Sun rash - from 6mp?

[InkyStinky]

The weather’s getting really lovely in my part of the world, and I’ve been outside a lot recently. And getting a rash from the sun. Bright red dots of different sizes - not raised - only slightly itchy. Mostly on my hands/forearms. It gets worse several hours after sun exposure, and lasts a day or so. So I’ve been coating every inch of exposed skin in sunscreen (SPF 50 or more) and [knock on wood] I haven’t gotten the rash for the past week or so.

I haven’t had this rash for the past few years (in med-free remission) – I used to get a really horrible rash from any sun exposure, but I can’t remember if it started before/after I initially started on 6mp. I’ve been back on 6mp since Sept and just started getting the rash a few weeks ago – if it’s caused by the med why didn’t the rash start last fall when I was outside a lot??? I’m kind of worried because when I was younger nothing would stop me from getting the rash (I wore sunscreen/pants/long sleeves and still got the rash on my hands – it was terrible)...

Anyway, do any of you get a rash like this from being in the sun? What do you do about it?

 

[Astra]

Hi Sabrina
hope you are well?

I'm gonna do some research on this, cos I've got an itchy rash, and posted somewhere else about it, I thought it was the Pentasa, but I think it's the Pred, someone has mentioned to me about keeping out of the sun whilst on Pred! And the weather has been lovely here all weekend and I've been sitting in the garden, so will let you know if I find out anything!
xxx

 

[Astra]

http://www.chemocare.com/bio/[wiki2="Prednisolone"]prednisolone[/wiki2].asp

Sabrina, in this link it says avoid sun exposure whilst on Pred!

xxx

 

[InkyStinky]

Hi Joan! I'm glad you have some good weather, too! On the whole I'm doing ok - no D or bleeding, no cramps, just really tired a lot. I'm almost done with the pred - that's something at least!

Thanks for the link... I know the recommendation for 6mp is also to "avoid sun exposure" I just wonder if the rash is caused by being on the meds, why didn't I get it last fall? I started 6mp and pred in Sept, and the weather was nice here for probably two more months before I needed winter clothing. And I get the rash on my hands, too, so why is it starting now, 7mths after starting the meds? Argh - I'm confused!

I try to be "smart" about being in the sun but the weather's so lovely I just can't stand to stay indoors all the time!!!! So I either wear tons of sunscreen or my husband's old dress shirts (make me feel like Audrey Hepburn... ). Oh, and a big straw hat when I'm working in the yard. It's just frustrating because it takes so much time to prepare for going outside... and it's a constant reminder of this dang disease. I think that's what bothers me the most - not being "normal". :voodoo:

 

[Astra]

Hi Sabrina

Yeah I'm almost done with the Pred too! no D, pain or anything, I'm on 5mg now and then thats it come Sunday!
Is that the reason? itchy & scratchy cos we're coming off Pred? Dunno, I'm confused too!
AND there's no way I'm staying indoors all bloody Summer! Big hat or no big hat!
I also wanted to ask you, now you're on 5mg, are you really really tired all the time? I could sleep for England!! On high doses of Pred, I was whizzin me tits off!
Now I can't stop yawning!
Lotsa luv
Joan xxx

 

[InkyStinky]

I also wanted to ask you, now you're on 5mg, are you really really tired all the time? I could sleep for England!! On high doses of Pred, I was whizzin me tits off! Now I can't stop yawning!

:ylol2: :ylol2: :ylol2:

5mg has been really weird for me... over the weekend (after tapering from 7.5, which horrible - tired, cranky, angry!!!!) I was full of energy, actually got up when my alarm went off :tongue:, and actually accomplished things! Then yesterday I could barely keep my eyes open, and I had to drag myself out of bed this morning (and if it wasn't for my little dog needing a walk, I probably would have slept til noon...)....

Can't wait to be done with this stuff!!!!