My daughter recently got diagnosed with ovarian failure after not going through puberty, or starting her periods. After lots of testing the endocrinologist came to the conclusion that this happened because of her crohn's. Just out of curiosity l'm wondering if anyone else has ovarian failure due to crohn's disease.
Ovarian Failure
- Thread starter upsetmom
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nogutsnoglory
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Wow never heard of that. Sorry to hear about this added battle 
She lost about 10kg before she got dx. They said this can't be reversed.
Her ovaries aren't expected to work anymore so she is using hormones to give her body the estrogen for healthy bones, heart etc. Sadly she'll never be able to have her own biological children.
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I'm very sorry. I have premature ovarian failure, they thought at first due to being so underweight during adolescence. I didn't grow in height after age 14, and my periods never started. But they told me sometimes women recover if they're able to maintain a healthy weight later on. I didn't, but later I was found to have another, separate endocrinological disorder. That's why I wondered if there isn't something more to your daughter's condition - if Crohn's is being suggested as the cause, I can only think it's been a result of her low weight, but in that case I would have thought they would have suggested there is a chance of recovery. How old is your daughter, if you don't mind me asking? Maybe if you ask your daughter's doctors for more details, they may be able to tell you more specifically how Crohn's could be the cause, as maybe her weight is not the problem.
From my own experience, some hormone conditions can be treated very effectively in regards to the issues you mention - bone health, etc. Also, if she can manage to maintain her weight now, that will help; even if low weight is not the cause of her condition, maintaining a healthy weight now may help protect her bones. I'm very sorry you and she are having to deal with this.
From my own experience, some hormone conditions can be treated very effectively in regards to the issues you mention - bone health, etc. Also, if she can manage to maintain her weight now, that will help; even if low weight is not the cause of her condition, maintaining a healthy weight now may help protect her bones. I'm very sorry you and she are having to deal with this.
UnXmas l'm so sorry to hear of your diagnosis as well.
My daughter just turned 17.
I really didn't question the DR after he said it was most likely caused from crohn's. What l do know is her ovarian reserve is very low, her ovaries couldn't be identified on an MRI and other autoimmune diseases were ruled out. As she had started breast development the DR said her ovaries would be there but they've shrunk and there's nothing that can make them recover.
Also her crohn's has been active for at least 3 years that we know of.
At the moment she doesn't know that she won't be able to have children. The DR has never spoken about infertility in front of her, he rang me up after our appointment and told me to tell her. I really don't know when's the right time to tell her.
My daughter just turned 17.
I really didn't question the DR after he said it was most likely caused from crohn's. What l do know is her ovarian reserve is very low, her ovaries couldn't be identified on an MRI and other autoimmune diseases were ruled out. As she had started breast development the DR said her ovaries would be there but they've shrunk and there's nothing that can make them recover.
Also her crohn's has been active for at least 3 years that we know of.
At the moment she doesn't know that she won't be able to have children. The DR has never spoken about infertility in front of her, he rang me up after our appointment and told me to tell her. I really don't know when's the right time to tell her.
I'm so sorry for your daughter. And that you've been put in that position by the Dr. I am pretty shocked he told you and not her, that would be grounds to sue in the UK. Legally an adult (which at 17 she is) would not expect medical information to be withheld and on top disclosed to someone else without explicit prior consent.
If it were me I would have the Dr tell her and not let on that I had already been told.
Again, I am shocked, how awful such a difficult time for you has been made worse!
If it were me I would have the Dr tell her and not let on that I had already been told.
Again, I am shocked, how awful such a difficult time for you has been made worse!
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I have had doctors discuss things with my mum - some of my doctors have known us for many years, and they know I'm happy for them to talk to her in my absence (e.g. she's spoken with my GP when I've been in hospital, or my surgeon speaks to her when I'm still not awake from the anaesthetic), so I think there are times when doctors can use discretion when it comes to confidentiality, though of course I can't say if that's the case here.
upsetmom - do you think it's possible your daughter already knows she's infertile? It may well have crossed her mind even if she hasn't said anything. Do you think it's also possible she may be researching her condition online? I know that it doesn't mean it will be any less painful for her to deal with, but when you do decide to tell her, it may not come as complete shock to her.
upsetmom - do you think it's possible your daughter already knows she's infertile? It may well have crossed her mind even if she hasn't said anything. Do you think it's also possible she may be researching her condition online? I know that it doesn't mean it will be any less painful for her to deal with, but when you do decide to tell her, it may not come as complete shock to her.
How is she doing with everything? It must be a lot for a kid to take in. It sounds like you're really there for her and I'd bet that as she talks about what she's going through, she'll probably give you cues about the right time to talk about the infertility. My heart really goes out to you both!
Thanks everyone
She was still 16 when we first found out her ovaries weren't working, so maybe that's why the DR told me. I don't know but l was shocked when he rang. I thought why didn't he tell us this yesterday, why did he leave it up to me.
At first, before the MRI the DR said it might be possible to get her ovaries working again. I think this gave her a lot of hope. When l found out she was infertile l kept hinting that maybe we won't get them working again, but she said mum have a bit hope the DR said it was a possibility. So l think she's still hoping. I don't know what's going on in her head. l really don't think she's researched anything.
At 16 she looked like an 11 year old. Now that the estrogen patches have started working her confidence has been boosted. And she recently got her drivers licence so she's out all the time, which is good too see.
She was still 16 when we first found out her ovaries weren't working, so maybe that's why the DR told me. I don't know but l was shocked when he rang. I thought why didn't he tell us this yesterday, why did he leave it up to me.
At first, before the MRI the DR said it might be possible to get her ovaries working again. I think this gave her a lot of hope. When l found out she was infertile l kept hinting that maybe we won't get them working again, but she said mum have a bit hope the DR said it was a possibility. So l think she's still hoping. I don't know what's going on in her head. l really don't think she's researched anything.
At 16 she looked like an 11 year old. Now that the estrogen patches have started working her confidence has been boosted. And she recently got her drivers licence so she's out all the time, which is good too see.
I am so sorry to hear this for your daughter. But I am glad you say she is out and about. God has great things in store for her. While she may not be able to have her own biological babies, there are MANY that will need a forever home. She may be that one person some will depend on for that love.
May God continue to bless you through this journey...
May God continue to bless you through this journey...
Cross-stitch gal
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A friend of my husband's at work had Crohn's. He would have abscesses all over his back. I know this is a little different than your daughter. But, unfortunately these abscesses can appear anywhere. Sending you and your daughter lots of hugs.
Crohn's wise she's still suffering from daily pain when she eats and the occasional diarrhea.
I still haven't come across the right time to talk to her about her future, or l'm trying to avoid it..:runaway: I think l'll cross that bridge when l need to.
After waiting 8 months for her period to start nothing was happening so the endo decided to add the provera. Her first period lasted 7 days. The last one only lasted a day. I don't know if this is normal or not...l'll wait to see what happens next month before l go ringing the DR.
So not much has changed.
Cross-stitch gal
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I know my situation isn't the same as your daughter's. But, before I was married my periods would last about 8 days. Now that I've been married for awhile, they last for 5 days.
Since she's only had 2 periods it's possible that it may take her a bit to get going. Once she gets going, it'll take her awhile to get a system going as to when she bleeds, how many days to bleed and so on. If I'm in a flare, it'll mess with my periods too. Best thing to do is keep a watch on things like you are now.
Since she's only had 2 periods it's possible that it may take her a bit to get going. Once she gets going, it'll take her awhile to get a system going as to when she bleeds, how many days to bleed and so on. If I'm in a flare, it'll mess with my periods too. Best thing to do is keep a watch on things like you are now.
