Night sweats?

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Ok. I have no insurance so I am not on any meds, I am in a terrible long term flare. I have these night sweats where I SOAK the bed and myself.. its awful. I get up to go potty ( all night long) and then have to return to a soaked COLD bed.. my poor husband keeps getting pushed to the edge in my search for a dry spot.. WHY do we do this? I thought it was only when your on certain meds..
Oh and I am 37 so its too early for the normal reason :)
 
I hear you loud and clear!!!

I had terrible nightsweats when taking pred. I found that the cotton jersey sheets, they are like cotton t-shirts don't get nearly as cold, clammy as regular sheets.

Also, some women sleep in workout clothes - the ones that wick away moisture. There are pj's made specially for this reason. My favorite maker is nitesweatz.com

BTW, there is such a thing as early onset menopause.

Hope you find some relief soon.
 
I am only on Remicade, I did get night sweats when on Prednisone, but I do occasionally get them when I am flaring too, I HATE coming back to a cold bed because by then I am Freezing cold!
I sleep on a towel, it helps to soak up most of the moisture and keep the bed somewhat dry. If you are having multiple ones a night, keep towels by the bed, you will need to wash towels often but at least your sheets will stay dry.
Hope it gets better for you.
 
I agree with the last post, I'm recently diagnosed and not under control. I am not aware if I am indeed having slight fever, but the night sweats weren't a problem before I got sick. Lol, lucky for my husband we have a king size bed so he can get away!!!
 
well its not due to predisone and I do have a king bed :) The Fever is a possibility. Last night I was fine.. so they are hit or miss.. its nice to know your not alone with this junk! :) The work out gear is a great idea..:)
 
im exactly the same! always know when im about to have a flare up because i start waking up like someone has swilled me with a bucket of water haha. my doc says when the inflammation kicks in your body gets a fever so i think its something to do with that. feel better soon.
 
I had night sweats before I was DX, and even worse on the pred. I agree that it could be that your flare is causing intermittent fevers and then breaking, which would cause the sweats.

It's maddening, isn't it?

Good luck - hope you can get some health care coverage soon! - Amy
 
Hi Coffee house,
I justed posted something similar to this, but here goes again. Please get under a doctors care. There must be a way. Is there a way this new Obamacare can help? (no flames please :))Don't end up like me with years of unchecked inflamation which can turn to Dysplasia and loss of your colon, and an ostomy.

Don't mean to scare, but this is real, happened to me. It takes many years to get to that point, but nip it in the bud. I had the night sweats, I think it means you have some inflammatory / infection process going on.

Wishing you the best.
 
I also have been wondering about night sweats. When I was first diagnosed I had them bad but also was getting high fevers. Since then, even when i haven't had fevers or any other symptoms, I get night sweats, especially around menstruation. But I am not old enough for menopause either and have been having them for years. I wonder, can you get night sweats related to CD but without fever or is it my hormones? Did you all have fevers with the night sweats?
 
You're in a flare and have a fever that is recurring and breaking as you sleep. Night sweats. I'm sorry you're not able to get medicare treatment to try and get this flare under control. Don't be a hero, go see a doctor and tell them you're without insurance. They have all kinds of free meds there they can give you.
 
Ok. I have no insurance so I am not on any meds, I am in a terrible long term flare. I have these night sweats where I SOAK the bed and myself.. its awful. I get up to go potty ( all night long) and then have to return to a soaked COLD bed.. my poor husband keeps getting pushed to the edge in my search for a dry spot.. WHY do we do this? I thought it was only when your on certain meds..
Oh and I am 37 so its too early for the normal reason :)

I sleep these days with two towels between me and the bottom sheet, for this reason. Usually I wake up before it soaks right through the towels.
 
I get them too, especially when my fistulas are acting up. It drives my husband crazy because he will be freezing and I will be sweating.
 
I've experienced night sweats when on the pred. hell treatment nd now going through menopause as well. In addition to being under a doctor's care, I have found that avoiding sweets and sugar in any form helps reduce night sweats.

And I started sleeping in sweat-wicking clothing (like exercise clothing) which really works.There are several companies that make sleepwear out of the sweat-wicking materials. Also, I switched my sheets to cotton jersey, the ones that are like tee shirts. They don't get wet then cold the way regular cotton sheets do.

Hope these suggestions help

Babs

P.S. Never trust a fart.
 
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Night sweats is a response to fever. The immune system is able to regulate body temperature through cytokine. It's very common with mycobacteria infections like TB.

The night sweats of mycobacteria infections are strongest early on in the disease. Crohn's disease has a lot of symptoms that are exactly like common infectious diseases.

I could fill a bucket with the amount of sweating I did at night.

It's not the meds that cause them, it's the immune system that is regulating the temperature as a defense response. Even the duration of the night sweats is similar to infectious diseases, it's usually around a week of night sweating.

I'm really surprised there is so little research into the night sweats, I did a poll once on the forum, night sweats is very common in crohn's disease it seems.
 
Night sweats is a response to fever. The immune system is able to regulate body temperature through cytokine. It's very common with mycobacteria infections like TB.

The night sweats of mycobacteria infections are strongest early on in the disease. Crohn's disease has a lot of symptoms that are exactly like common infectious diseases.

I agree that night sweats are normally associated with infection. But in the case of Crohn's disease, it doesn't seem so clear. Especially the apparently strong link between prednisolone and night sweats. Surely the prednisolone should be suppressing infections not making them worse? When I was on prednisolone, for quite a while I was experiencing night sweats every night. Does this mean that the prednisolone created infections where there were none before? Somehow I doubt it.

As far as I can see, especially with the number of the people who experience this, it seems to me that the Crohn's disease and the medications combined may actually cause the night sweats, regardless of infection. IMHO.
 
I agree that night sweats are normally associated with infection. But in the case of Crohn's disease, it doesn't seem so clear.

Infections cause cytokine to release, which are behind temperature regulation, those same cytokine are released in the intestine of crohn's disease patients.

I had night sweats long before I had any medication, many people with CD had night sweats before any medication.

If you have another explanation for fevers other than cytokine regulation then you can tell me, but I doubt you will come up with one. The immune system is causing the fevers.
 
As far as I can see, especially with the number of the people who experience this, it seems to me that the Crohn's disease and the medications combined may actually cause the night sweats, regardless of infection. IMHO.

You're trying to seperate two things that are inseparable, an immune response happens in both crohn's disease and in infections (reminder that if crohn's disease is an infection or not is open for debate, I have posted enough studies to support this surrounding LF82 and plenty of other pathogens that invoke an immune response, a big part of people who have crohn's disease are infested with LF82, LF82 is a pathogen, not a commensal, which is an infection, regardless if it is causative or not. At the very least, a subset of crohn's disease patients have infections, not up for debate, the evidence is plentiful, each moth new evidence shows this.). Both induce fevers.

In infections the cytokine being released from macrophages and upregulation of cytokine by the immune system cause changes in temperature, in cron's disease macrophages are releasing cytokine also, that's why you have granulomas at lesions in crohn's disease, they're concentrations of macrophages, which shockingly, release cytokine in crohn's disease patients that are able to induce fevers.

In crohn's disease there is a barrage of cytokine present in the intestine, why they are there is up for debate, that they are able to regulate body temperature is not up for debate.


You can argue that prednisolone is causing fevers, which is fine although the why hasn't been explained by you, but the fact is that many people with crohn's disease have the fevers long before they go on medication, and the fevers correlate with the inflammation, and the mechanics behind the night sweats can be easily explained the same way the night sweats in tuberculosis are explained, the immune system is a temperature regulator.
 
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If I have alot of movements going on inside then I usually start to sweat and wake up wet. Otherwise is doesnt happen alot.
 
I got those night sweats, only thought it was early menopause. As it was, it turned out to be cream I was rubbing on my stomach contained the active ingredient in birth control pills, which was screwing with my menstrual cycle.

To deal with the night sweats though, I kept 5-6 clean and dry changes of bedding and night clothes next to my side of the bed, and when I would wake up from soaking through one set, got up and swapped them out for the next.

There wouldn't have been anyway for me to get back to sleep otherwise.
 

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