Desperado Dan - I agree, I think the diet can be done along with the drugs... It will definitely be hard to tell what's the diet and what's the drugs, there's no doubt. Prednisone itself will tackle your symptoms in a big way almost overnight, though I can't speak to Imuran's effects, as I got Pancreatitis from it! Though I'm sure you won't! Most people who have tried it find it works well for them! I think there are other effects from the diet that Prednisone and other drugs can't address, like energy levels, clarity of mind and a general sense of health.
It's definitely hard to know what to do, when you have a GI telling you one thing, telling you that you can't be healthy without the drugs. Luckily, and I think I am in the minority here, but my GI is VERY open to alternative treatments and has always been supportive to let me find my own way to health. He still wants me to be on medications and talks a lot about surgery when I'm not doing very well. But overall, when I tell i'm trying some new alternative treatment he's supportive. I told him after my colonoscopy in April (while I was still doped up on Demerol, no less!) that I wanted to give SCD a try and he looked excited and said "I think that's a great idea!". Taken aback, I asked if he had had other patients try it and he said yes, that there are some that have been successful with it but they have overall found it too difficult to stick to. Then I spouted off about how I'm a web design student and that I am building a food and recipe website and am super determined to try... He kind of chuckled at me because I was pretty high on sedatives, still! But nonetheless, he was supportive. That being said - my eventual plan with SCD is to slowly come off Methotrexate and try to sustain my health without it. Maybe you could, at some point down the line when you feel really well and have gotten used to the diet and gotten good at reading your body's signals, experiment with coming off the drugs.
However, as someone who experimented with stopping taking meds without doctor supervision and without a solid plan or stable health, I definitely don't advise coming off the meds until you are certain about your health! I got very very sick at the beginning of 2010 and I never fully recovered.
Partly Cloudy - I'm quite intrigued about the DL-Phenylanine, but I'm nervous to try something new again after my experience with S. Boulardii. Plus, I've read a lot that DL-Phenylanine is primarily used as an antidepressant... Is it a natural supplement? Did you have it recommended to you for diarrhea? Or for something else and it happened to work for diarrhea?
I'm going to be making your squash button recipe tomorrow afternoon (though I think I will be making it more as a muffin!), and omitting banana and honey as much as i can. I'm also worried that my DCCC isn't legal and could be contributing to my flare... I'm so confused about this brand! I've been told by other SCDers that it's legal, but I'm still so confused about it, because it says Carbohydrate 2g - 1%; Sugar 2g on the label. Any ideas?!
It's definitely hard to know what to do, when you have a GI telling you one thing, telling you that you can't be healthy without the drugs. Luckily, and I think I am in the minority here, but my GI is VERY open to alternative treatments and has always been supportive to let me find my own way to health. He still wants me to be on medications and talks a lot about surgery when I'm not doing very well. But overall, when I tell i'm trying some new alternative treatment he's supportive. I told him after my colonoscopy in April (while I was still doped up on Demerol, no less!) that I wanted to give SCD a try and he looked excited and said "I think that's a great idea!". Taken aback, I asked if he had had other patients try it and he said yes, that there are some that have been successful with it but they have overall found it too difficult to stick to. Then I spouted off about how I'm a web design student and that I am building a food and recipe website and am super determined to try... He kind of chuckled at me because I was pretty high on sedatives, still! But nonetheless, he was supportive. That being said - my eventual plan with SCD is to slowly come off Methotrexate and try to sustain my health without it. Maybe you could, at some point down the line when you feel really well and have gotten used to the diet and gotten good at reading your body's signals, experiment with coming off the drugs.
However, as someone who experimented with stopping taking meds without doctor supervision and without a solid plan or stable health, I definitely don't advise coming off the meds until you are certain about your health! I got very very sick at the beginning of 2010 and I never fully recovered.
Partly Cloudy - I'm quite intrigued about the DL-Phenylanine, but I'm nervous to try something new again after my experience with S. Boulardii. Plus, I've read a lot that DL-Phenylanine is primarily used as an antidepressant... Is it a natural supplement? Did you have it recommended to you for diarrhea? Or for something else and it happened to work for diarrhea?
I'm going to be making your squash button recipe tomorrow afternoon (though I think I will be making it more as a muffin!), and omitting banana and honey as much as i can. I'm also worried that my DCCC isn't legal and could be contributing to my flare... I'm so confused about this brand! I've been told by other SCDers that it's legal, but I'm still so confused about it, because it says Carbohydrate 2g - 1%; Sugar 2g on the label. Any ideas?!
, if you are not sure about DCCC, I would suggest you to drop it for now and try hard cheese such as Grueyer, Swiss, Manchengo, Cheddar or any other legal cheese , of course if you like them. You should be able to find all of them made in raw milk version. I recently bought raw milk Cheddar at Famous Foods on Kingsway.
