New member - query re urgency

[AnnaC]

Hi guys, I'm a new member to this forum, so please forgive me if I'm not putting my query in the right place....I'm 58 and was diagnosed with Crohn's disease about 10 years ago, and still learning about it to be honest..after being on Pentasa for a long time, countless flare ups and then being on steroids I am now on biologics, remicade infusion and imuran tablets for over 3 years, while this is working quiet well as in me avoiding the dreaded flare ups, I still have about 3 bowel motions daily, with urgency, as in if I have to go I have to go, no waiting around, I was just wondering is this usual for other Crohn's patients as in being on biologics and still having urgency, I have said it to my doctor but they really didn't make much of it and gave me a card to use if i need to avail of a toilet in a shop etc and they do not have a public one, sorry for the long post.

 

[Scipio]

In my experience the urgency is linked to the inflammation. When the inflammation goes down the urgency goes down with it. My episodes of urgency went away when I went on a biologic (Stelara) that got the inflammation under control.

 

[my little penguin]

Same for my kiddo
The rectum can can inflamed and cause urgency
It’s the last the heal or difficult to heal
Sometimes Uceris foam was used for my kiddo and helped
Other times just time with the biologic to work more

good luck

 

[AnnaC]

Thanks guys good to know I'm not the only one.

 

[Cog]

Check for triggers - foods specifically for me
I told my Doctors years ago that potato was a trigger food for me - a couple of years ago I found out that the measlamine type I was being prescribed for decades had potato starch - switch to potato free capsules and life has been better less urgency and healing now
It is the hidden ones that are hard to find
Good luck

 

[braveheart]

I am almost 50 years old and I had CV since I was 13. I had 2 surgeries and I have my CD in remission for the last 20 years. I have 3 to 4 bowel motions daily (mostly in the morning). I take no meds at all and doctors are evaluating the possibility of taking and immunosuppressant again. What I think is if you do not see blood in stools and blood test is OK, and you not feel strong pains you are in complete control of your illness
Don't panic. I hope this helps.