Not feeling to bad today, had zero painkillers over the last few days which is a nice change, I love these periods when it improves!
Check it out if you want! 
EVEN THOUGH I'm not feeling well at all lol. Thank you though! so much! 
Yeah Sunshine less of the looking good dont you know we are sick ! You good lookin thing you ! hahahahaha thank you!! I actually just put a bunch loads of hair spray and stuff. I TRY to make myself look better in videos because people are looking at me ! haha You know, I try not to 'look sick' haha.
And after we sobered up I couldn't find the list! It was hidden under a pile of my crocheting, I have no idea how it got there. It was fun to be a little drunk and silly again, I haven't done that in ages. I won't push my luck, and will just drink very small amounts very infrequently, but I am glad that I can drink a little bit again.
I am so sorry I haven't been around lately...The past two weeks were the performances for the musical I was in, Hairspray, and the dancing I was going every night was exhausting me to the point that I was sleeping all day before the performance. I have also been sleeping the past two days pretty much trying to recover. My husband keeps telling me I overdid it WAY too much doing this show...but I loved doing it! It was a huge success and it looks like we are going to win a ton of awards during an awards ceremony later this month for all the community shows in the area.
And seriously, I hope your meds start working better - I don't suppose there's been any talk of your doctor to up your dose of either med? At least to get you feeling better, and then put it back down to the maintenance dosages? I hope you can recover from the musical soon and have fun and can relax on the cruise! I've never been on a cruise myself (I get seasick easily, ha ha) but my basic understanding is that you can pretty much do what you want, right? So if you want to stuff your face with food or do a lot of activities or just rest and relax, it's up to you?
I know once I get back to the states my treatment will be much more monitored! It seems like the longer he is in the army the more things on his head keep getting permanently damaged! We passed the one year mark on his tramatic brain injury last month, and he still has a lot of permanent memory loss from that.
That's awful! My hubby was in the army for 3 years (we met and started dating after he got out so I never experienced what life is like for a military spouse/girlfriend). But he was in the army during peace time ('95 - '98) so he was never deployed and was never in scary situations and experienced no injuries. He did take a couple of voluntary trips to Kuwait while in the army, but again those were apparently just standard peace-time trips and he didn't have to fight and wasn't in any dangerous situations and never had any injuries or anything (the most complaining he's done about his time in the army is that once someone stole his CDs and stuff, he didn't like being in Texas where he was stationed, and also he complained about the heat from when he was in Kuwait, I guess it was like 140 degrees some days - but that's the worst he really experienced). I can't imagine what it's like for you, and hearing stuff like what your hubby has been through just makes me so grateful that my hubby got out when he did. And grateful that the worst he went through was some heat and the loss of some CDs. I hope your hubby doesn't get any further injuries, it sounds like he's already been through way more than his fair share! You said he's getting out soon, right?
Late last year the army decided he was too fragile to deploy again, but then a month later they took that off his records because they needed more bodies for this next deployment. Yes, he gets out very soon! We will be back in the states by the end of this year. They still haven't decided if they are sending him for part of the deployment, keep him back, or just kick us out early. They are taking their sweet time!
The lady in charge of it contacted me!! I'm so excited!!
And best of luck tomorrow - this always feels weird to say, but I hope they find something! So that you can treat it and get some relief. I've got a busy 3-day weekend planned but will check in when I am able to and I hope to hear some good news from you. Got my fingers crossed for you and am thinking happy healing thoughts!
I hope the TNF drugs help you feel better!!
so just on some strong pain meds and trying to get through. they did however get a lot of air out from yesterday so that's good. less joint pain in my shoulders.
oo:
Welcome to the club and the forum.
Since my doctor is in Gainesville that's 2 hours away so she couldn't get the the operating room to do it.. and they weren't allowed to touch the intestines because she wasn't a colorectal surgeon!! ridiculous.
But overall the trip is wonderful. We found out they have acupuncture in the spa, and I am going to try it to see if it helps my pain long term! If it does I am going to get it done regularly in Germany!
If you do something like Ensure, try to find the highest calorie one you can. Like I know that Ensure Plus has 350 calories (the regular kind has 250 calories) per bottle. You might be able to find something even higher than that if you have a look around too. You need all the calories you can get! Hang in there, not too much longer until your GI appointment and hopefully then you can get some more help and better meds. So let us know how it goes!
I've been drinking Ensure, but the highest calorie one I could find was the 350. which is better than nothing at all so it's okay for now.
Fissures, bowel pain,Reflux I even have a urge to urinate Im 99.9% sure this is IBD...
haha!) forgotton what it feels like to feel "healthy".
Does your son get facial flushing, or paleness, or neither?
Okay, maybe not, but after eating them I swear it looks like I poo out whole strawberries, and they hurt the whole way through. Tomatoes are similar, they don't hurt but they do come out in undigested chunks. I tried peeling tomatoes as I thought it was just the skins I wasn't digesting, but no, I can't digest any part of tomatoes it seems.
So happy for you, that's wonderful! And so quickly too, I hope it goes really well! Hopefully it gets you some solid answers and you don't even need to go to the dream scenario (although that does sound like a satisfying scenario, but pill cam might require prep, and as I've experienced, it isn't guaranteed to get you a diagnosis either). I've got my fingers & toes crossed for you and I hope this is the test that finally ends your time in undiagnosed limbo! Best of luck and please do update us on how it all goes!
I love gummy candy, but my guts hate it! My intestines don't even try and digest it anymore...I literally will poo solid gummy. So gross! We are now to stay in Germany until September of 2013, when we were suppose to leave December of this year. This means he is suppose to deploy a full 9 months with the rest of his unit. His unit was NOT the one to decide this...it was higher-up people in charge of the entire army that denied his resignation papers. Because his unit was ok with him leaving, they are trying to arrange it where he stays here in Bamberg, with other soldiers in whats cald "Rear-D". They stay here and help the deployed soldiers from home, as well as go to families houses of the injured and dead. Another officer of similar rank, that was suppose to be Rear-D, wants to take my husbands job and his slot to going to Afghanistan. So right now we are trying to get it all done so that they switch places and Stuart stays here. But it isn't fully done yet, so there is still a chance my husband will be leaving to Afghanistan for 9 months.
I hope he doesn't have to deploy, and that is pretty amazing that they're trying to keep him at home for your sake, sounds like a good bunch of people in his unit! Even if he does get to stay, it sounds like you'll barely see him, but that's good to know he'll be more readily available if you do need to go to the hospital. Good luck with the job! How funny would it be to suddenly outrank your hubby! Is it a full-time job? Since it's in the army, I'm wondering if maybe they already know some things about your illness and would be accommodating? Maybe they'd let you work from home some days when you're running low on spoons? I guess that's stuff you'd have to figure out after you actually get the job. Anyway, good luck with the application and interviewing and all that! I've worked full-time the whole time I've been ill, I'm fortunate that my boss is very understanding (he told me that at a previous job he worked at, a close co-worker of his had Crohn's and he saw how ill she was and how much she suffered so he is very understanding of what I have gone through too) and he's never upset when I need to take a sick day (knock on wood, I haven't had to call in sick so far yet in 2012!). He gets upset at the fact that they still haven't diagnosed me and stuff like that, but never at me. He's a good guy. I hope you can find a good work environment too! I have a non-diagnosis, ha ha. And non-arthritis, maybe. And a non-trustworthy GI... Anyway, glad to hear that prep is off the table, it's always so miserable especially for those of us who tend to have diarrhea anyway! It's like, hmmm, how can I suffer even more? Oh, I know, I'll drink this gallon of laxative! For my pill cam I had to do 1/2 prep which was still miserable and still ended me up on IV fluids for dehydration. So I'm very glad to hear you won't have to do prep is you do get the pill cam!
LOL
