Push through taper...? Help :(

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Joined
Apr 5, 2014
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I'm trying not to call my Dr's office (Mayo Clinic) for every little symptom I have (been doing that for the past couple months almost every week lol).

I started 6mp (again, after 2 years) in Nov on 50 mg. Increased to 75 last month and developed abd pain within 2 days. Amylase a liiiiitle high a week later(135) but when his nurse said maybe 6mp isn't for me and to move to a Biologic I was like...no. I'm mild. Let me give 6mp a true try since it helped me in the past. This is the 2nd flare I've had in 5 years since diagnosis. I've been on Entocort since June 2014 and it's given me duodenal erosions/gastritis (because it's done that in the past too...that's how i know, even though it's not supposed to). So here I am, been on 75 mg consistently since 2 weeks ago, tried tapering Entocort (again) a few days later. Until yesterday, I thought "great! No RLQ pain", Well, last week I had a weird sensation in the rectal area, like...swollen-feeling. Now I'm having about 1-2 BM per day, mushy and the RLQ pain is back...but I'm also due for my menstruation next week (sorry males!).

I need OFF entocort because it's hurting my stomach (which is why I think I have a stomach ache with 6mp) and this 1.5 weeks is the longest I held out in tapering from 9mg to 6...before I lasted like 2 days when the RLQ pain would return.

Should I ignore the RLQ tenderness and continue to taper, knowing 6mp will kick in eventually?
I'm never able to talk to my doctor (understandably) and I don't want to keep talking to his nurse...I'm almost about to make another appt to drive 3.5 hours up to him!

How many of you had to come off steroids for health-sake and waited for the meds to kick in??
 
I know what you mean about not wanting to call the doctor. Unfortunately, this would probably be a good time to be asking questions though. Have you found any solutions otherwise? How are you doing now?
 
Second the calling the doc
Honestly that is why they are there
Once your stable then they can answer those other patients phone calls

Fwiw my kiddo is considered "mild" by scope results but did horrid on 6-mp/Mtx
Biologics have kept all the EIM under control
Hope things settle soon
 

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