ago. He's much more quizical about how I'm feeling, and what I can do to keep going to get through it. Just much more supportive overall.

:heart: best wishes

 

[mcneil143]

Thanks for the advice ... we recently had a big chat about everything. I finally broke down in front of him ... which I HATE doing. I thnk he saw some of the bigger picture perhaps. He's coming around. I guess its a slow process of adjustment and work in progress for both of us!!