Hey! I put up my story on my forum or whatever but no one is commenting and I really just want someone around my age to talk to about going through this. I have lymphocytic colitis and I am 15. Is anyone like that? So far I don't know anyone who actually understands what its like to be in pain all the time. Its getting so frustrating honestly. Comment if you want to talk.
Need someone to talk to
- Thread starter danialys
- Start date
Help Support Crohn's Disease Forum:
- Joined
- Apr 14, 2012
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- 276
Hi danialys! Welcome to the forum, though I'm sorry you have to be here ):
I don't have lymphocytic colitis, I have Crohn's, but I wanted to send you my support anyway. I read your other thread - what medication are you on, and how long have you been on it? It does seem odd that your doctors aren't actively trying to help you.
As far as your questions about pain in the other thread, I don't know how I distracted myself. It sounds really weak and totally unhelpful but I'm not sure I ever did, I just ended up waiting it out each time. That said, once my medication started to work, I obviously didn't need to have to cope with it any more. But it took a long while for me, anywhere from 6-9 months? That's why I ask about your medication/how long you've been on it. I did accumulate a lot of hot water bottles during that time, though.
As far as school went, I just put my head down and got on with it. I wish I'd said more at the time, but I didn't think it would have been helpful. My teachers knew about it, I think, and I had one I was pretty close to who I could go to when I needed to complain/sit out of PE. That was the other thing - I got an exemption from PE, because of my weight, pain and anaemia. Other than that, it really is just a waiting game until you reach remission, I think. Do your teachers know about it? Is there any possibility of doing work at home until you're well enough? I have no idea whether these things are possible or not, since I'm over in the UK.
I'm sorry I don't have many answers to your questions! But if there's anything else you'd like to ask please feel free, since I'm here most days. It really has been an invaluable source of support and I hope you can get the support you need here!
I don't have lymphocytic colitis, I have Crohn's, but I wanted to send you my support anyway. I read your other thread - what medication are you on, and how long have you been on it? It does seem odd that your doctors aren't actively trying to help you.
As far as your questions about pain in the other thread, I don't know how I distracted myself. It sounds really weak and totally unhelpful but I'm not sure I ever did, I just ended up waiting it out each time. That said, once my medication started to work, I obviously didn't need to have to cope with it any more. But it took a long while for me, anywhere from 6-9 months? That's why I ask about your medication/how long you've been on it. I did accumulate a lot of hot water bottles during that time, though.
As far as school went, I just put my head down and got on with it. I wish I'd said more at the time, but I didn't think it would have been helpful. My teachers knew about it, I think, and I had one I was pretty close to who I could go to when I needed to complain/sit out of PE. That was the other thing - I got an exemption from PE, because of my weight, pain and anaemia. Other than that, it really is just a waiting game until you reach remission, I think. Do your teachers know about it? Is there any possibility of doing work at home until you're well enough? I have no idea whether these things are possible or not, since I'm over in the UK.
I'm sorry I don't have many answers to your questions! But if there's anything else you'd like to ask please feel free, since I'm here most days. It really has been an invaluable source of support and I hope you can get the support you need here!
