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tattyteds68

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Hi all im new to this forum, but not new to symptoms of crohns, My tory started back when i was 17 had lots of right sided pain, taken in to hossy and had my appendix out, to my horror 3 weeks later the pain was worse of to the dr i went i was told it was adhesions from the surgery it will take a while to calm down.

Forward a few years woke up one morning and i thought oh my god them pains are here agin i new they were the same pains very distictive arnt they, took myself of to the drs, this time they told me i had overactive ovaries, well what do you do you listen to your dr dont you was given pain killers.

Forward a few more yeras to when i was in my late 20s went dr with this dreaded pain yet a again and hey presto it was something else IBS was given meberbevine for the cramps and co codamol for the pain, 6 weeks later still no give in it, so a dr sent me for a sigmoidoscopy which came back with some mild inflammation but the biopsies were normal my bloods were relatively normal.

So forward 10 plus years goin through life in pain agony and not really getting anywhere, i flared badly in august last year, was taken into hospital was put i drip, morphine was introduced to a surgeon he was lovely told what tests they were goin to do, and then we would take it from there, had lots of tests to reveal i had inflammation of my rectum sigmoid ilium and caecum, and stared on pain relieve and steroids, then the crunch come i had to go see a gastro, well i wish id never gone he was horrible, he told he didnt believe i had anything wrong with me i had had a bug which had triggered my IBS off again he would give me some questrian sachets to sorted out my runs. and he would refer me to someone for hynotherpy how dare he the idiot. so a few days later i took myself of to my own gps and asked for second opinion at another hospital altogether, she gladly did this for me. im still not 100% diagnosed as yet ive just had 2 MRI scan of my small bowel and pelvis, my new gastro believes it is crohns but just waiting now on my scan results, but to has insult to injury im in full blown flare up again at the moment back on steroids which i hate taking has i produce so much acid it hurts, just wish i new where i was at. ive not worked since last August and its driving me mad not knowing im ok with the crohns thing i just need to know, im now on antidepressants cause of all the upset this has caused, dr playing god, who the hell do some of them think they are> id love to hear from anybody who has some thing intersting to tell me, or just want to say hello, , tc all for you time on reading my story xxxsuexxx
 
Hi Sue,
We met a while ago on the UK forum but I hadn't known your full story until now. You've had a really stressful time with this. I had three years of not knowing what was wrong before a dx and I tell you it really makes you feel like you're alone/ going mad/ scared witless. I can totally empathise. You're not alone though as there are lots of people on this forum that have been through similar although you seem to have gone on a long long time without a definitive diagnosis. No wonder you are so stressed!
Have they looked at your small bowel with a pill-cam endoscopy to get a proper look a the whole tract? Have they done a full white cell scan? My gastro also said that if there is weight loss then it's not a functional disorder like IBS and is most probably IBD. Have you lost any weight and if so do they have a record of this? I think you need to scream and shout to get to the bottom of this. I had a lot of sceptics doubting me and at times even my family thought I was just stressed!!! It was soul destroying and I think I need anger management now cos it still makes me fume:lol: !
Hope you get answers soon. Hang in there.
Gail
xxx
 
hi hedgehog, when i flared in august id lost three stone, and with this flare now ive lost a stone now in 8 days, , my gastro appointment was today, but it was cancelled due to emergency leave. so heres hoeing i get sorted soon, when i had the last flare in august last year, i was told that future flares properly wont be has bad, how wrong were they, this is 10 times worse, thanks keep in touch xxxsuexxx
 
Hi Sue
and welcome

Your story mirrors mine, (and Gails!) we've been thro this crap too. I can totally empathise with you. I had 15 years of this, people thinking I was mentally disturbed and neurotic! Doctors and GPs dishing out anti depressants, and I even went down the gynae route and had a total hysterectomy, and still had the bloody pains when I woke up!
I agree with Gail about the pill cam, and don't take a dx of IBS neither! Your symptoms are an IBD.
This is a great forum to vent, so go ahead, we're with ya sister!
Good luck, hope you get sorted soon
lotsa luv
Joan xxx
 
Welcome to the forum
hopefully you get some answers soon

you mentioned bad acid/reflux... hav you tried somac for it?

Good luck keep us posted
 
Welcome, I am new here too, and have to tell you everyone here is great. I am sorry you have had a rough time. I think I agree with the others. you need to make a fuss till you get this sorted out. Sometimes I wish Dr's could expierence their patiens pain for just a min. It would mabey make them move faster.
 
Hiya, i have the same problem as you was getting pain in right side and had appendics removed but the pain never went away, i still not diagnosed either( well i was when they saw inflammation from small bowel follow thrugh and then put on steriods and conducted tests after which showed nothing up...... unsuprisingly!!!) and yes i have been classed i think as having ibs right now and they want me to go for hypnotherapy i have lost alot of weight so they sent me for a mri scan also currently waiting for results of that, i hope we both get some answers. Yes doctors do make you feel like your going absolutly mad although some try to say it in a nice way i really dont think they understand the extent that it does to our minds when we are feeling down and scared about not knowing what is wrong with us in the first place let alone make you feel even more crap and feel like giving up.
 
Hi all
sorry for not getting back been so ill, you know what its like, ive been on the phone to my gp this morning and shes perscriping me some ensure drinks to try and build me back up. its been 2 weeks on saturday since ive eaten anything, so here goes, ill let you know, thank you all for your comments and wishes cheers xxxsuexxx
 

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