People don't understand

[Allegra]

I'm currently undiagnosed, and I find it so infuriating sometimes that people just disregard this pain because it doesn't have a specific title yet! Even my mom today on the way to school, which I have to go to despite crippling stomach cramps goes,
"Maybe if you paid more attention to your appearance you'd feel better!"
Why can't she be glad I even got up and dressed...

 

[Beach bum]

I know it is easier said than done but try not to take things people say to heart.

When you are undiagnosed it is very frustrating for you and worrying for your family, I remember my sister asking me if it could be "all in my head?" which at the time was upsetting but I know now that she didn't mean it unkindly , she was just looking for a reason for it all and an answer to the problem the same as me.

You know how difficult it is to keep going when you are poorly and you can be proud of yourself for managing it , even if no one else realises what a struggle it is.
Good luck and I hope you get sorted out soon.

 

[mamagus]

even after you are diagnosed, people don't understand. People mean no harm - they truly don't - especially moms.

If you are cramping - when you are home - some relief I have found is a heating pad on the cramp part. Lying on my left side sometimes helps too.

When I'm in agony, as much as I want to stay in bed, I still try to get up and get out (don't want my whole life to pass by while sitting in the bathroom or crying in bed)

 

[DustyKat]

Hugs to you Allegra. :ghug:

Lord knows it is hard enough with a diagnosis let alone without one!

My daughter was undiagnosed for 18 months and I well remember what she went through with insensitive comments of others. Even as her Mum I found what she was going through frustrating at times and I do think I felt angry. I sometimes had to stop myself from losing my patience with her…how awful is that! and certainly feelings I am not proud of. I am just thankful I was able to stop myself. I know at the time they were borne out of fear and worry but that was my issue and something not to be lashed out at on her. My heart was breaking for my daughter and I wish everyday of my life that I could this disease away from her and make it my own. I can’t speak for your mum but I imagine that is how she feels too, but sometimes we have bad days and say things we don’t mean and we are so very sorry for that. :ghug:

You sound like a amazingly strong young lady and I hope you soon have solid answers to what is going on, it’s the very least you deserve. :heart:

:hang:

Dusty. xxx

 

[Allegra]

Thank you so much to you guys! I do try and let people's comments not get to me, I'm just so scared and I just want to be better

 

[Daisy123]

My sister tries to shout me better. I love her lots and know it is just she feels so helpless. I am not too sympathetic when she complains about pains in her joints, I say welcome to my world. Allegra I think it is just people want you to be better. It is difficult but it takes time for everyone.

 

[Lulubelle]

Your Mum sounds like mine! I am sorry you are dealing with the pain, lack of diagnosis and having to attend school when you obviously don't feel well. The only "good news" is that all of the above will make you the strongest, most compassionate person you know! When you are forced to tolerate pain (of several types), it changes you forever. My mother drove me batty when I was your age, but later she became my best friend. Hang in there and remember you are not alone. People here feel your pain. Things have to get better, right?:smile: