Hello everyone:
I read the post here and thought I might could be of some help. I was diagnosed with crohn's disease in 2010 and also they found that I had a suture granuloma on the colon. That is a stitch that did not disolve from a previous surgery and it formed a granuloma over it. Anyway, the significance is that I have exactly the same symptoms you all are describing down the knee, hips, and sometimes the feet. I also have bertolotti's syndrome which is a transitional vertebrae and have been treated for SI joint, low back, and right hip pain for over 10 years. For the past year I had developed rectal pains and the knee, hip, ankle and foot pain and have been to at least 15 different doctors trying to figure it out. Because I am also a nurse I have done a lot of my own research online and have found some interesting facts. You all should read about lumbosacral plexopathy, mainly sacral, but they classify it all together in the medical field. More importantly read neoplastic lumbosacral plexopathy. Even though we probably don't have anything neoplastic going on, I find that anything in the intestine, ie; polyps, inflammation, etc. can cause these same symptoms. In my case I believe the suture granuloma is reacting against the spinal nerves as if it were a tumor. Also one thing they mention about it is that with constipation or a full bowel it will bring on symptoms. Another good thing to read about is nerve distribution from L3 to S5. These nerves control legs, rectal, vaginal, penal, knees, and feet. Mainly the tibial nerve arises from L3 and S3. Some interesting things to note. One little tip I learned was to use a fairly thick pillow between the legs at night. I had always slept with a pillow between my knees and in the fetal position that helped the back pain some, but I learned from a doctor online that if I was having plexopathy symptoms I should treat it as a meningeal tear and use 2 pillows or a very thick couch pillow. I decided to give it a try and it did help greatly! Hope this information will help someone today.
