Not as bad as you think

[katien]

not as bad as you think

i was 15 when i developed crones disease was an awful experience all happened so fast i was in so much pain constantly, i was in hospital for 3 months and none of the medication was helping went down to 6 and half stone i looked terrible, then after the 2nd month in hospital they told me i needed a permament colostonmy bag i thougiht my life was over, i am now 22 and even have a name for my stoma i call it beryl no ones even notices it i only tell the people i want to know, and no one cares any way just glad im ok, i had 46 staples in my stomach as the whole large bowel had to be removed and the scarring has faded so much and its a really neat scar to, im just glad im happy and healthy again, so just to say any one whos worried about getting a bag dont worry about it life goes on a wouldnt get it reversed even if i ahd the choice its made me go back to the normal bubbly person i was before i developed crohn's disase

 

[Astra]

Hiya Katie
and welcome fellow Brit

That's a lovely ending to a horrible time! So glad you're happy and healthy and getting on with your life, well done you!
Enjoy the forum, lots of friends here for you
lotsa luv
Joan xxx

 

[Jer's Girl]

Thank you for posting Katien! We have a stoma sub-forum you should check out! So many people feel the same way that you do, but many are also afraid of what life with a Stoma would be like! it really helps to have people on here that show that a good attitude is all you need in this life!

I had a stoma for 6 months last year, and even though i did get mine reversed, I know that a permanent stoma is probably in my future, and I have (mostly) made piece with that.

Welcome to the forum! I'm so glad you found us!

 

[xJillx]

Hi Katien! Thank you for sharing your story with us! I think many people with IBD fear one day needing a stoma. However, so many, including yourself, have got their lives back thanks to having the procedure. I am so happy you shared to help put people's fears to rest.

As Nicole said, you should check out the stoma sub-forum and share your story there, too. I think many members would find it beneficial.