Hi people,
This is my first post. I've been looking and reading for years, but never joined to post anything. I've had Crohn's for 17 years and presently in the middle of a particularly aggressive flare up. I've been referred for a stem cell transplant as no medication is working, and an operation is not an option as to much of both my bowel's are inflamed.
I found it quite difficult to find anyone in the UK who I could speak to about their experience. As you can imagine it is a pretty big decision you have to make, and speaking to someone who has been through it can put your mind as ease.
I am all set to start the procedure in July, and have started a blog just to keep my experience's and thoughts. The procedure differ's a little from country to country, so this is from a UK perspective. The blog is mystemcelljourney.wordpress.com
If anyone is in the same position as me, and would like some advice or just a chat, then message me and I'll send my email address.
Hope you all are well, and thanks for reading.
This is my first post. I've been looking and reading for years, but never joined to post anything. I've had Crohn's for 17 years and presently in the middle of a particularly aggressive flare up. I've been referred for a stem cell transplant as no medication is working, and an operation is not an option as to much of both my bowel's are inflamed.
I found it quite difficult to find anyone in the UK who I could speak to about their experience. As you can imagine it is a pretty big decision you have to make, and speaking to someone who has been through it can put your mind as ease.
I am all set to start the procedure in July, and have started a blog just to keep my experience's and thoughts. The procedure differ's a little from country to country, so this is from a UK perspective. The blog is mystemcelljourney.wordpress.com
If anyone is in the same position as me, and would like some advice or just a chat, then message me and I'll send my email address.
Hope you all are well, and thanks for reading.
