New To This

[Fiot84]

Hi Everyone

I've had a terbulent 6 months, in ways I'm sure many people on this forum will understand. I was diagnosed with Crohns in July this year, almost by accident, as I was being examined for something I believed to be a painful annoyance, ie chronic anal fissure. My first appointment with a gastro specialist 3 weeks ago made me laugh like I've never laughed before! I know that sounds crazy, but I have a severe medical phobia and major privacy issues which the consultant was riping to shreds with all the plans of my treatment and subsequent life filled with poking and proding by random hospital staff. I was honestly crying with the hillarious irony!!! I think he thought I was insane. He said he thought I had been undiagnosed for roughly 10 years, put me on prednisolone and ordered me a small bowel MRI with a follow-up to start Infliximab in 2 months.

The next day I was taken to A&E and admitted to hospital for 3 days. I happily went home for the weekend, almost running out the door, only to collapse at work 2 days later and be readmitted via ambulence for another 5 days. I again ran out the door for the weekend! I've been out of hospital for over a week now and still feel just the same as I did the first day I was admitted to hospital.

Also, my boyfriend and I, after 2 years together, split-up yesterday because he began ignoring me when I went into hospital and decided he couldn't deal with being with someone who has a long-term health condition. Some people really are pathetic and its lucky I'm stronger than him!!!

Today I have a lot of abdominal pain, sickness and my first day back at work was tough, especially as I do a job with a lot of manual handling. However, generally I feel weirdly positive about my MRI later this month and a possible plan for the future.

If someone had told me this time last year that this would be my situation this year, I think I would've told them to bugger off and stop being so ridiculous.

Also, my dad has cancer again, for which his chemo regime is taking it's toll on the whole family.

It doesn't rain, but it pours!!! Isn't that the truth!

Any inspiration on reducing stress and blood loss would be much appreciated. Funny, though not humiliating, stories also welcome.

Nice to have a vent.

 

[Angrybird]

Hello and welcome to the forum.

You sure are going through a lot at the moment hun, just know you have come to the right place for lots of helpful info and supprt. To confirm are you still on the Prednisone? Have you been given anything else to take from the hospital? Are you now not seeing the GI doc until after the MRI? Are you managing to eat anything at the moment and if so what kind of foods are you having?

AB
xx

 

[Fiot84]

Still on Prednisolone (don't know if this is different from Prednisone, but I checked the box), also given Asacol MR and some symptom management stuff. Unfortunately, the hospital I was taken to was not the hospital I'm with as an outpatient, so slightly disjointed care. Still can only get an appointment with the gastro consultant in January 13. They said there was no point in seeing me again until the MRI is done at the end of December. Tried to get them to move the MRI sooner, but no joy.

I'm eating what I've always considered to be a healthy diet (ie steamed fish, rice and root vegetables), but have had no guidance on whether its good for me now or not.

I do feel a bit left in the dark with a torch, but no batteries.

Advice would be great.

Fi

 

[Pirate]

Welcome Fiot84. You are experiancing what most do when dealing with the Medical field. Same here in the States when it comes to waiting for procedures and Dr appointments. Your diet sounds okay but everyone reacts to differant foods in differant ways. Best thing is to keep a food diary. Might not get a good idea until things get straightened around.
I tend to try and make every trip to the hospital into a fun time no matter how sick I get. Maybe its just my way of covering up my fears.
Sorry to hear about your dad, Cancer is a nasty thing. He's in my thoughts along with you. Good luck.