wish I could help you.. are you still going to see the GP tomorrow? I really really hope they act fast and sort something for you. There is clearly something going on - IBD or not!
But yes, I definitely get joint pains. Physical therapy did help my hips greatly for about 2 years before things started getting bad again last winter. If you can manage it, try some gentle stretching & strengthening exercises for the affected joints - it might help quite a lot. Your primary care doc can refer you to PT as well if you feel like you want to try that. 
Hi everyone
Sorry I haven't been on much. I didn't go to a&e even though everyone around me was begging me to go :/ I really don't want to and I k ow this sounds childish but I hate it so much and nothing good ever comes of it. I've emailed for a private appointment with a GI so hopefully I hear back from them soon if not I think I may go into a&e. I felt so ill since Friday- no strength shaking nausea pain all got worse. Just when you think it can't get any worse!
Does anyone know why you get nausea with crohns? I'm on max dose of ondasatron and domperadone an still not let up. I've lost half a stone too in the past week which really isn't good and I would really like some better pain meds
A&e is open 24/7 so I can go any time.
I went shopping today to get PJs and underware for hospital you k ow the really cosy type ones! I thought I was going to pass out in the store. Then I went and got a hot chocolate and that was a bad idea just ended up vomiting in my local town which wasn't good. I hate vomitting in public toilets.
I hope you guys are all doing well.
I'm thinking it's something else. Is it common to have nausea with Crohns...headaches are more frequent...and joint pain is consistent. Friday it was bad and I was on a motorcycle with my hubby on the Gulfside of Florida. It kind of ruined the mini vacation. I am on pentasa....but the nausea isn't common. I'm wondering if it actually was a virus.
(And you know if you have questions you have a whole group of experienced people on the forum to ask!) And as you learn more, I bet we'll come to you asking questions too! Good luck, I hope it continues to go well!
Hopefully it was more informative & interesting than yesterday? Ha ha. I really have no idea what's going on with my body. Still waiting on the biopsy results too. They should be back soon, but I'd bet $1000 that they'll be normal as well since that seems to be the theme with me.
it means a lot., is mal-absorption a symptom of IBS cos my diabetes Dr is concerned that I may have a problem with the absorption of carbs? 
Hi Cat
how embarrassing. When you have IBD suddenly life takes a sharp turn and you no longer have dignity.
I feel that way too, I've become a warrior and I fight a new battle every single day. But I agree with Cindy, you shouldn't have to put up with a crappy nurse. I hope today and the weekend go by okay and that your GI can get you somewhere useful with treatment when he gets back. Hang in there! I did ten reps on one abdominals machine on Tuesday, and my abs (particularly my upper abs, just below my ribcage) have been so sore ever since! Today's the first day where I can laugh, sneeze, etc without tons of pain from those sore muscles (it's still somewhat sore, just not massively sore). I hope this is just my body getting used to abdominal exercise again. So yeah, I wasn't able to do any abdominals machines at the gym yesterday. I need to push myself, but I'm also not a masochist.
Thanks Cat for starting this thread! It's really helpful to hear everyone else's stories - even tho I feel bad because I know how horrid it is to not know what's going on. I've been sick since April 2008 and have been "diagnosed" with lots: endometriosis, costochondritis, general IBD, crohns, and fibromyalgia...Had the endo removed, but doc said it wasn't enough to cause my pain (and that was 2 years ago, but pain still here). I've taken meds for the costo and crohns, but to not avail
.
)
.
- hopefully I can be more involved again soooooon! Xx
It's fascinating to me that people can say, I want this picture on my body forever, and just go with it. I'm not nearly laid back enough to do something like that! Anyway, I like it, it's like a celebration of your strength and what you were able to make it through. It does seem special, getting a tattoo in honor of making it through a rough medical ordeal. My aunt did something similar, she broke her neck in an awful car accident (no paralysis fortunately, she's okay!) and they had to put this metal rod thing in her neck to fix it - it's permanent, the metal rod won't ever be removed. So once the scar healed, she got a tattoo over it. Stuff like that, I could see maybe getting a tattoo for something like that. But people who just drunkenly go out and get a Spongebob tattoo or whatever, that kind of thing will still forever puzzle me! When we get a bit of extra money, I go all crazy buying groceries - that's my splurge! Groceries! I get all excited for grocery shopping! And that should not happen, that's just not right. But that's where we're at now - we're poor because he doesn't work much and because I have a lot of doctor/medical bills and take expensive medications. Hopefully soon I'll be able to splurge on funner things than groceries.
or if I was, I definitely wasn't.
Yes, you are awake the whole time, there is no sedation nor anesthesia used. I couldn't feel the pill cam moving through me, I just felt normal (well, normal for me anyway) - I didn't notice any pain or feeling anything large moving through me. You don't have to stay in the hospital/clinic the entire time - you go in, swallow the capsule, get hooked up to a belt contraption that has the recording device on it (like a wireless hard drive that receives and stores all the data that the capsule transmits) - once you've swallowed the capsule and are hooked up to the belt, you can go home or do whatever for 8 hours. The battery in the capsule lasts about 8 hours, and when it dies (the belt will indicate that it's no longer getting data from the capsule), then you return the belt to the hospital. You do NOT need to return the capsule, just the belt. They download the data from the belt onto the computer, then a doctor looks at the images. It's easy peasy! The hardest part of the test is, your small intestine needs to be pretty clean in order for the cam to see well enough. So you may need to do colonoscopy prep, or they may just ask you to fast/clear liquid diet for a day or so beforehand. I had to do 1/2 prep for mine, which was the worst part by far. The capsule itself is a little daunting to swallow, it's the size of a large horse pill, but personally I got it down on the first gulp of water. They apparently coat it with slick stuff to help it get down your throat easier, and it was surprisingly easy to swallow, given its size. Did that answer your questions? Let us know if you have more questions, a few of us on here have had the pill cam.
Thanks for a great description Cat-a-Tonic!Shreela, I've had the pill cam and can answer your questions.
. I'm not doing too bad compared to how I used to be, my main problem is pain in my joints that I just can't seem to find anything that helps. I've just had my pain meds switched again from MST and Nefopam to targinact and oxycodone, I'm only on my third day but don't think it's doing much . The mst really clogged me up so the nefopam was meant to stop that but it gave me really bad sweats, I was already having night sweats and hot flushes but the med made it 100 worse (having hormone profile next week to see if it's the menopause). I often wonder what I would feel like with no meds? Most of what I take list most of my symptoms as side-effects and i do wonder am I sore because of changes in my body or because of the meds I take?
